PDF(Pubmed)
Abstract：
There is increased recognition that people with lived-experience of mental ill-health ought to be centred in research design, implementation and translation, and quality improvement and program evaluation of services. There is also an increased focus on ways to ensure that co-design processes can be led by people with lived-experience of mental ill-health. Despite this, there remains limited explanation of the physical, social, human, and economic infrastructure needed to create and sustain such models in research and service settings. This is particularly pertinent for all health service sectors (across mental and physical health and social services) but more so across tertiary education settings where research generation occurs for implementation and translation activities with policy and services. The Co-Design Living Labs program was established in 2017 as an example of a community-based embedded approach to bring people living with trauma and mental ill-health and carers/family and kinship group members together with university-based researchers to drive end-to-end research design to translation in mental healthcare and research sectors. The program\'s current membership is near to 2000 people. This study traces the evolution of the program in the context of the living labs tradition of open innovation. It overviews the philosophy of practice for working with people with lived-experience and carer/family and kinship group members-togetherness by design. Togetherness by design centres on an ethical relation of being-for that moves beyond unethical and transactional approaches of being-aside and being-with, as articulated by sociologist Zygmunt Bauman. The retrospective outlines how an initial researcher-driven model can evolve and transform to become one where people with lived-experience of mental ill-health and carer/family kinship group members hold clear decision-making roles, share in power to enact change, and move into co-researcher roles within research teams. Eight mechanisms are presented in the context of an explanatory theoretical model of change for co-design and coproduction, which are used to frame research co-design activities and provide space for continuous learning and evolution of the Co-Design Living Labs program.
摘要：
人们越来越认识到，有精神不健康经历的人应该以研究设计为中心，实施和翻译，以及服务质量改进和方案评估。人们也越来越关注如何确保共同设计过程可以由有精神不健康经历的人领导。尽管如此,对物理的解释仍然有限，社会,人类,以及在研究和服务环境中创建和维持此类模型所需的经济基础设施。这对所有卫生服务部门（跨身心健康和社会服务）尤其重要，但在高等教育环境中更是如此，在高等教育环境中，研究产生用于实施和翻译活动以及政策和服务。Co-DesignLivingLabs计划成立于2017年，是基于社区的嵌入式方法的一个例子，该方法将患有创伤和精神疾病的人们以及护理人员/家庭和亲属关系小组成员与大学研究人员一起推动端到端研究设计在精神保健和研究领域的翻译。该计划目前的会员人数接近2000人。这项研究在开放式创新的活实验室传统的背景下追溯了该计划的演变。它概述了与有生活经验的人以及照顾者/家庭和亲属关系小组成员一起工作的实践哲学-通过设计实现团结。设计的团结集中在存在的道德关系上，这种关系超越了被抛弃和与之在一起的不道德和交易方法，正如社会学家ZygmuntBauman所说。回顾概述了最初的研究人员驱动的模型如何发展和转变为具有精神疾病和照顾者/家庭亲属小组成员的生活经验的人拥有明确的决策角色，分享权力来制定变革，并在研究团队中担任共同研究员。在共同设计和共同生产的变化的解释性理论模型的背景下，提出了八种机制，它们用于框架研究共同设计活动，并为共同设计生活实验室计划的持续学习和发展提供空间。
