关键词: Co-design Community Fa’afaletui Pacific Participatory Pasifika Rheumatic fever

Mesh : Australia Child Ethnicity Humans Incidence Native Hawaiian or Other Pacific Islander New Zealand / epidemiology Rheumatic Fever / epidemiology prevention & control

来  源:   DOI:10.1186/s12939-022-01701-9

Abstract:
BACKGROUND: Rheumatic fever is an autoimmune condition that occurs in response to an untreated Group A Streptococcus throat or skin infection. Recurrent episodes of rheumatic fever can cause permanent damage to heart valves, heart failure and even death. Māori and Pacific people in Aotearoa New Zealand experience some of the highest rates globally, with Pacific children 80 times more likely to be hospitalised for rheumatic fever and Māori children 36 times more likely than non-Māori, non-Pacific children. Community members from the Pacific People\'s Health Advisory Group, research officers from the Pacific Practice-Based Research Network and University of Auckland researchers identified key health priorities within the South Auckland community that needed to be addressed, one of which was rheumatic fever. The study outlined in this protocol aims to co-design, implement, and evaluate a novel intervention to reduce rheumatic fever rates for Pacific communities in South Auckland.
METHODS: This participatory mixed-methods study utilises the Fa\'afaletui method and follows a three-phase approach. Phase 1 comprises a quantitative analysis of the rheumatic fever burden within Auckland and across New Zealand over the last five years, including sub-analyses by ethnicity. Phase 2 will include co-design workshops with Pacific community members, families affected by rheumatic fever, health professionals, and other stakeholders in order to develop a novel intervention to reduce rheumatic fever in South Auckland. Phase 3 comprises the implementation and evaluation of the intervention.
CONCLUSIONS: This study aims to reduce the inequitable rheumatic fever burden faced by Pacific communities in South Auckland via a community-based participatory research approach. The final intervention may guide approaches in other settings or regions that also experience high rates of rheumatic fever. Additionally, Māori have the second-highest incidence rates of rheumatic fever of all ethnic groups, thus community-led approaches \'by Māori for Māori\' are also necessary.
BACKGROUND: The Australian New Zealand Clinical Trial Registry has approved the proposed study: ACTRN12622000565741 and ACTRN12622000572763 .
摘要:
背景:风湿热是一种自身免疫性疾病,是对未经治疗的A组咽喉链球菌或皮肤感染的反应。反复发作的风湿热会对心脏瓣膜造成永久性损害,心力衰竭甚至死亡。新西兰奥特罗阿的毛利人和太平洋人经历了一些全球最高的比率,太平洋儿童因风湿热住院的可能性是太平洋儿童的80倍,而毛利儿童的可能性是非毛利儿童的36倍,非太平洋儿童太平洋人民健康咨询小组的社区成员,太平洋基于实践的研究网络和奥克兰大学的研究人员确定了南奥克兰社区内需要解决的关键卫生优先事项,其中之一是风湿热。本协议中概述的研究旨在共同设计,工具,并评估降低南奥克兰太平洋社区风湿热发病率的新干预措施。
方法:这项参与式混合方法研究利用了Fa'afaletui方法,并遵循三阶段方法。第一阶段包括对过去五年奥克兰和整个新西兰的风湿热负担的定量分析。包括按种族划分的子分析。第二阶段将包括与太平洋社区成员共同设计研讨会,受风湿热影响的家庭,卫生专业人员,和其他利益相关者,以开发一种新的干预措施,以减少南奥克兰的风湿热。第三阶段包括干预措施的实施和评估。
结论:本研究旨在通过以社区为基础的参与性研究方法,减少南奥克兰太平洋社区面临的不公平的风湿热负担。最终的干预可能会指导其他地区或地区的方法,这些地区也会出现较高的风湿热发病率。此外,毛利人的风湿热发病率在所有种族中排名第二,因此,“毛利人对毛利人的社区主导方法”也是必要的。
背景:澳大利亚新西兰临床试验注册中心已批准拟议的研究:ACTRN12622000565741和ACTRN12622000572763。
公众号