PDF(Pubmed)
Abstract：
Background: Interest in the application of music in the health, social care and community contexts is growing worldwide. There is an emerging body of literature about the positive effects of music on the well-being and social relationships of children and adult populations. Music has also been found to promote social interaction, communication skills, and social-emotional behaviours of children with medically complex care needs. Despite significant advancements in the area, to the authors\' knowledge, this is the first scoping review to investigate the evidence for using music therapy and music-based interventions for children living with rare diseases in the healthcare setting. Therefore, the purpose of this study is to conduct a scoping review of the literature to map out the existing studies about the use of music therapy and music-based interventions with children who have rare diseases in the healthcare setting. This review will also identify gaps in current knowledge and use of these interventions. Method: This study follows the Joanna Briggs Institute\'s methodology for scoping reviews, utilising Arksey and O\'Malley\'s six-stage scoping review framework: 1) identifying the research question; 2) identifying relevant studies; 3) study selection; 4) charting the data; 5) collating, summarising and reporting results; and 6) consulting with relevant stakeholders step. A comprehensive search will be conducted in CINAHL Complete; MEDLINE Complete; Psychology and Behavioral Sciences Collection; and PubMed Central databases. A search strategy with selected inclusion and exclusion criteria will be used to reveal a wide range of evidence. This study will include quantitative, qualitative and mixed research methods studies published in English from 2010 to 2020.
摘要：
背景：对音乐在健康中的应用感兴趣，社会关怀和社区环境正在全球范围内增长。关于音乐对儿童和成人的福祉和社会关系的积极影响的文献正在兴起。音乐也被发现可以促进社交互动，沟通技巧,以及具有复杂医疗护理需求的儿童的社会情感行为。尽管该领域取得了重大进展，根据作者的知识，这是对在医疗保健环境中对患有罕见疾病的儿童使用音乐疗法和基于音乐的干预措施的证据进行的首次范围界定审查.因此,这项研究的目的是对文献进行范围审查，以绘制有关在医疗保健环境中对患有罕见疾病的儿童使用音乐疗法和基于音乐的干预措施的现有研究。这项审查还将确定这些干预措施的当前知识和使用方面的差距。方法：本研究遵循乔安娜·布里格斯研究所的范围审查方法，利用Arksey和O'Malley的六阶段范围审查框架：1）确定研究问题；2）确定相关研究；3）研究选择；4）绘制数据图表；5）整理，总结和报告结果；6)与相关利益相关者协商。将在CINAHLComplete中进行全面搜索；MEDLINEComplete；心理学和行为科学收藏；和PubMed中央数据库。具有选定的纳入和排除标准的搜索策略将用于揭示广泛的证据。这项研究将包括定量，2010年至2020年以英文发表的定性和混合研究方法研究。
