Abstract：
National Persian school-aged twin registry was established to provide a platform for twin studies. In this report, we describe defining registry characteristics, database design, and preliminary results regarding gathered data in the first phase of the registry program.
Through focus group discussions, the required data elements to design the database and data collection process were defined. First, a list of twins in school-aged groups was retrieved from the electronic database of the Ministry of Education. Tehran schools were selected for the first phase of our registry. Standard \"Pea-in-Pods\" questionnaire and twins\' similarity questionnaires were filled out by the parents themselves in addition to demographic information. Data were analyzed using SPSS v.22.
The first national school-aged twin registry was established in 2018. Firstly, the required data sets and data collection process were defined using focus group discussions. At the country level, the initial information on 189,738 students was retrieved from the national database of the Ministry of Education. They were born between 2003 and 2017, of which 94,997 are boys (50.1%) and 94,741 are girls (49.9%). Of them, a total of 5,642 pairs of school-aged twins participated in the first phase of our program. Our sample size comprised 9772 twins, 906 triples, and 92 quadruplets. The analysis of the zygosity questionnaire showed that 14% of twin pairs were identified as monozygotic twins.
Recruiting school-aged twins through school health assistants leads to high enrollment and decreasing costs for the twin registry. The study showed a high rate of dizygotic twins that need to be verified by twin bio-sample in the next phase of studies.
Through focus group discussions, the required data elements to design the database and data collection process were defined. First, a list of twins in school-aged groups was retrieved from the electronic database of the Ministry of Education. Tehran schools were selected for the first phase of our registry. Standard \"Pea-in-Pods\" questionnaire and twins\' similarity questionnaires were filled out by the parents themselves in addition to demographic information. Data were analyzed using SPSS v.22.
The first national school-aged twin registry was established in 2018. Firstly, the required data sets and data collection process were defined using focus group discussions. At the country level, the initial information on 189,738 students was retrieved from the national database of the Ministry of Education. They were born between 2003 and 2017, of which 94,997 are boys (50.1%) and 94,741 are girls (49.9%). Of them, a total of 5,642 pairs of school-aged twins participated in the first phase of our program. Our sample size comprised 9772 twins, 906 triples, and 92 quadruplets. The analysis of the zygosity questionnaire showed that 14% of twin pairs were identified as monozygotic twins.
Recruiting school-aged twins through school health assistants leads to high enrollment and decreasing costs for the twin registry. The study showed a high rate of dizygotic twins that need to be verified by twin bio-sample in the next phase of studies.
摘要：
背景：建立了国家波斯学龄双胞胎注册表，为双胞胎研究提供了平台。在这份报告中,我们描述了定义注册表特征，数据库设计，以及有关注册程序第一阶段收集的数据的初步结果。
方法：通过焦点小组讨论，定义了设计数据库和数据收集过程所需的数据元素。首先,从教育部的电子数据库中检索了学龄儿童中的双胞胎名单。德黑兰学校被选为我们注册的第一阶段。除了人口统计信息外，父母还填写了标准的“豆豆”问卷和双胞胎相似问卷。数据采用SPSSv.22进行分析。
结果：第一个全国学龄儿童双胞胎登记处于2018年建立。首先,使用焦点小组讨论定义了所需的数据集和数据收集过程.在国家一级，从教育部的国家数据库中检索了189,738名学生的初始信息。他们出生于2003年至2017年之间，其中男孩94,997（50.1％）和女孩94,741（49.9％）。其中,共有5,642对学龄儿童参加了我们计划的第一阶段。我们的样本量包括9772对双胞胎，906三倍，和92个四胞胎。对接合性问卷的分析表明，有14％的双胞胎被鉴定为单卵双胞胎。
结论：通过学校卫生助理招募学龄双胞胎会导致高入学率和降低双胞胎注册成本。该研究表明，二卵双胞胎的比例很高，需要在下一阶段的研究中通过双胞胎生物样本进行验证。
方法：通过焦点小组讨论，定义了设计数据库和数据收集过程所需的数据元素。首先,从教育部的电子数据库中检索了学龄儿童中的双胞胎名单。德黑兰学校被选为我们注册的第一阶段。除了人口统计信息外，父母还填写了标准的“豆豆”问卷和双胞胎相似问卷。数据采用SPSSv.22进行分析。
结果：第一个全国学龄儿童双胞胎登记处于2018年建立。首先,使用焦点小组讨论定义了所需的数据集和数据收集过程.在国家一级，从教育部的国家数据库中检索了189,738名学生的初始信息。他们出生于2003年至2017年之间，其中男孩94,997（50.1％）和女孩94,741（49.9％）。其中,共有5,642对学龄儿童参加了我们计划的第一阶段。我们的样本量包括9772对双胞胎，906三倍，和92个四胞胎。对接合性问卷的分析表明，有14％的双胞胎被鉴定为单卵双胞胎。
结论：通过学校卫生助理招募学龄双胞胎会导致高入学率和降低双胞胎注册成本。该研究表明，二卵双胞胎的比例很高，需要在下一阶段的研究中通过双胞胎生物样本进行验证。
