PDF(Pubmed)
Abstract：
To identify the nature and extent of the evidence on psychological interventions among individuals with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD).
Eligible studies reported on psychological interventions for individuals of all ages with EDS and/or HSD. All studies published in English were included, with no restrictions to publication year or status. MEDLINE, CINAHL, EMBASE, and PsycINFO were searched. Two reviewers independently screened studies and abstracted data.
This scoping review included 10 studies reporting on EDS, HSD, or both. Only cohort studies and case studies were identified. Four studies investigated Cognitive Behavioural Therapy (CBT), one investigated Dialectical Behavioural Therapy (DBT), two investigated psychoeducation, two investigated Intensive Interdisciplinary Pain Treatment (IIPT), and one investigated Acceptance Commitment Therapy (ACT). Interventions targeted pain management, self-destructive behaviours, and related psychological issues (e.g., depression/anxiety). Sample sizes were small (n < 50) for most studies and interventions were generally poorly described.
There is a critical need for high-quality research surrounding psychological interventions for individuals with EDS/HSD. Psychological interventions for these individuals are understudied and existing studies lack validity. Researchers should investigate psychological interventions for individuals with all types of EDS/HSD with high-quality studies to validate findings from the existing studies.
Eligible studies reported on psychological interventions for individuals of all ages with EDS and/or HSD. All studies published in English were included, with no restrictions to publication year or status. MEDLINE, CINAHL, EMBASE, and PsycINFO were searched. Two reviewers independently screened studies and abstracted data.
This scoping review included 10 studies reporting on EDS, HSD, or both. Only cohort studies and case studies were identified. Four studies investigated Cognitive Behavioural Therapy (CBT), one investigated Dialectical Behavioural Therapy (DBT), two investigated psychoeducation, two investigated Intensive Interdisciplinary Pain Treatment (IIPT), and one investigated Acceptance Commitment Therapy (ACT). Interventions targeted pain management, self-destructive behaviours, and related psychological issues (e.g., depression/anxiety). Sample sizes were small (n < 50) for most studies and interventions were generally poorly described.
There is a critical need for high-quality research surrounding psychological interventions for individuals with EDS/HSD. Psychological interventions for these individuals are understudied and existing studies lack validity. Researchers should investigate psychological interventions for individuals with all types of EDS/HSD with high-quality studies to validate findings from the existing studies.
摘要：
目的：确定Ehlers-Danlos综合征（EDS）和高迁移率频谱障碍（HSD）患者心理干预证据的性质和程度。
方法：合格的研究报告了对所有年龄EDS和/或HSD患者的心理干预。所有以英文发表的研究都包括在内，对出版年份或状态没有限制。MEDLINE,CINAHL,EMBASE,搜索了PsycINFO。两名评审员独立筛选研究并提取数据。
结果：本范围审查包括10项报告EDS的研究，HSD,或者两者兼而有之。仅确定了队列研究和案例研究。四项研究调查了认知行为疗法(CBT)，一位调查了辩证行为疗法(DBT)，两个被调查的心理教育，两项研究强化跨学科疼痛治疗(IIPT)，和一个调查接受承诺疗法（ACT）。有针对性的疼痛管理干预措施，自我毁灭的行为,和相关的心理问题(例如，抑郁/焦虑)。大多数研究的样本量很小（n<50），干预措施通常描述不佳。
结论：迫切需要围绕EDS/HSD患者的心理干预进行高质量的研究。对这些人的心理干预研究不足，现有研究缺乏有效性。研究人员应通过高质量的研究来研究对所有类型的EDS/HSD患者的心理干预措施，以验证现有研究的结果。
方法：合格的研究报告了对所有年龄EDS和/或HSD患者的心理干预。所有以英文发表的研究都包括在内，对出版年份或状态没有限制。MEDLINE,CINAHL,EMBASE,搜索了PsycINFO。两名评审员独立筛选研究并提取数据。
结果：本范围审查包括10项报告EDS的研究，HSD,或者两者兼而有之。仅确定了队列研究和案例研究。四项研究调查了认知行为疗法(CBT)，一位调查了辩证行为疗法(DBT)，两个被调查的心理教育，两项研究强化跨学科疼痛治疗(IIPT)，和一个调查接受承诺疗法（ACT）。有针对性的疼痛管理干预措施，自我毁灭的行为,和相关的心理问题(例如，抑郁/焦虑)。大多数研究的样本量很小（n<50），干预措施通常描述不佳。
结论：迫切需要围绕EDS/HSD患者的心理干预进行高质量的研究。对这些人的心理干预研究不足，现有研究缺乏有效性。研究人员应通过高质量的研究来研究对所有类型的EDS/HSD患者的心理干预措施，以验证现有研究的结果。
