PDF(Pubmed)
Abstract：
BACKGROUND: Epilepsy is defined as a disorder of the brain characterized by an enduring predisposition to epileptic seizures. Being the most common neurological condition in the world, information regarding epilepsy is gathered by people from different available sources.
OBJECTIVE: The objective of this study was to evaluate the reliability and quality of YouTube videos about epilepsy as a source of information for the general population and also for patients suffering from this illness and for their families.
METHODS: A cross-sectional observational study was conducted, utilizing a questionnaire prepared on Google Forms (Google LLC, Mountain View, California, United States) with predetermined criteria. Each of the six authors independently searched and evaluated 10 YouTube videos using specific keywords. The assessment included determining the global quality score and utilizing the DISCERN tool. The collected data was recorded in Microsoft Excel and subsequently analyzed.
RESULTS: A total of 60 videos were analyzed, revealing that 76.27% of them provided information on the available treatment options for epilepsy, 71.19% explained the cause and etiology of the condition, and only 3.39% of the videos mentioned support groups.
CONCLUSIONS: Our study highlights the importance of assessment of medical information on social media platforms in order to ensure availability of correct information with high quality and reliability for epilepsy patients. This will help in understanding their medical health issues and decision making.
OBJECTIVE: The objective of this study was to evaluate the reliability and quality of YouTube videos about epilepsy as a source of information for the general population and also for patients suffering from this illness and for their families.
METHODS: A cross-sectional observational study was conducted, utilizing a questionnaire prepared on Google Forms (Google LLC, Mountain View, California, United States) with predetermined criteria. Each of the six authors independently searched and evaluated 10 YouTube videos using specific keywords. The assessment included determining the global quality score and utilizing the DISCERN tool. The collected data was recorded in Microsoft Excel and subsequently analyzed.
RESULTS: A total of 60 videos were analyzed, revealing that 76.27% of them provided information on the available treatment options for epilepsy, 71.19% explained the cause and etiology of the condition, and only 3.39% of the videos mentioned support groups.
CONCLUSIONS: Our study highlights the importance of assessment of medical information on social media platforms in order to ensure availability of correct information with high quality and reliability for epilepsy patients. This will help in understanding their medical health issues and decision making.
摘要：
背景：癫痫被定义为以癫痫发作的持久易感性为特征的脑部疾病。是世界上最常见的神经系统疾病，有关癫痫的信息是由来自不同来源的人收集的。
目的：本研究的目的是评估关于癫痫的YouTube视频的可靠性和质量，作为普通人群、患有这种疾病的患者及其家人的信息来源。
方法：进行了横断面观察研究，利用在谷歌表格上准备的问卷(谷歌有限责任公司，山景,加州,美国）具有预定标准。六位作者中的每一位都使用特定的关键字独立搜索和评估了10个YouTube视频。评估包括确定全球质量得分和利用DISCERN工具。将收集的数据记录在MicrosoftExcel中并随后进行分析。
结果：共分析了60个视频，76.27%的人提供了关于癫痫可用治疗方案的信息，71.19%解释了病因和病因，只有3.39%的视频提到了支持团体。
结论：我们的研究强调了在社交媒体平台上评估医疗信息的重要性，以确保癫痫患者获得高质量和可靠性的正确信息。这将有助于了解他们的医疗健康问题和决策。
目的：本研究的目的是评估关于癫痫的YouTube视频的可靠性和质量，作为普通人群、患有这种疾病的患者及其家人的信息来源。
方法：进行了横断面观察研究，利用在谷歌表格上准备的问卷(谷歌有限责任公司，山景,加州,美国）具有预定标准。六位作者中的每一位都使用特定的关键字独立搜索和评估了10个YouTube视频。评估包括确定全球质量得分和利用DISCERN工具。将收集的数据记录在MicrosoftExcel中并随后进行分析。
结果：共分析了60个视频，76.27%的人提供了关于癫痫可用治疗方案的信息，71.19%解释了病因和病因，只有3.39%的视频提到了支持团体。
结论：我们的研究强调了在社交媒体平台上评估医疗信息的重要性，以确保癫痫患者获得高质量和可靠性的正确信息。这将有助于了解他们的医疗健康问题和决策。
