PDF(Pubmed)
Abstract：
Myalgic encephalomyelitis (ME) is a chronic neurological illness affecting many bodily systems, commonly the nervous and immune systems. Also known as chronic fatigue syndrome (CFS), key symptoms are extreme fatigue, post-exertional malaise, cognitive problems and sleep disturbance. With reported higher levels of online activity for people with ME/CFS than other patient groups (Westerby 2013 cited in Ytre-Arne) it is crucial to gain more knowledge of usage characteristics and experience of online use, and its integration into everyday life. This scoping review protocol details the proposed methods for gaining insight into this little known phenomenon.
This review uses the methodological framework for conducting a scoping review by Arksey and O\'Malley, with further guidance by Levac et al, and the Joanna Briggs Institute. It also refers to the Preferred Reporting Items for Systematic Review and Meta-Analysis Protocols reporting guidelines. The following bibliographic databases will be searched: Embase, Medline, PsychINFO, Cinahl, AMED, and ASSIA, plus Web of Science, ProQuest Dissertations and Theses Global, Scopus, and Google Scholar for grey literature. Reference lists of included papers will be studied. Two reviewers will independently screen title abstracts, and then full text of studies against inclusion criteria. Remaining studies will be quality assessed using appropriate critical appraisal tools. Findings will be charted and mapped to gain in-depth knowledge of the use of the internet in people with ME/CFS.
The findings from this review will be disseminated through peer-reviewed publication and a report for leading charities of ME/CFS. The review will collect secondary data only and therefore does not need ethical approval.
This review uses the methodological framework for conducting a scoping review by Arksey and O\'Malley, with further guidance by Levac et al, and the Joanna Briggs Institute. It also refers to the Preferred Reporting Items for Systematic Review and Meta-Analysis Protocols reporting guidelines. The following bibliographic databases will be searched: Embase, Medline, PsychINFO, Cinahl, AMED, and ASSIA, plus Web of Science, ProQuest Dissertations and Theses Global, Scopus, and Google Scholar for grey literature. Reference lists of included papers will be studied. Two reviewers will independently screen title abstracts, and then full text of studies against inclusion criteria. Remaining studies will be quality assessed using appropriate critical appraisal tools. Findings will be charted and mapped to gain in-depth knowledge of the use of the internet in people with ME/CFS.
The findings from this review will be disseminated through peer-reviewed publication and a report for leading charities of ME/CFS. The review will collect secondary data only and therefore does not need ethical approval.
摘要：
背景：肌痛性脑脊髓炎（ME）是一种影响许多身体系统的慢性神经系统疾病，通常是神经和免疫系统。也被称为慢性疲劳综合征（CFS），主要症状是极度疲劳，劳累后不适,认知问题和睡眠障碍。据报道，ME/CFS患者的在线活动水平高于其他患者群体（Westerby2013在Ytre-Arne中引用），因此获得更多有关使用特征和在线使用经验的知识至关重要。并融入日常生活。此范围审查协议详细介绍了为了解这一鲜为人知的现象而提出的方法。
方法：本评论使用方法学框架进行Arksey和O\'Malley的范围审查，在Levac等人的进一步指导下，还有JoannaBriggs研究所.它还指系统审查和荟萃分析方案报告指南的首选报告项目。将搜索以下书目数据库：Embase，Medline,心理信息,Cinahl,AMED,ASSIA,加上WebofScience,ProQuest论文和论文全球，Scopus,和谷歌灰色文学学者。将研究所包含论文的参考列表。两名审稿人将独立筛选标题摘要，然后是针对纳入标准的研究全文。剩余研究将使用适当的关键评估工具进行质量评估。将对调查结果进行图表和映射，以深入了解ME/CFS人群使用互联网的情况。
背景：本次审查的结果将通过同行评审的出版物和ME/CFS领先慈善机构的报告进行传播。审查将仅收集次要数据，因此不需要道德批准。
方法：本评论使用方法学框架进行Arksey和O\'Malley的范围审查，在Levac等人的进一步指导下，还有JoannaBriggs研究所.它还指系统审查和荟萃分析方案报告指南的首选报告项目。将搜索以下书目数据库：Embase，Medline,心理信息,Cinahl,AMED,ASSIA,加上WebofScience,ProQuest论文和论文全球，Scopus,和谷歌灰色文学学者。将研究所包含论文的参考列表。两名审稿人将独立筛选标题摘要，然后是针对纳入标准的研究全文。剩余研究将使用适当的关键评估工具进行质量评估。将对调查结果进行图表和映射，以深入了解ME/CFS人群使用互联网的情况。
背景：本次审查的结果将通过同行评审的出版物和ME/CFS领先慈善机构的报告进行传播。审查将仅收集次要数据，因此不需要道德批准。
