PDF(Pubmed)
Abstract：
UNASSIGNED: Current approaches to support patients living with post-COVID condition, also known as Long COVID, are highly disparate with limited success in managing or resolving a well-documented and long-standing symptom burden. With approximately 2.1 million people living with the condition in the UK alone and millions more worldwide, there is a desperate need to devise support strategies and interventions for patients.
UNASSIGNED: A three-round Delphi consensus methodology was distributed internationally using an online survey and was completed by healthcare professionals (including clinicians, physiotherapists, and general practitioners), people with long COVID, and long COVID academic researchers (round 1 n = 273, round 2 n = 186, round 3 n = 138). Across the three rounds, respondents were located predominantly in the United Kingdom (UK), with 17.3-15.2% (round 1, n = 47; round 2 n = 32, round 2 n = 21) of respondents located elsewhere (United States of America (USA), Austria, Malta, United Arab Emirates (UAE), Finland, Norway, Malta, Netherlands, Iceland, Canada, Tunisie, Brazil, Hungary, Greece, France, Austrailia, South Africa, Serbia, and India). Respondents were given ∼5 weeks to complete the survey following enrolment, with round one taking place from 02/15/2022 to 03/28/22, round two; 05/09/2022 to 06/26/2022, and round 3; 07/14/2022 to 08/09/2022. A 5-point Likert scale of agreement was used and the opportunity to include free text responses was provided in the first round.
UNASSIGNED: Fifty-five statements reached consensus (defined as >80% agree and strongly agree), across the domains of i) long COVID as a condition, ii) current support and care available for long COVID, iii) clinical assessments for long COVID, and iv) support mechanisms and rehabilitation interventions for long COVID, further sub-categorised by consideration, inclusion, and focus. Consensus reached proposes that long COVID requires specialised, comprehensive support mechanisms and that interventions should form a personalised care plan guided by the needs of the patients. Supportive approaches should focus on individual symptoms, including but not limited to fatigue, cognitive dysfunction, and dyspnoea, utilising pacing, fatigue management, and support returning to daily activities. The mental impact of living with long COVID, tolerance to physical activity, emotional distress and well-being, and research of pre-existing conditions with similar symptoms, such as myalgic encephalomyelitis, should also be considered when supporting people with long COVID.
UNASSIGNED: We provide an outline that achieved consensus with stakeholders that could be used to inform the design and implementation of bespoke long COVID support mechanisms.
UNASSIGNED: None.
UNASSIGNED: A three-round Delphi consensus methodology was distributed internationally using an online survey and was completed by healthcare professionals (including clinicians, physiotherapists, and general practitioners), people with long COVID, and long COVID academic researchers (round 1 n = 273, round 2 n = 186, round 3 n = 138). Across the three rounds, respondents were located predominantly in the United Kingdom (UK), with 17.3-15.2% (round 1, n = 47; round 2 n = 32, round 2 n = 21) of respondents located elsewhere (United States of America (USA), Austria, Malta, United Arab Emirates (UAE), Finland, Norway, Malta, Netherlands, Iceland, Canada, Tunisie, Brazil, Hungary, Greece, France, Austrailia, South Africa, Serbia, and India). Respondents were given ∼5 weeks to complete the survey following enrolment, with round one taking place from 02/15/2022 to 03/28/22, round two; 05/09/2022 to 06/26/2022, and round 3; 07/14/2022 to 08/09/2022. A 5-point Likert scale of agreement was used and the opportunity to include free text responses was provided in the first round.
UNASSIGNED: Fifty-five statements reached consensus (defined as >80% agree and strongly agree), across the domains of i) long COVID as a condition, ii) current support and care available for long COVID, iii) clinical assessments for long COVID, and iv) support mechanisms and rehabilitation interventions for long COVID, further sub-categorised by consideration, inclusion, and focus. Consensus reached proposes that long COVID requires specialised, comprehensive support mechanisms and that interventions should form a personalised care plan guided by the needs of the patients. Supportive approaches should focus on individual symptoms, including but not limited to fatigue, cognitive dysfunction, and dyspnoea, utilising pacing, fatigue management, and support returning to daily activities. The mental impact of living with long COVID, tolerance to physical activity, emotional distress and well-being, and research of pre-existing conditions with similar symptoms, such as myalgic encephalomyelitis, should also be considered when supporting people with long COVID.
UNASSIGNED: We provide an outline that achieved consensus with stakeholders that could be used to inform the design and implementation of bespoke long COVID support mechanisms.
UNASSIGNED: None.
摘要：
■目前支持患有COVID后疾病的患者的方法，也被称为长科维德，在管理或解决有据可查的长期症状负担方面取得了有限的成功。仅在英国就有大约210万人患有这种疾病，在全球还有数百万人患有这种疾病，迫切需要为患者制定支持策略和干预措施。
■使用在线调查在国际上分发了三轮Delphi共识方法，并由医疗保健专业人员（包括临床医生，物理治疗师,和全科医生)，长COVID的人，和长期的COVID学术研究人员(第1轮n=273，第2轮n=186，第3轮n=138)。在三个回合中，受访者主要位于英国(UK)，17.3-15.2%(第1轮，n=47；第2轮n=32，第2轮n=21)的受访者位于其他地方(美利坚合众国(美国)，奥地利,马耳他,阿拉伯联合酋长国(UAE),芬兰,挪威,马耳他,荷兰,冰岛,加拿大,突尼斯,巴西,匈牙利,希腊,法国,澳大利亚，南非,塞尔维亚,和印度）。受访者在入学后有5周的时间来完成调查，第一轮从02/15/2022到03/28/22，第二轮；05/09/2022到06/26/2022，以及第三轮；07/14/2022到08/09/2022。使用了5点Likert协议量表，并在第一轮中提供了纳入自由文本答复的机会。
■55项声明达成共识（定义为>80％同意并强烈同意），跨越i)长COVID作为条件，ii)目前可用于长期COVID的支持和护理，iii)长期COVID的临床评估，和iv)长期COVID的支持机制和康复干预措施，根据考虑进一步细分，inclusion,和焦点。达成的共识提出，长期的COVID需要专业化，全面的支持机制，干预措施应形成以患者需求为指导的个性化护理计划。支持性方法应侧重于个体症状，包括但不限于疲劳，认知功能障碍，和呼吸困难,利用起搏，疲劳管理，并支持回归日常活动。与长期COVID生活在一起的精神影响，对身体活动的耐受性，情绪困扰和幸福，和研究具有类似症状的先前存在的疾病，如肌痛性脑脊髓炎，在支持患有长COVID的人时，也应该考虑。
■我们提供了与利益相关者达成共识的大纲，可用于为定制的长期COVID支持机制的设计和实施提供信息。
■无。
■使用在线调查在国际上分发了三轮Delphi共识方法，并由医疗保健专业人员（包括临床医生，物理治疗师,和全科医生)，长COVID的人，和长期的COVID学术研究人员(第1轮n=273，第2轮n=186，第3轮n=138)。在三个回合中，受访者主要位于英国(UK)，17.3-15.2%(第1轮，n=47；第2轮n=32，第2轮n=21)的受访者位于其他地方(美利坚合众国(美国)，奥地利,马耳他,阿拉伯联合酋长国(UAE),芬兰,挪威,马耳他,荷兰,冰岛,加拿大,突尼斯,巴西,匈牙利,希腊,法国,澳大利亚，南非,塞尔维亚,和印度）。受访者在入学后有5周的时间来完成调查，第一轮从02/15/2022到03/28/22，第二轮；05/09/2022到06/26/2022，以及第三轮；07/14/2022到08/09/2022。使用了5点Likert协议量表，并在第一轮中提供了纳入自由文本答复的机会。
■55项声明达成共识（定义为>80％同意并强烈同意），跨越i)长COVID作为条件，ii)目前可用于长期COVID的支持和护理，iii)长期COVID的临床评估，和iv)长期COVID的支持机制和康复干预措施，根据考虑进一步细分，inclusion,和焦点。达成的共识提出，长期的COVID需要专业化，全面的支持机制，干预措施应形成以患者需求为指导的个性化护理计划。支持性方法应侧重于个体症状，包括但不限于疲劳，认知功能障碍，和呼吸困难,利用起搏，疲劳管理，并支持回归日常活动。与长期COVID生活在一起的精神影响，对身体活动的耐受性，情绪困扰和幸福，和研究具有类似症状的先前存在的疾病，如肌痛性脑脊髓炎，在支持患有长COVID的人时，也应该考虑。
■我们提供了与利益相关者达成共识的大纲，可用于为定制的长期COVID支持机制的设计和实施提供信息。
■无。
