Abstract:
Research methods are not just for data collection, but can also be engaged in to promote more immediate benefits for participants and to create social change. This paper reports on how journey mapping was used with staff and family members of people with dementia in a residential aged care facility in regional NSW, Australia. The study was conducted in the context of a care transition, where residents, including people with dementia moved from an existing site to another new facility. Care transitions are frequent yet difficult for people with dementia to negotiate, so it was important to predict their nature and understand what might make the move easier. We used an innovative visual method known as \'journey mapping\' to engage 45 staff and 18 family members to inform supports for 30 people with dementia, who had been identified as needing additional support during the planned transition. The journey mapping process was useful for fostering the caring imagination and encouraging active and creative planning around change for the people with dementia. It also highlighted the entrenched inequalities in the aged care sector, where poorly paid staff wanted to enact broad ranging supports but felt unsupported to do so. In other words, to improving and re-imagining transitional care for people with dementia requires structural and systemic change rather than just localised re-imaginings. [245].
摘要:
研究方法不仅仅是为了收集数据,但也可以参与促进参与者更直接的利益和创造社会变革。本文报告了如何在新南威尔士州地区的老年护理机构中与痴呆症患者的工作人员和家庭成员一起使用旅程地图,澳大利亚。这项研究是在护理过渡的背景下进行的,那里的居民,包括痴呆症患者从现有地点转移到另一个新设施。护理过渡频繁,但对于痴呆症患者来说很难进行谈判,因此,重要的是要预测它们的性质,并了解什么可能使移动更容易。我们使用了一种创新的视觉方法,称为“旅程地图”,让45名员工和18名家庭成员参与,为30名痴呆症患者提供支持。在计划的过渡期间被确定为需要额外支持的人。旅程映射过程有助于培养关怀的想象力,并鼓励围绕痴呆症患者的变化进行积极和创造性的计划。它还强调了老年护理部门根深蒂固的不平等,在那里,低薪员工希望获得广泛的支持,但觉得这样做没有支持。换句话说,改善和重新想象痴呆症患者的过渡护理需要结构和系统的改变,而不仅仅是局部的重新想象。[245].