背景:以患者为导向的研究现在被广泛认为是改善卫生系统和患者预后的关键。这种向有意义的患者参与健康研究的转变激发了加拿大各地对面向患者的研究培训的兴趣。然而,参与的一些障碍,包括距离和调度约束,可能会阻碍提供面向患者的亲自研究培训。虚拟课程交付选项可能有助于克服这些障碍,以及提供独特的教学优势。
目的:为了帮助增加以患者为导向的研究培训的吸收,研究小组将加拿大卫生研究院(CIHR)面向患者的研究基础策略以虚拟形式进行了调整。该课程包括三个模块,分别专注于以患者为导向的研究,健康研究方法,和团队合作技能。对这种虚拟交付的当前评估检查了一组不同的参与者如何接收在线课程。
方法:来自各种专业背景的课程参与者,包括研究人员,病人,临床医生,和政策决策者,从加拿大各地招募参加改编课程。参与者和促进者的反馈是通过在线调查征求的,这些调查是在每个模块交付后不久分发的。
结果:在当前项目的范围内,在线课程在加拿大各地交付了七次。共有189名学习者和12名主持人参加了该课程。我们总共收到了89份完整的反馈调查。其中包括总共78个来自学习者的回答,模块1上有22个,模块2上有32个,模块3上有24个,此外还有主持人的11个回复。总的来说,参与者和主持人对课程非常满意,表明从传统交付到在线交付的成功适应。调查受访者对课程的共同学习元素特别满意,让他们接触到新鲜的观点和真实的耐心声音,以及充分的讨论机会。一些与会者提出了小课程修订的建议。课程的未来迭代将反映参与者和主持人的反馈,以通过对课程格式的微小更改来增强可访问性(例如,较短的实时会话),内容(例如,更具体的例子),和工作量(例如,降低了工作前的要求)。
结论:可持续和有效的医疗保健取决于健康研究,包括在不同人群中的积极伙伴关系。这些协作关系是由强大的以病人为导向的研究能力培养出来的,这反过来又取决于广泛获得的培训机会。这个在线课程克服了面对面培训的常见障碍,并提供了可访问的,以患者为导向的研究持续进展所需的包容性培训环境。
在过去,患者仅作为研究对象参与健康研究,并被排除在研究团队成员之外.今天,让病人和其他非研究人员参与进来是正常的,如临床医生和政策制定者,如满,健康研究项目的积极合作伙伴。这种方法被称为面向患者的研究,被认为是良好的医疗保健所必需的。2016年,加拿大卫生研究院(CIHR)开发了以患者为导向的研究课程,帮助人们发展与研究人员一起在团队中合作所需的技能,病人,看护者,护理提供者,政策制定者,和其他人。然而,诸如旅行距离和日程安排冲突之类的后勤挑战可能会对亲自参与造成障碍。我们的研究团队将CIHR的面向患者的研究课程调整为在线交付,这可以帮助克服这些挑战,并提供额外的教育福利。我们向来自加拿大各地的不同参与者提供了七次在线课程,包括研究人员,病人,临床医生,和政策制定者。共有189名参与者完成了三个课程模块中的至少一个。在这篇文章中,我们检查了89个已完成的反馈调查的结果(78个来自学习者,11个来自主持人)。总的来说,反馈非常积极,参与者赞赏有机会在包容性环境中从真实的患者体验中学习。我们还收到了改进建议,比如减少前期工作,使用更具体的例子,这将被纳入课程的未来版本。此评估表明,该课程已成功适应在线交付,并为培养面向患者的研究技能提供了宝贵的机会。
BACKGROUND: Patient-oriented research is now widely regarded as key to improving health systems and patient outcomes. This shift toward meaningful patient involvement in health research has sparked a growing interest in patient-oriented research training across Canada. Yet some barriers to participation, including distance and scheduling constraints, may impede the provision of in-person patient-oriented research training. Virtual course delivery options may help surmount those barriers, as well as offer unique pedagogical advantages.
OBJECTIVE: To help increase patient-oriented research training uptake, the research team adapted the Canadian Institutes of Health Research\'s (CIHR) Strategy for Patient-Oriented Research\'s Foundations for Patient-Oriented Research course to a virtual format. The course consists of three modules, which focus respectively on patient-oriented research, health research methods, and teamwork skills. The current evaluation of this virtual delivery examines how a diverse set of participants received the online course.
METHODS: Course participants from a variety of professional backgrounds, including researchers, patients, clinicians, and policy decision-makers, were recruited from across Canada to participate in the adapted course. Participant and facilitator feedback was solicited via online surveys that were distributed shortly after the delivery of each module.
RESULTS: Over the span of the current project, the online course was delivered seven times across Canada. A total of 189 learners and 12 facilitators participated in the course. We received 89 completed feedback surveys in total. These included a total of 78 responses from learners, with 22 on Module 1, 32 on Module 2, and 24 on Module 3, in addition to 11 responses from facilitators. Overall, participants and facilitators were very satisfied with the course, indicating a successful adaptation from traditional to online delivery. Survey respondents were especially pleased with the course\'s co-learning elements, which exposed them to fresh perspectives and real patient voices, as well as ample opportunity for discussion. Some participants offered recommendations for minor course revisions. Future iterations of the course will reflect participant and facilitator feedback to enhance accessibility via minor changes to course format (e.g., shorter live sessions), content (e.g., more concrete examples), and workload (e.g., reduced pre-work requirements).
CONCLUSIONS: Sustainable and effective health care depends on health research that includes active partnerships across diverse populations. These collaborative relationships are fostered by strong capacity in patient-oriented research, which in turn hinges on widely accessible training opportunities. This online course overcomes common barriers to face-to-face training and offers the accessible, inclusive training environment required for sustained progress in patient-oriented research.
In the past, patients were only involved in health research as study subjects and were excluded from membership on the research team. Today, it is the norm to involve patients and other non-researchers, such as clinicians and policy makers, as full, active partners in health research projects. This approach is called patient-oriented research, and is regarded as essential for good health care. In 2016, the Canadian Institutes of Health Research (CIHR) developed a course in patient-oriented research that helps people develop the skills they need to work together on a team with researchers, patients, caregivers, care providers, policy makers, and others. However, logistical challenges such as travel distance and scheduling conflicts may create barriers to in-person participation. Our research team adapted CIHR’s course in patient-oriented research for online delivery, which can help overcome these challenges and provide additional educational benefits. We delivered the online course seven times to diverse groups of participants from across Canada, including researchers, patients, clinicians, and policy makers. A total of 189 participants completed at least one of the three course modules. In this article, we examine the results of 89 completed feedback surveys (78 from learners and 11 from facilitators). Overall, the feedback was very positive, with participants appreciating the opportunity to learn from real patient experiences in an inclusive environment. We also received suggestions for improvement, such as reducing pre-work and using more concrete examples, which will be incorporated into future versions of the course. This evaluation shows that this course was successfully adapted for online delivery and offers a valuable opportunity for building skills in patient-oriented research.