Abstract：
BACKGROUND: Haemophilia is a haematological disease, although most haemorrhages occur in the locomotor system. Patients are physically disabled from an early age and have a poorer perception of quality of life. In the day-to-day lives of patients and their families, psychosocial well-being, the disease\'s physical, personal, and social impact, as well as work-related problems are the most complicated aspects of the disease that need to be addressed.
OBJECTIVE: To identify the role of occupational therapy in managing patients with haemophilia and to analyse the therapeutic potential of occupational therapy in treating these patients.
METHODS: A scoping review was conducted to identify the role of occupational therapy in managing patients with haemophilia and to analyse the therapeutic potential of occupational therapy in treating these patients. The review was registered in the international registry PROSPERO (Id: CRD42022319637). The databases consulted were SCOPUS, PubMed, PsycINFO, Web of Science and Science Direct, including all studies published until 14 August 2023.
RESULTS: No single study was found that specifically developed an occupational therapy intervention for patients with haemophilia. Measurement instruments have been identified, specific for patients with haemophilia and generic, that can be useful for the functional evaluation of these patients in the occupational therapy approach. Different studies showed the importance of multidisciplinary treatment, including occupational therapy.
CONCLUSIONS: The use of occupational therapy could be effective in improving autonomy and quality of life in haemophilia patients. Therefore, it is of paramount importance to conduct research studies within the field of occupational therapy.
OBJECTIVE: To identify the role of occupational therapy in managing patients with haemophilia and to analyse the therapeutic potential of occupational therapy in treating these patients.
METHODS: A scoping review was conducted to identify the role of occupational therapy in managing patients with haemophilia and to analyse the therapeutic potential of occupational therapy in treating these patients. The review was registered in the international registry PROSPERO (Id: CRD42022319637). The databases consulted were SCOPUS, PubMed, PsycINFO, Web of Science and Science Direct, including all studies published until 14 August 2023.
RESULTS: No single study was found that specifically developed an occupational therapy intervention for patients with haemophilia. Measurement instruments have been identified, specific for patients with haemophilia and generic, that can be useful for the functional evaluation of these patients in the occupational therapy approach. Different studies showed the importance of multidisciplinary treatment, including occupational therapy.
CONCLUSIONS: The use of occupational therapy could be effective in improving autonomy and quality of life in haemophilia patients. Therefore, it is of paramount importance to conduct research studies within the field of occupational therapy.
摘要：
背景：血友病是一种血液疾病，尽管大多数出血发生在运动系统。患者从小就身体残疾，对生活质量的感知较差。在病人及其家属的日常生活中,社会心理健康，这种疾病的身体，个人,和社会影响，以及与工作相关的问题是需要解决的疾病最复杂的方面。
目的：确定职业疗法在血友病患者治疗中的作用，并分析职业疗法在治疗这些患者中的治疗潜力。
方法：进行了范围审查，以确定职业疗法在血友病患者管理中的作用，并分析职业疗法在治疗这些患者中的治疗潜力。审查已在国际注册局PROSPERO（编号：CRD42022319637）中注册。咨询的数据库是SCOPUS，PubMed,PsycINFO,WebofScienceandScienceDirect,包括直到2023年8月14日发表的所有研究。
结果：没有一项研究发现专门针对血友病患者进行职业治疗干预。测量仪器已经确定，特定于血友病和普通患者，这对于职业治疗方法中这些患者的功能评估是有用的。不同的研究表明多学科治疗的重要性，包括职业治疗。
结论：使用职业治疗可有效改善血友病患者的自主性和生活质量。因此,在职业治疗领域进行研究至关重要。
目的：确定职业疗法在血友病患者治疗中的作用，并分析职业疗法在治疗这些患者中的治疗潜力。
方法：进行了范围审查，以确定职业疗法在血友病患者管理中的作用，并分析职业疗法在治疗这些患者中的治疗潜力。审查已在国际注册局PROSPERO（编号：CRD42022319637）中注册。咨询的数据库是SCOPUS，PubMed,PsycINFO,WebofScienceandScienceDirect,包括直到2023年8月14日发表的所有研究。
结果：没有一项研究发现专门针对血友病患者进行职业治疗干预。测量仪器已经确定，特定于血友病和普通患者，这对于职业治疗方法中这些患者的功能评估是有用的。不同的研究表明多学科治疗的重要性，包括职业治疗。
结论：使用职业治疗可有效改善血友病患者的自主性和生活质量。因此,在职业治疗领域进行研究至关重要。
