PDF(Pubmed)
Abstract：
UNASSIGNED: This study aims to explore the complicated decision-making dilemma and challenges confronted by parents of children suffering from severe asthma within the Pediatric Intensive Care Unit (PICU) when participating in the development of their children\'s discharge care plans.
UNASSIGNED: Employing a phenomenological methodology, a purposive sampling was performed to engage with 17 parents who participated in in-depth and semi-structured interviews between October 2022 and February 2023. The transcripts of these interviews were transcribed into textual data, which was then subjected to Colaizzi\'s seven-step analysis for meticulous coding and comprehensive thematic elucidation.
UNASSIGNED: The comprehensive analysis of the factors involved in the intricate decision-making dilemmas faced by parents of children with severe asthma during the process of crafting discharge care plans in the PICU revealed five themes and eight sub-themes: 1) Complexity of asthma-related information; 2) Insufficient provision of comprehensive decision-making support; 3) Encountering negative emotions and wavering confidence; 4) Navigating realistic constraints impacting both parents and HCPs; 5) Balancing the advantages and disadvantages of various plans.
UNASSIGNED: Parents of children with severe asthma in the PICU encounter intricate and multifaceted decision-making dilemmas while engaging in the formulation of discharge care plans. These complexities significantly dampen their decision-making enthusiasm and introduce potential risks to the children\'s prognosis and recovery. In the future, it is imperative to leverage the guidance provided by healthcare professionals (HCPs) in the decision-making process, develop tailored decision support tools specifically designed for the formulation of discharge care plans for children with severe asthma in the PICU.
UNASSIGNED: Employing a phenomenological methodology, a purposive sampling was performed to engage with 17 parents who participated in in-depth and semi-structured interviews between October 2022 and February 2023. The transcripts of these interviews were transcribed into textual data, which was then subjected to Colaizzi\'s seven-step analysis for meticulous coding and comprehensive thematic elucidation.
UNASSIGNED: The comprehensive analysis of the factors involved in the intricate decision-making dilemmas faced by parents of children with severe asthma during the process of crafting discharge care plans in the PICU revealed five themes and eight sub-themes: 1) Complexity of asthma-related information; 2) Insufficient provision of comprehensive decision-making support; 3) Encountering negative emotions and wavering confidence; 4) Navigating realistic constraints impacting both parents and HCPs; 5) Balancing the advantages and disadvantages of various plans.
UNASSIGNED: Parents of children with severe asthma in the PICU encounter intricate and multifaceted decision-making dilemmas while engaging in the formulation of discharge care plans. These complexities significantly dampen their decision-making enthusiasm and introduce potential risks to the children\'s prognosis and recovery. In the future, it is imperative to leverage the guidance provided by healthcare professionals (HCPs) in the decision-making process, develop tailored decision support tools specifically designed for the formulation of discharge care plans for children with severe asthma in the PICU.
摘要：
■本研究旨在探讨儿童重症监护病房（PICU）患有严重哮喘的父母在参与制定儿童出院护理计划时所面临的复杂决策困境和挑战。
■采用现象学方法论，我们对2022年10月至2023年2月期间参加深度半结构化访谈的17名家长进行了有目的的抽样.这些采访的笔录被转录成文本数据，然后进行Colaizzi的七步分析，以进行细致的编码和全面的主题说明。
■在PICU制定出院护理计划的过程中，对重症哮喘患儿父母所面临的复杂决策困境所涉及的因素进行了综合分析，揭示了五个主题和八个子主题：1）哮喘相关信息的复杂性；2）全面决策支持的提供不足；3）遇到负面情绪和信心动摇；4）影响父母的各种不利因素。
■在PICU中患有严重哮喘的儿童的父母在参与制定出院护理计划时，会遇到复杂和多方面的决策困境。这些复杂性极大地削弱了他们的决策热情，并给儿童的预后和康复带来潜在风险。在未来,在决策过程中，必须利用医疗保健专业人员(HCP)提供的指导，开发量身定制的决策支持工具,专门为PICU重症哮喘患儿制定出院护理计划.
■采用现象学方法论，我们对2022年10月至2023年2月期间参加深度半结构化访谈的17名家长进行了有目的的抽样.这些采访的笔录被转录成文本数据，然后进行Colaizzi的七步分析，以进行细致的编码和全面的主题说明。
■在PICU制定出院护理计划的过程中，对重症哮喘患儿父母所面临的复杂决策困境所涉及的因素进行了综合分析，揭示了五个主题和八个子主题：1）哮喘相关信息的复杂性；2）全面决策支持的提供不足；3）遇到负面情绪和信心动摇；4）影响父母的各种不利因素。
■在PICU中患有严重哮喘的儿童的父母在参与制定出院护理计划时，会遇到复杂和多方面的决策困境。这些复杂性极大地削弱了他们的决策热情，并给儿童的预后和康复带来潜在风险。在未来,在决策过程中，必须利用医疗保健专业人员(HCP)提供的指导，开发量身定制的决策支持工具,专门为PICU重症哮喘患儿制定出院护理计划.
