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Abstract：
UNASSIGNED: This article describes a strategic governance review of Improve Care Now (ICN), a learning health network focused on improving clinical outcomes for adolescents with Crohn\'s disease and ulcerative colitis (IBD). ICN is organized around an \"enhanced\" patient registry and collaborative community of patients, parents, clinicians, and researchers.
UNASSIGNED: The engagement included a review of ICN\'s governing documents, interviews and facilitated sessions with ICN stakeholders, and desk review to identify governance best practices that applied to ICN.
UNASSIGNED: The review made recommendations to establish a plan to transition ICN\'s governance to its community, build pipelines for future network leaders, escalate uncommon data-sharing decisions, and design safe online spaces for community members.
UNASSIGNED: Governance can provide the scaffolding to help networks grow: organizing structures that support consistent, well documented, and inclusive decision-making.
UNASSIGNED: The engagement included a review of ICN\'s governing documents, interviews and facilitated sessions with ICN stakeholders, and desk review to identify governance best practices that applied to ICN.
UNASSIGNED: The review made recommendations to establish a plan to transition ICN\'s governance to its community, build pipelines for future network leaders, escalate uncommon data-sharing decisions, and design safe online spaces for community members.
UNASSIGNED: Governance can provide the scaffolding to help networks grow: organizing structures that support consistent, well documented, and inclusive decision-making.
摘要：
UNASSIGNED：本文介绍了改善立即护理（ICN）的战略治理审查，一个学习健康网络专注于改善青少年克罗恩病和溃疡性结肠炎(IBD)的临床结局.ICN围绕“增强的”患者注册表和患者协作社区组织，父母,临床医生,和研究人员。
UNASSIGNED：该项目包括对ICN管理文件的审查，与ICN利益相关者的访谈和促进会议，和案头审查，以确定适用于ICN的治理最佳实践。
UNASSIGNED：审查提出了建议，以建立将ICN的治理过渡到其社区的计划，为未来的网络领导者建立管道，升级不寻常的数据共享决策，并为社区成员设计安全的在线空间。
UNASSIGNED：治理可以提供脚手架来帮助网络发展：组织结构，支持一致，有据可查,包容性决策。
UNASSIGNED：该项目包括对ICN管理文件的审查，与ICN利益相关者的访谈和促进会议，和案头审查，以确定适用于ICN的治理最佳实践。
UNASSIGNED：审查提出了建议，以建立将ICN的治理过渡到其社区的计划，为未来的网络领导者建立管道，升级不寻常的数据共享决策，并为社区成员设计安全的在线空间。
UNASSIGNED：治理可以提供脚手架来帮助网络发展：组织结构，支持一致，有据可查,包容性决策。
