关键词: cost of care crowdfunding financial burden financial hardship financial toxicity gender expansive gender identity sexual and gender minority sexual minority sexual orientation transgender

Mesh : Humans Fund Raising / methods Crowdsourcing / methods Healthcare Financing Neoplasms / epidemiology therapy Sexual and Gender Minorities

来  源:   DOI:10.1002/cam4.6926   PDF(Pubmed)

Abstract:
BACKGROUND: Emerging literature suggests that LGBTQ+ cancer survivors are more likely to experience financial burden than non-LGBTQ+ survivors. However, LGBTQ+ cancer survivors experience with cost-coping behaviors such as crowdfunding is understudied.
METHODS: We aimed to assess LGBTQ+ inequity in cancer crowdfunding by combining community-engaged and technology-based methods. Crowdfunding campaigns were web-scraped from GoFundMe and classified as cancer-related and LGBTQ+ or non-LGBTQ+ using term dictionaries. Bivariate analyses and generalized linear models were used to assess differential effects in total goal amount raised by LGBTQ+ status. Stratified models were run by online reach and LGBTQ+ inclusivity of state policy.
RESULTS: A total of N = 188,342 active cancer-related crowdfunding campaigns were web-scraped from GoFundMe in November 2022, of which N = 535 were LGBTQ+ and ranged from 2014 to 2022. In multivariable models of recent campaigns (2019-2022), LGBTQ+ campaigns raised $1608 (95% CI: -2139, -1077) less than non-LGBTQ+ campaigns. LGBTQ+ campaigns with low (26-45 donors), moderate (46-87 donors), and high (88-240 donors) online reach raised on average $1152 (95% CI: -$1589, -$716), $1050 (95% CI: -$1737, -$364), and $2655 (95% CI: -$4312, -$998) less than non-LGBTQ+ campaigns respectively. When stratified by LGBTQ+ inclusivity of state level policy states with anti-LGBTQ+ policy/lacking equitable policy raised on average $1910 (95% CI: -2640, -1182) less than non-LGBTQ+ campaigns from the same states.
CONCLUSIONS: Our findings revealed LGBTQ+ inequity in cancer-related crowdfunding, suggesting that LGBTQ+ cancer survivors may be less able to address financial burden via crowdfunding in comparison to non-LGBTQ+ cancer survivors-potentially widening existing economic inequities.
摘要:
背景:新兴文献表明,LGBTQ+癌症幸存者比非LGBTQ+癌症幸存者更有可能经历经济负担。然而,LGBTQ+癌症幸存者对众筹等成本应对行为的经验研究不足。
方法:我们旨在通过结合社区参与和基于技术的方法来评估LGBTQ在癌症众筹中的不平等。众筹活动是从GoFundMe网上抓取的,并使用术语词典分类为癌症相关和LGBTQ+或非LGBTQ+。双变量分析和广义线性模型用于评估LGBTQ状态提高的总目标量的差异效应。分层模型由在线覆盖和LGBTQ+国家政策的包容性运行。
结果:2022年11月,从GoFundMe网上收集了N=188,342个活跃的癌症相关众筹活动,其中N=535个是LGBTQ+,范围从2014年到2022年。在最近竞选活动的多变量模型(2019-2022年)中,LGBTQ+活动筹集的资金比非LGBTQ+活动少1608美元(95%CI:-2139,-1077)。低LGBTQ+运动(26-45个捐助者),中度(46-87个捐助者),和高(88-240个捐助者)在线达到平均1152美元(95%CI:-1589美元,-716美元),1050美元(95%CI:-1737美元,-364美元),和2655美元(95%CI:-4312美元,-998美元)分别比非LGBTQ+广告系列少。当按LGBTQ的包容性分层时,具有反LGBTQ政策/缺乏公平政策的州平均筹集了1910美元(95%CI:-2640,-1182),比来自同一州的非LGBTQ运动少。
结论:我们的发现揭示了LGBTQ+在癌症相关众筹中的不平等,这表明,与非LGBTQ+癌症幸存者相比,LGBTQ+癌症幸存者可能不太能够通过众筹解决经济负担,这可能会扩大现有的经济不平等。
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