关键词: clinical research diversity ethnicity minority patient participation race recruitment research strategies

Mesh : Humans Databases, Factual Ethnic and Racial Minorities Ethnicity Hispanic or Latino Minority Groups Patient Selection Musculoskeletal Diseases Biomedical Research / organization & administration

来  源:   DOI:10.3389/fpubh.2023.1211520   PDF(Pubmed)

Abstract:
Visible minorities are disproportionately affected by musculoskeletal disorders (MSD) and other diseases; yet are largely underrepresented in health research. The purpose of this scoping review was to identify barriers and strategies associated with increasing recruitment of visible minorities in MSD research.
Electronic databases (MEDLINE, EMBASE, CINAHL, and PsycInfo) were searched. Search strategies used terms related to the concepts of \'race/ethnicity\', \'participation\', \'research\' and \'musculoskeletal\'. All research designs were included. Two reviewers independently screened titles and abstracts, completed full-text reviews, and extracted data. Papers that did not focus on musculoskeletal research, include racial minorities, or focus on participation in research were excluded. Study characteristics (study location, design and methods; sample characteristics (size, age, sex and race); MSD of interest) as well as barriers and strategies to increasing participation of visible minorities in MSD research were extracted from each article and summarized in a table format.
Of the 4,282 articles identified, 28 met inclusion criteria and were included. The majority were conducted in the United States (27 articles). Of the included studies, the groups of visible minorities represented were Black (25 articles), Hispanic (14 articles), Asian (6 articles), Indigenous (3 articles), Middle Eastern (1 article), and Multiracial (1 article). The most commonly cited barriers to research participation were mistrust, logistical barriers (e.g., transportation, inaccessible study location, financial constraints), and lack of awareness or understanding of research. Strategies for increasing diversity were ensuring benefit of participants, recruiting through sites serving the community of interest, and addressing logistical barriers.
Understanding the importance of diversity in MSD research, collaborating with communities of visible minorities, and addressing logistical barriers may be effective in reducing barriers to the participation of visible minorities in health research. This review presents strategies to aid researchers in increasing inclusion in MSD-related research.
摘要:
可见的少数民族不成比例地受到肌肉骨骼疾病(MSD)和其他疾病的影响;但在健康研究中的代表性不足。这项范围界定审查的目的是确定与MSD研究中增加可见少数群体招募相关的障碍和策略。
电子数据库(MEDLINE,EMBASE,CINAHL,和PsycInfo)进行了搜索。搜索策略使用与“种族/民族”概念相关的术语,\'参与\',\'研究\'和\'肌肉骨骼\'。所有研究设计都包括在内。两名审稿人独立筛选标题和摘要,已完成的全文审查,并提取数据。没有专注于肌肉骨骼研究的论文,包括少数种族,或专注于参与研究被排除在外。研究特征(研究地点,设计和方法;样品特征(尺寸,年龄,性别和种族);感兴趣的MSD)以及增加可见少数群体参与MSD研究的障碍和策略从每篇文章中提取出来,并以表格格式进行总结。
在确定的4,282篇文章中,28人符合纳入标准并被纳入。大多数在美国进行(27条)。在纳入的研究中,所代表的可见少数民族群体是黑人(25篇文章),西班牙裔(14篇文章),亚洲(6条),土著(3条),中东(1条),和多种族(1条)。最常提到的参与研究的障碍是不信任,后勤障碍(例如,交通运输,无法访问的研究地点,财务限制),缺乏对研究的认识或理解。增加多样性的战略确保参与者的利益,通过为社区提供服务的网站进行招聘,解决后勤障碍。
了解多样性在MSD研究中的重要性,与可见的少数民族社区合作,解决后勤障碍可能会有效减少可见的少数群体参与健康研究的障碍。这篇综述提出了帮助研究人员增加MSD相关研究的策略。
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