Abstract:
This article argues the voice of people with dementia was missing from the Australian Royal Commission into Aged Care Quality and Safety (RCAC) Final Report. This absence was notwithstanding that the RCAC was explicitly tasked to inquire into dementia care. The RCAC Final Report is shown to marginalise the perspective and experience of people with dementia in the aged care system at the same time as prioritising substitute voices of experts, advocates, family and care partners. This absence of voice repeats and re-inscribes framing of people with dementia as \"missing persons\". Where people with dementia face practical and legal barriers to participate in civic and legal processes, the RCAC failed to adjust its methodologies to ensure their voices were \"heard\". The RCAC\'s re-inscription of marginalisation of people with dementia raises concerns for the legitimacy and success of its recommendations for dementia aged care reform.
摘要:
本文认为,澳大利亚皇家委员会在老年护理质量和安全(RCAC)最终报告中缺少痴呆症患者的声音。尽管没有这种情况,但RCAC明确承担了调查痴呆症护理的任务。RCAC最终报告显示,在优先考虑专家的替代声音的同时,边缘化了老年痴呆症患者在老年护理系统中的观点和经验,倡导者,家庭和护理伙伴。这种声音的缺失重复出现,并将痴呆症患者重新刻录为“失踪人员”。痴呆症患者在参与公民和法律程序方面面临实际和法律障碍,RCAC未能调整其方法,以确保他们的声音被“听到”。RCAC重新将痴呆症患者边缘化,这引起了人们对痴呆症老年护理改革建议的合法性和成功性的担忧。