PDF(Pubmed)
Abstract：
UNASSIGNED: Most patients with kidney failure commence and continue hemodialysis (HD) thrice weekly. Incremental initiation (defined as HD less than thrice weekly) is increasingly considered to be safe and less burdensome, but little is known about patients\' perspectives. We aimed to describe patients\' priorities and concerns regarding incremental HD.
UNASSIGNED: Patients currently, previously, or soon to be receiving HD in Australia participated in two 90-minute online workshops to discuss views about HD focusing on incremental start and priorities for trial outcomes. Transcripts were analyzed using thematic analysis. Outcomes were ranked on the basis of the sum of participants\' priority scores (i.e., single allocation of 3 points for most important, 2 for second, and 1 for third most important outcome).
UNASSIGNED: All 26 participants (1 caregiver and 25 patients) preferred an incremental HD approach. The top prioritized outcomes were quality of life (QOL) (56 points), residual kidney function (RKF) (27 points), and mortality (16 points). The following 4 themes underpinning outcome priorities, experience, and safety concerns were identified: (i) unpreparedness and pressure to adapt, (ii) disruption to daily living, (iii) threats to safety, and (iv) hope and future planning.
UNASSIGNED: Patients with kidney failure preferred an incremental start to HD to minimize disruption to daily living and reduce the negative impacts on their education, ability to work, and family life. QOL was the most critically important outcome, followed by RKF and survival.
UNASSIGNED: Patients currently, previously, or soon to be receiving HD in Australia participated in two 90-minute online workshops to discuss views about HD focusing on incremental start and priorities for trial outcomes. Transcripts were analyzed using thematic analysis. Outcomes were ranked on the basis of the sum of participants\' priority scores (i.e., single allocation of 3 points for most important, 2 for second, and 1 for third most important outcome).
UNASSIGNED: All 26 participants (1 caregiver and 25 patients) preferred an incremental HD approach. The top prioritized outcomes were quality of life (QOL) (56 points), residual kidney function (RKF) (27 points), and mortality (16 points). The following 4 themes underpinning outcome priorities, experience, and safety concerns were identified: (i) unpreparedness and pressure to adapt, (ii) disruption to daily living, (iii) threats to safety, and (iv) hope and future planning.
UNASSIGNED: Patients with kidney failure preferred an incremental start to HD to minimize disruption to daily living and reduce the negative impacts on their education, ability to work, and family life. QOL was the most critically important outcome, followed by RKF and survival.
摘要：
未经证实：大多数肾衰竭患者每周三次开始并继续血液透析（HD）。增量启动（定义为每周少于三次的HD）越来越被认为是安全且负担较少，但对患者的观点知之甚少。我们旨在描述患者对增量HD的优先事项和关注。
未经证实：目前患者，以前,或即将在澳大利亚接受HD治疗的患者参加了两个90分钟的在线研讨会,讨论关于HD的观点,重点是逐步开始和试验结果的优先事项.使用主题分析对成绩单进行分析。结果是根据参与者的优先级分数(即，最重要的是单次分配3分，2为第二，和1表示第三重要的结果)。
UNASSIGNED：所有26名参与者（1名护理人员和25名患者）更喜欢增量式HD方法。最优先考虑的结果是生活质量（QOL）（56分），残余肾功能（RKF）（27分），死亡率（16分）。以下4个主题是结果优先事项的基础，经验,并确定了安全问题：(I)缺乏适应的准备和压力，(ii)日常生活受到干扰，(iii)对安全的威胁，(四)希望和未来规划。
UNASSIGNED：肾衰竭患者更喜欢渐进式开始治疗HD，以最大程度地减少对日常生活的干扰并减少对其教育的负面影响。工作能力,和家庭生活。QOL是最重要的结果，其次是RKF和生存。
未经证实：目前患者，以前,或即将在澳大利亚接受HD治疗的患者参加了两个90分钟的在线研讨会,讨论关于HD的观点,重点是逐步开始和试验结果的优先事项.使用主题分析对成绩单进行分析。结果是根据参与者的优先级分数(即，最重要的是单次分配3分，2为第二，和1表示第三重要的结果)。
UNASSIGNED：所有26名参与者（1名护理人员和25名患者）更喜欢增量式HD方法。最优先考虑的结果是生活质量（QOL）（56分），残余肾功能（RKF）（27分），死亡率（16分）。以下4个主题是结果优先事项的基础，经验,并确定了安全问题：(I)缺乏适应的准备和压力，(ii)日常生活受到干扰，(iii)对安全的威胁，(四)希望和未来规划。
UNASSIGNED：肾衰竭患者更喜欢渐进式开始治疗HD，以最大程度地减少对日常生活的干扰并减少对其教育的负面影响。工作能力,和家庭生活。QOL是最重要的结果，其次是RKF和生存。
