PDF(Pubmed)
Abstract：
Introduction: Abdominal wall hernia surgery aims to relieve symptoms and to improve quality of life (QoL). The aim of this novel patient led research, was to help surgeons understand how hernias impact on patients\' wellbeing. Methods: A questionnaire was developed by patient advocates. It was promoted through social media to gather anonymous feedback from patients. Results: 264 questionnaires were completed. The majority of the respondents were female (78.4%, n = 207), from English speaking countries (85.2%, n = 225), and had either parastomal hernias (36.0%, n = 95) or incisional hernias (28.0%, n = 74). Respondents described how their hernia affected sexual intimacy, either due to the dislike of their physical appearance, pain or the practicalities of their hernia getting in the way. They reported that their hernia restricted them from engaging in certain exercise activities, and a significant proportion also reported an impact on their diet. Conclusion: This study has identified that in addition to functional problems, living with a hernia can affect mental health as well as social and physical relationships. Existing hernia QoL tools are limited in the outcomes that they measure. Without a comprehensive hernia specific QoL tool, it remains difficult for a surgeon to accurately assess the impact that different treatment modalities may have on patients.
摘要：
简介：腹壁疝手术旨在缓解症状并改善生活质量（QoL）。这个新的病人领导的研究的目标，帮助外科医生了解疝气对患者健康的影响。方法：由患者倡导者编制问卷。它通过社交媒体进行推广，以收集患者的匿名反馈。结果:共完成问卷264份。大多数受访者是女性(78.4%,n=207)，来自英语国家(85.2%，n=225),并且患有造口旁疝（36.0％，n=95）或切口疝（28.0％，n=74）。受访者描述了他们的疝气是如何影响性亲密的，要么是因为不喜欢他们的外表，疼痛或疝气的实用性。他们报告说，他们的疝气限制了他们从事某些运动活动，相当比例的人也报告了对他们饮食的影响。结论：这项研究发现，除了功能问题，患有疝气会影响心理健康以及社会和身体关系。现有的疝气QoL工具在测量结果方面受到限制。没有全面的疝气特异性QoL工具，外科医生仍然难以准确评估不同治疗方式可能对患者产生的影响.
