PDF(Pubmed)
Abstract：
UNASSIGNED: Improved survival rates for people with cystic fibrosis have led to increased rates of co-morbidity, of which diabetes is the most common. Cystic fibrosis related diabetes affects 19% of adolescents and up to 50% of adults, although little is known about their experiences of this co-morbidity.
UNASSIGNED: To investigate the experiences of living with and managing cystic fibrosis related diabetes among adolescents and adults.
UNASSIGNED: Systematic review and thematic analysis of qualitative evidence.
UNASSIGNED: Six studies, rated good quality, were included in the review and four main themes emerged from the data: knowledge and understanding; emotional and social impact; balancing both conditions; acceptance and adjustment. Although the main themes reflect adolescent and adult experiences, there were subtle variations in their sub-themes. Participants\' overriding story was of journeying towards acceptance and integration of cystic fibrosis related diabetes into their lives. This included their unpreparedness for the likely onset of cystic fibrosis related diabetes and their struggles to balance the competing demands of living with and managing cystic fibrosis and diabetes.
UNASSIGNED: The diagnosis of cystic fibrosis related diabetes and its incorporation into daily life is challenging for many people with cystic fibrosis. Review findings indicate opportunities for cystic fibrosis related diabetes interventions pre-diagnosis, at diagnosis, and during ongoing management, which need integrating into routine cystic fibrosis care.
UNASSIGNED: To investigate the experiences of living with and managing cystic fibrosis related diabetes among adolescents and adults.
UNASSIGNED: Systematic review and thematic analysis of qualitative evidence.
UNASSIGNED: Six studies, rated good quality, were included in the review and four main themes emerged from the data: knowledge and understanding; emotional and social impact; balancing both conditions; acceptance and adjustment. Although the main themes reflect adolescent and adult experiences, there were subtle variations in their sub-themes. Participants\' overriding story was of journeying towards acceptance and integration of cystic fibrosis related diabetes into their lives. This included their unpreparedness for the likely onset of cystic fibrosis related diabetes and their struggles to balance the competing demands of living with and managing cystic fibrosis and diabetes.
UNASSIGNED: The diagnosis of cystic fibrosis related diabetes and its incorporation into daily life is challenging for many people with cystic fibrosis. Review findings indicate opportunities for cystic fibrosis related diabetes interventions pre-diagnosis, at diagnosis, and during ongoing management, which need integrating into routine cystic fibrosis care.
摘要：
未经证实：囊性纤维化患者生存率的提高导致合并症发生率的增加，其中糖尿病是最常见的。囊性纤维化相关糖尿病影响19％的青少年和高达50％的成年人，尽管他们对这种共病的经历知之甚少。
UNASSIGNED：调查青少年和成年人与囊性纤维化相关糖尿病的生活和管理经验。
UASSIGNED：定性证据的系统回顾和主题分析。
未经评估：六项研究，评为质量好，包括在审查中，数据中出现了四个主要主题：知识和理解；情感和社会影响；平衡两个条件；接受和调整。尽管主要主题反映了青少年和成人的经历，他们的子主题有微妙的变化。参与者最重要的故事是接受囊性纤维化相关糖尿病并将其整合到他们的生活中。这包括他们对可能发生的囊性纤维化相关糖尿病的准备，以及他们努力平衡与囊性纤维化和糖尿病一起生活和管理的竞争需求。
UNASSIGNED：囊性纤维化相关糖尿病的诊断及其与日常生活的结合对于许多囊性纤维化患者来说具有挑战性。综述结果表明，囊性纤维化相关糖尿病干预措施的预诊断机会，在诊断时，在持续管理期间，这需要整合到常规的囊性纤维化治疗中。
UNASSIGNED：调查青少年和成年人与囊性纤维化相关糖尿病的生活和管理经验。
UASSIGNED：定性证据的系统回顾和主题分析。
未经评估：六项研究，评为质量好，包括在审查中，数据中出现了四个主要主题：知识和理解；情感和社会影响；平衡两个条件；接受和调整。尽管主要主题反映了青少年和成人的经历，他们的子主题有微妙的变化。参与者最重要的故事是接受囊性纤维化相关糖尿病并将其整合到他们的生活中。这包括他们对可能发生的囊性纤维化相关糖尿病的准备，以及他们努力平衡与囊性纤维化和糖尿病一起生活和管理的竞争需求。
UNASSIGNED：囊性纤维化相关糖尿病的诊断及其与日常生活的结合对于许多囊性纤维化患者来说具有挑战性。综述结果表明，囊性纤维化相关糖尿病干预措施的预诊断机会，在诊断时，在持续管理期间，这需要整合到常规的囊性纤维化治疗中。
