PDF(Pubmed)
Abstract：
Caregiver strain is the adverse impact that parents of children with emotional and behavioral issues including autism often experience (e.g. negative consequences of caregiving such as financial strain and social isolation; negative feelings that are internal to the caregiver such as worry and guilt; and negative feelings directed toward the child such as anger or resentment). This study showed that on average caregiver strain did not significantly change in North American parents of children with autism during a 2-year period. Improved caregiver strain was linked to improved child functioning and behavior. Routine assessment of caregiver strain and referral to evidence-based programming and supports may help alleviate some of the burden that families of children with autism commonly experience.
摘要：
照顾者的压力是指患有自闭症等情绪和行为问题的孩子的父母经常经历的不利影响（例如，照顾的负面影响，如财务压力和社会孤立；照顾者内部的负面情绪，如担忧和内疚；以及针对孩子的负面情绪，如愤怒或怨恨）。这项研究表明，在2年的时间内，北美自闭症儿童父母的平均照顾者压力没有显着变化。改善照顾者的压力与改善儿童的功能和行为有关。对照顾者的压力进行常规评估，并转介基于证据的计划和支持可能有助于减轻自闭症儿童家庭通常经历的一些负担。
