PDF(Pubmed)
Abstract：
UNASSIGNED: Following prenatal diagnosis of critical congenital heart disease (CCHD), parents encounter emotional distress while facing caregiving challenges. Supportive psycho-educational interventions using mobile health (mHealth) can make care more accessible.
UNASSIGNED: We tested a novel nurse-guided mHealth care program, Preparing Heart and Mind™ (PHM™), with the objectives of examining feasibility and estimating the effect of the intervention on parents\' emotional distress.
UNASSIGNED: This pilot study design randomized participants using a 2:1 intervention to control ratio. Analysis involved description of retention, and intervention attendance and engagement, and adjusted linear mixed models to estimate group differences in depressive (CES-D), anxiety (STAI-S), and traumatic stress (IES-r) symptoms.
UNASSIGNED: The sample included 55 parents (n=38 PHM™ group, n=17 control). Complete retention of 37 (67%) parents included 29 (76%) in the PHM™ group and 8 (47%) control. Most attrition was due to infant death (7 parents), transplant referral (2 parents), or postnatal diagnostic ineligibility (4 parents). For the PHM™ group, ≥96% of parents attended pre- and postnatal sessions and most (65%) messaged with the nurse. mHealth engagement was highest prenatally, with handling uncertainty the most viewed topic (average 94% pages viewed). In linear mixed models analyses, the PHM™ group had on average 4.84 points lower depression (95% CI: -10.68-1.04), 6.56 points lower anxiety (-14.04-0.92), and 6.28 points lower trauma (-14.44-1.88) scores by study end.
UNASSIGNED: Findings suggest that a nurse-guided mHealth approach is feasible and may contribute to a clinically important reduction in parents\' emotional distress.
UNASSIGNED: We tested a novel nurse-guided mHealth care program, Preparing Heart and Mind™ (PHM™), with the objectives of examining feasibility and estimating the effect of the intervention on parents\' emotional distress.
UNASSIGNED: This pilot study design randomized participants using a 2:1 intervention to control ratio. Analysis involved description of retention, and intervention attendance and engagement, and adjusted linear mixed models to estimate group differences in depressive (CES-D), anxiety (STAI-S), and traumatic stress (IES-r) symptoms.
UNASSIGNED: The sample included 55 parents (n=38 PHM™ group, n=17 control). Complete retention of 37 (67%) parents included 29 (76%) in the PHM™ group and 8 (47%) control. Most attrition was due to infant death (7 parents), transplant referral (2 parents), or postnatal diagnostic ineligibility (4 parents). For the PHM™ group, ≥96% of parents attended pre- and postnatal sessions and most (65%) messaged with the nurse. mHealth engagement was highest prenatally, with handling uncertainty the most viewed topic (average 94% pages viewed). In linear mixed models analyses, the PHM™ group had on average 4.84 points lower depression (95% CI: -10.68-1.04), 6.56 points lower anxiety (-14.04-0.92), and 6.28 points lower trauma (-14.44-1.88) scores by study end.
UNASSIGNED: Findings suggest that a nurse-guided mHealth approach is feasible and may contribute to a clinically important reduction in parents\' emotional distress.
摘要：
■在对危重先天性心脏病（CCHD）进行产前诊断后，父母在面对护理挑战时遇到情绪困扰。使用移动健康（mHealth）的支持性心理教育干预措施可以使护理更容易获得。
■我们测试了一个新颖的护士指导的m保健计划，准备心脏和心灵™（PHM™），目的是检查可行性并评估干预对父母情绪困扰的影响。
■这项初步研究设计了使用2：1干预与对照比例的随机参与者。分析涉及保留描述，以及干预出勤和参与，和调整的线性混合模型来估计抑郁的群体差异(CES-D)，焦虑（STAI-S），和创伤应激（IES-R）症状。
■样本包括55个父母（n=38PHM™组，n=17对照)。37(67%)父母的完全保留包括PHM™组中的29(76%)和8(47%)对照。大多数减员是由于婴儿死亡(7名父母)，移植转诊（2名父母），或产后诊断不合格（4名父母）。对于PHM™组,≥96％的父母参加了产前和产后会议，大多数（65％）与护士联系。m健康参与度最高，处理不确定性最多的主题(平均94%的页面浏览)。在线性混合模型分析中，PHM™组的抑郁症平均低4.84点（95%CI：-10.68-1.04），6.56分降低焦虑（-14.04-0.92），到研究结束时，创伤评分降低6.28分（-14.44-1.88）。
■研究结果表明，护士指导的移动健康方法是可行的，可能有助于临床上重要的减少父母的情绪困扰。
■我们测试了一个新颖的护士指导的m保健计划，准备心脏和心灵™（PHM™），目的是检查可行性并评估干预对父母情绪困扰的影响。
■这项初步研究设计了使用2：1干预与对照比例的随机参与者。分析涉及保留描述，以及干预出勤和参与，和调整的线性混合模型来估计抑郁的群体差异(CES-D)，焦虑（STAI-S），和创伤应激（IES-R）症状。
■样本包括55个父母（n=38PHM™组，n=17对照)。37(67%)父母的完全保留包括PHM™组中的29(76%)和8(47%)对照。大多数减员是由于婴儿死亡(7名父母)，移植转诊（2名父母），或产后诊断不合格（4名父母）。对于PHM™组,≥96％的父母参加了产前和产后会议，大多数（65％）与护士联系。m健康参与度最高，处理不确定性最多的主题(平均94%的页面浏览)。在线性混合模型分析中，PHM™组的抑郁症平均低4.84点（95%CI：-10.68-1.04），6.56分降低焦虑（-14.04-0.92），到研究结束时，创伤评分降低6.28分（-14.44-1.88）。
■研究结果表明，护士指导的移动健康方法是可行的，可能有助于临床上重要的减少父母的情绪困扰。
