PDF(Pubmed)
Abstract：
Conditions such as hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndrome (EDS) are most often diagnosed when an individual has joint flexibility beyond the normal physiological limits. Additional characteristics and symptoms include pain and fatigue with individuals also being more likely to report feelings of anxiety and depression. Due to the varied presentation of these conditions, there is a lack of understanding amongst the various healthcare professionals (HCPs) individuals present to, leading to delayed diagnoses and negative experiences for the individuals themselves. This scoping review therefore aims to map the known biopsychosocial impact of adults with HSD and EDS.
The scoping review will follow the six-step framework as outlined by Arskey and O\'Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews (PRISMA-ScR) checklist. The search will be conducted using the following databases: AMED, CINAHL, Cochrane Library, Embase, MEDLINE, PsycINFO, PubMed PEDro. Full-text published articles in the English language (excluding literature and systematic reviews) with adult samples (over the age of 18 years) and a diagnosis of a HSD or EDS, published between 2012 and 2022, will be included in the review.
This review will aim to explore the existing literature for the reported biopsychosocial impact of adults with a HSD or EDS. It will also aim to further acknowledge the gaps in understanding of the condition, how the condition and the impact of the condition is being measured and what HCPs are involved in supporting such individuals. These gaps will be used to inform a future systematic review. It is the overall goal to increase the knowledge of HCPs and the quality of life of adults living with a joint hypermobility condition.
The scoping review will follow the six-step framework as outlined by Arskey and O\'Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews (PRISMA-ScR) checklist. The search will be conducted using the following databases: AMED, CINAHL, Cochrane Library, Embase, MEDLINE, PsycINFO, PubMed PEDro. Full-text published articles in the English language (excluding literature and systematic reviews) with adult samples (over the age of 18 years) and a diagnosis of a HSD or EDS, published between 2012 and 2022, will be included in the review.
This review will aim to explore the existing literature for the reported biopsychosocial impact of adults with a HSD or EDS. It will also aim to further acknowledge the gaps in understanding of the condition, how the condition and the impact of the condition is being measured and what HCPs are involved in supporting such individuals. These gaps will be used to inform a future systematic review. It is the overall goal to increase the knowledge of HCPs and the quality of life of adults living with a joint hypermobility condition.
摘要：
背景：当个体具有超出正常生理极限的关节灵活性时，最常诊断出如高迁移率谱障碍（HSD）和Ehlers-Danlos综合征（EDS）等病症。其他特征和症状包括疼痛和疲劳，个人也更有可能报告焦虑和抑郁的感觉。由于这些条件的不同表现，在场的各种医疗保健专业人员(HCP)个人缺乏理解，导致延迟诊断和个人本身的负面经历。因此，本范围审查旨在绘制HSD和EDS成人的已知生物心理社会影响图。
方法：范围审查将遵循Arskey和O\'Malley概述的六步框架以及用于范围审查的系统审查和荟萃分析的首选报告项目（PRISMA-ScR）清单。搜索将使用以下数据库进行：AMED，CINAHL,科克伦图书馆,Embase,MEDLINE,PsycINFO,PubMedPEDro.英文全文发表的文章（不包括文献和系统评价）与成人样本（18岁以上）和HSD或EDS的诊断，在2012年至2022年之间发布，将包括在审查中。
结论：这篇综述旨在探索现有文献中关于成人HSD或EDS的生物心理社会影响的报道。它还旨在进一步承认在理解这种情况方面的差距，如何测量病情和病情的影响，以及哪些HCP参与支持这些个人。这些差距将用于为今后的系统审查提供信息。总体目标是增加对HCP的了解以及患有关节过度活动状况的成年人的生活质量。
方法：范围审查将遵循Arskey和O\'Malley概述的六步框架以及用于范围审查的系统审查和荟萃分析的首选报告项目（PRISMA-ScR）清单。搜索将使用以下数据库进行：AMED，CINAHL,科克伦图书馆,Embase,MEDLINE,PsycINFO,PubMedPEDro.英文全文发表的文章（不包括文献和系统评价）与成人样本（18岁以上）和HSD或EDS的诊断，在2012年至2022年之间发布，将包括在审查中。
结论：这篇综述旨在探索现有文献中关于成人HSD或EDS的生物心理社会影响的报道。它还旨在进一步承认在理解这种情况方面的差距，如何测量病情和病情的影响，以及哪些HCP参与支持这些个人。这些差距将用于为今后的系统审查提供信息。总体目标是增加对HCP的了解以及患有关节过度活动状况的成年人的生活质量。
