PDF(Pubmed)
Abstract：
When parents want to make health-related decisions for their child, they need to be able to handle health information from a potentially endless range of sources. Early childhood allergy prevention (ECAP) is a good example: recommendations have shifted from allergen avoidance to early introduction of allergenic foods. We investigated how parents of children under 3 years old access, appraise and apply health information about ECAP, and their respective needs and preferences.
We conducted 23 focus groups and 24 interviews with 114 parents of children with varied risk for allergies. The recruitment strategy and a topic guide were co-designed with the target group and professionals from public health, education, and medicine. Data were mostly collected via video calls, recorded and then transcribed verbatim. Content analysis according to Kuckartz was performed using MAXQDA and findings are presented as a descriptive overview.
Parents most frequently referred to family members, friends, and other parents as sources of ECAP information, as well as healthcare professionals (HCPs), particularly pediatricians. Parents said that they exchanged experiences and practices with their peers, while relying on HCPs for guidance on decision-making. When searching for information online, they infrequently recalled the sources used and were rarely aware of providers of \"good\" health information. While parents often reported trying to identify the authors of information to appraise its reliability, they said they did not undertake more comprehensive information quality checks. The choice and presentation of ECAP information was frequently criticized by all parent groups; in particular, parents of at-risk children or with a manifested allergy were often dissatisfied with HCP consultations, and hence did not straightforwardly apply advice. Though many trusted their HCPs, parents often reported taking preventive measures based on their own intuition.
One suggestion to react upon the many criticisms expressed by parents regarding who and how provides ECAP information is to integrate central ECAP recommendations into regular child care counseling by HCPs-provided that feasible ways for doing so are identified. This would assist disease prevention, as parents without specific concerns are often unaware of the ECAP dimension of issues such as nutrition.
We conducted 23 focus groups and 24 interviews with 114 parents of children with varied risk for allergies. The recruitment strategy and a topic guide were co-designed with the target group and professionals from public health, education, and medicine. Data were mostly collected via video calls, recorded and then transcribed verbatim. Content analysis according to Kuckartz was performed using MAXQDA and findings are presented as a descriptive overview.
Parents most frequently referred to family members, friends, and other parents as sources of ECAP information, as well as healthcare professionals (HCPs), particularly pediatricians. Parents said that they exchanged experiences and practices with their peers, while relying on HCPs for guidance on decision-making. When searching for information online, they infrequently recalled the sources used and were rarely aware of providers of \"good\" health information. While parents often reported trying to identify the authors of information to appraise its reliability, they said they did not undertake more comprehensive information quality checks. The choice and presentation of ECAP information was frequently criticized by all parent groups; in particular, parents of at-risk children or with a manifested allergy were often dissatisfied with HCP consultations, and hence did not straightforwardly apply advice. Though many trusted their HCPs, parents often reported taking preventive measures based on their own intuition.
One suggestion to react upon the many criticisms expressed by parents regarding who and how provides ECAP information is to integrate central ECAP recommendations into regular child care counseling by HCPs-provided that feasible ways for doing so are identified. This would assist disease prevention, as parents without specific concerns are often unaware of the ECAP dimension of issues such as nutrition.
摘要：
■当父母想为孩子做出与健康相关的决定时，他们需要能够处理来自潜在无限来源的健康信息。早期儿童过敏预防（ECAP）是一个很好的例子：建议已经从避免过敏原转向早期引入过敏性食物。我们调查了3岁以下儿童的父母如何进入，评估和应用有关ECAP的健康信息，以及他们各自的需求和偏好。
我们对114名过敏风险不同的儿童家长进行了23个焦点小组和24次访谈。与目标群体和公共卫生专业人员共同设计了招聘战略和主题指南，教育,和医学。数据主要是通过视频通话收集的，记录然后逐字转录。根据Kuckartz使用MAXQDA进行了内容分析，并将结果作为描述性概述。
■父母最常提及家庭成员，朋友,和其他父母作为ECAP信息的来源，以及医疗保健专业人员（HCP），尤其是儿科医生。家长们表示,他们与同龄人交流经验和做法,同时依靠HCPs指导决策。在网上搜索信息时，他们很少回忆起使用的来源，也很少知道“良好”健康信息的提供者。虽然父母经常报告试图确定信息的作者来评估其可靠性，他们说他们没有进行更全面的信息质量检查。ECAP信息的选择和呈现经常受到所有家长团体的批评；特别是，高危儿童或明显过敏的父母通常对HCP咨询不满意，因此没有直截了当地应用建议。尽管许多人信任他们的HCP，父母经常报告根据自己的直觉采取预防措施。
■针对父母对谁以及如何提供ECAP信息所表达的许多批评，一个建议是将中央ECAP建议纳入HCP的定期儿童保育咨询中，前提是确定可行的方法。这将有助于疾病预防，因为没有具体问题的父母往往不知道营养等问题的ECAP层面。
我们对114名过敏风险不同的儿童家长进行了23个焦点小组和24次访谈。与目标群体和公共卫生专业人员共同设计了招聘战略和主题指南，教育,和医学。数据主要是通过视频通话收集的，记录然后逐字转录。根据Kuckartz使用MAXQDA进行了内容分析，并将结果作为描述性概述。
■父母最常提及家庭成员，朋友,和其他父母作为ECAP信息的来源，以及医疗保健专业人员（HCP），尤其是儿科医生。家长们表示,他们与同龄人交流经验和做法,同时依靠HCPs指导决策。在网上搜索信息时，他们很少回忆起使用的来源，也很少知道“良好”健康信息的提供者。虽然父母经常报告试图确定信息的作者来评估其可靠性，他们说他们没有进行更全面的信息质量检查。ECAP信息的选择和呈现经常受到所有家长团体的批评；特别是，高危儿童或明显过敏的父母通常对HCP咨询不满意，因此没有直截了当地应用建议。尽管许多人信任他们的HCP，父母经常报告根据自己的直觉采取预防措施。
■针对父母对谁以及如何提供ECAP信息所表达的许多批评，一个建议是将中央ECAP建议纳入HCP的定期儿童保育咨询中，前提是确定可行的方法。这将有助于疾病预防，因为没有具体问题的父母往往不知道营养等问题的ECAP层面。
