METHODS: The guideline working group, consisting of healthcare professionals, parents and survivor representatives from 10 countries, worked together to identify relevant health problems that may occur in survivors between the end of treatment and 5 years after diagnosis and to develop recommendations for short-term surveillance of health problems. The recommendations were drawn from existing LTFU guidelines and adapted where necessary based on clinical expertise.
RESULTS: The working group developed 44 recommendations for short-term surveillance of health problems, which were divided into four categories based on the level of surveillance required: awareness only (n = 11), awareness, history and/or physical examination without surveillance test (n = 15), awareness, history and/or physical examination with potential surveillance test (n = 1) and awareness, history and/or physical examination with surveillance test (n = 17).
CONCLUSIONS: The development of a guideline for short-term surveillance of health problems fills a critical gap in survivorship care for CAYA cancer survivors, providing much-needed support immediately after treatment up to 5 years after diagnosis.
CONCLUSIONS: This guideline will support healthcare professionals to provide appropriate follow-up care and improve the quality of life of CAYA cancer survivors.
方法:指南工作组,由医疗保健专业人员组成,来自10个国家的父母和幸存者代表,合作确定治疗结束至诊断后5年之间幸存者可能出现的相关健康问题,并制定短期监测健康问题的建议。这些建议来自现有的LTFU指南,并根据临床专业知识在必要时进行了调整。
结果:工作组制定了44项短期监测健康问题的建议,根据所需的监测水平将其分为四类:仅提高认识(n=11),意识,没有监测测试的病史和/或体格检查(n=15),意识,具有潜在监测测试(n=1)和意识的病史和/或体格检查,病史和/或体格检查与监测测试(n=17)。
结论:健康问题短期监测指南的制定填补了CAYA癌症幸存者生存护理的关键空白,在诊断后5年内,在治疗后立即提供急需的支持。
结论:本指南将支持医疗保健专业人员提供适当的后续护理并改善CAYA癌症幸存者的生活质量。