关键词: Brain disorder Education Epilepsy awareness days Intersectoral Global Action Plan (IGAP) Neurological disorder Public awareness Seizures

Mesh : Humans Epilepsy / therapy Health Knowledge, Attitudes, Practice

来  源:   DOI:10.1016/j.yebeh.2023.109457

Abstract:
OBJECTIVE: This research sought to find out the epilepsy awareness days around the world and understand the nature and role of the days in the fight against epilepsy in relation to the Intersectoral Global Action Plan (IGAP) on epilepsy and other neurological disorders (2022-2031).
METHODS: We conducted a review of journal articles. The databases that we searched were ProQuest Central, EBSCOhost Academic Search Complete, EBSCO Medline, PubMed Central, Wiley Online, Directory of Open Access Journals (DOAJ), African Journals Online (AJOL), and Google Scholar. We limited our search to papers of relevance to our subject published between January 2000 and January 2023. We searched \'epilepsy awareness day, week, or month\'. From the databases, 13 articles met our inclusion criteria. We augmented our results with a search on Google of articles about epilepsy awareness day, week, or month. We also searched directly on the websites of epilepsy organizations.
RESULTS: We found that epilepsy awareness days fall into these categories: global awareness days (n = 2), awareness months (n = 4), regional awareness weeks (n = 5), and regional awareness days (n = 1). Our search for national awareness days (n = 7) was not comprehensive, and this could be an area for future research. The literature shows that epilepsy awareness days could play a role in (1) reducing knowledge and treatment gaps, (2) increasing participation, (3) unlocking resources, and (4) necessitating policy change and increasing networking. The major role of these dedicated days in the IGAP is to accelerate awareness and advocacy for policy change and improved interventions.
CONCLUSIONS: Epilepsy awareness days are bringing stakeholders together already, and IGAP initiatives could tap into this achievement to accelerate awareness in a cost effective, contextual and collaborative manner. This could be achieved by adopting themes that relate more directly to the IGAP goals. Another important strategy is to motivate countries that do not have national epilepsy days or regions that do not have a regional awareness days, to consider doing one within the confines of resources.
摘要:
目的:这项研究旨在了解世界各地的癫痫意识日,并了解与癫痫和其他神经系统疾病部门间全球行动计划(IGAP)(2022-2031)相关的日在抗击癫痫中的性质和作用。
方法:我们对期刊文章进行了综述。我们搜索的数据库是ProQuestCentral,EBSCOhost学术搜索完成,EBSCOMedline,PubMedCentral,Wiley在线,开放存取期刊目录(DOAJ),非洲在线期刊(AJOL)谷歌学者。我们的搜索仅限于2000年1月至2023年1月之间发表的与我们的主题相关的论文。我们搜索了癫痫意识日,week,或月\'。从数据库中,13篇文章符合我们的纳入标准。我们通过在Google上搜索有关癫痫意识日的文章来增强我们的结果,week,或月。我们还直接在癫痫组织的网站上搜索。
结果:我们发现癫痫意识天数属于以下类别:全球意识天数(n=2),意识月(n=4),区域意识周(n=5),和区域意识天数(n=1)。我们对国家意识日(n=7)的搜索并不全面,这可能是未来研究的领域。文献表明,癫痫意识天数可以发挥作用(1)减少知识和治疗差距,(2)增加参与,(3)解锁资源,(4)需要改变政策和增加网络。这些专门的日子在IGAP中的主要作用是加快对政策变化和改进干预措施的认识和宣传。
结论:癫痫意识日已经将利益相关者聚集在一起,IGAP计划可以利用这一成就,以具有成本效益的方式加快意识,上下文和协作方式。这可以通过采用与IGAP目标更直接相关的主题来实现。另一个重要战略是激励没有全国癫痫日的国家或没有区域意识日的地区,考虑在资源范围内做一个。
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