Abstract：
Generalized pustular psoriasis (GPP) is a multisystem disease with potentially life-threatening adverse effects. As patients increasingly seek health information online, and as the landscape for GPP changes, the quality of online health information (OHI) becomes progressively more important. This paper is the first of its kind to examine the quality, comprehensiveness and readability of online health information for GPP. Similar to pre-existing studies evaluating OHI, this paper examines 5 key search terms for GPP- 3 medical and 2 laymen. For each search term, the results were evaluated based on HONcode accreditation, an enhanced DISCERN analysis and a number of readability indices. Of the 500 websites evaluated, 84 (16.8%) were HONcode-accredited. Mean DISCERN scores of all websites were 74.9% and 38.6% for website reliability and treatment sections, respectively, demonstrating key gaps in comprehensiveness and reliability of GPP-specific OHI. Additionally, only 4/100 websites (4%) analysed for readability were written at the NIH-recommended sixth-grade level. Academic websites were significantly more difficult to read than governmental websites. This further exacerbates the patient information gap, particularly for patients with low health literacy, who may already be at higher risk of not receiving timely medical care.
摘要：
广泛性脓疱型银屑病（3GPP）是一种多系统疾病，具有潜在的危及生命的不良反应。随着患者越来越多地在网上寻求健康信息，而随着3GPP的变化,在线健康信息（OHI）的质量变得越来越重要。本文首次对质量进行了检验,3GPP在线健康信息的全面性和可读性。类似于评估OHI的现有研究，本文研究了GPP-3医学和2个外行的5个关键搜索术语。对于每个搜索词，结果是根据HONcode认证进行评估的，增强的DISCERN分析和一些可读性指数。在评估的500个网站中，84（16.8%）获得HONcode认证。所有网站的平均DISCERN评分分别为74.9%和38.6%的网站可靠性和处理部分，分别,证明3GPP特定OHI的全面性和可靠性存在关键差距。此外,只有4/100网站的可读性分析(4%)是以NIH推荐的六年级水平编写的.学术网站比政府网站更难阅读。这进一步加剧了患者的信息差距，特别是对于健康素养低的患者，他们可能已经面临无法及时接受医疗护理的更高风险。
