misinformation

错误信息
  • 文章类型: Journal Article
    学术不端行为的兴起对学术研究的完整性和可信度提出了重大挑战。早期调查人员(ESI),特别是那些代表边缘化群体的人,在建立自己的职业生涯时,在导航“出版或灭亡”范式时面临独特的压力。本评论阐明了培养有利于ESI负责任的研究(RCR)的研究环境的策略。通过建立共同的价值观,精心规划研究,合作进行研究,透明地报告调查结果,ESI可以在研究中培养预防和问责文化。最终,超越传统方法来支持RCR需要对学术文化进行根本性的重新构想,重新概念化生产力,使质量优先于数量,并涵盖通常由具有边缘化身份的调查人员承担的“隐形”工作。应对科学不端行为挑战需要全系统的方法,包括个人领导力,政策变化,和机构问责制。通过实施具体战略和系统改革,学术界可以重申其对负责任的研究行为的承诺,并维护学术努力的完整性。
    The rise of academic misconduct poses significant challenges to the integrity and credibility of scholarly research. Early-stage investigators (ESIs), particularly those representing marginalized groups, face unique pressures in navigating the \"publish or perish\" paradigm while establishing their careers. This commentary articulates strategies for cultivating research environments conducive to the responsible conduct of research (RCR) for ESIs. By establishing shared values, planning research meticulously, conducting research collaboratively, and reporting findings transparently, ESIs can foster a culture of prevention and accountability in research. Ultimately, navigating beyond traditional methodologies to support RCR necessitates a fundamental reimagining of academic culture, reconceptualizing productivity to prioritize quality over quantity, and to encompass \"invisible\" work often shouldered by investigators with marginalized identities. Addressing scientific misconduct challenges requires a whole-system approach, encompassing individual leadership, policy changes, and institutional accountability. By implementing concrete strategies and systemic reforms, academia can reaffirm its commitment to responsible research conduct and safeguard the integrity of scholarly endeavors.
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  • 文章类型: Journal Article
    在描述临床医生上肢状况的三个信息来源中,条件和管理建议部分的一般描述中有一半的句子存在加强无用的思维和痛苦感的可能性。
    The potential for reinforcement of unhelpful thinking and feelings of distress was present in half the sentences from the general description of the condition and management recommendation sections in three sources of information describing upper extremity conditions for clinicians.
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  • 文章类型: Journal Article
    相对于现有健康信息的快速增长,关于错误信息对社区健康的不同影响的报道很少。在COVID-19大流行期间的观察表明,有些社区做出的决定对健康结果产生了超出预期的负面影响;我们认为,健康错误信息是导致健康结果不佳的原因。健康错误信息的暴露因社区而异,初步研究表明,一些社区比其他社区更容易受到健康错误信息的影响。然而,很少有研究评估健康错误信息和医疗保健差异之间的联系。在本文中,我们(A)回顾当前关于错误信息及其对健康差异的影响的文献,(b)扩大以前的流行病学模型,以解释错误信息的公共传播以及与不同健康结果的联系,(c)查明关于社区错误信息传播的知识差距(d)审查有希望的干预措施,以制止错误信息的不利影响。
    Relative to the rapid increase in available health information, little has been published on the differential impact misinformation has on the health of communities. Observations during the height of the COVID-19 pandemic indicated there were communities that made decisions that negatively impacted health outcomes beyond expectations; we propose that health misinformation was a contributor to poor health outcomes. Health misinformation exposure varies across communities and preliminary research suggests that some communities are more vulnerable to the impact of health misinformation than others. However, few studies have evaluated the connection between health misinformation and healthcare disparities. In this paper, we (a) review the current literature on misinformation and its impact on health disparities, (b) expand on prior epidemiological models to explain the communal spread of misinformation and the link to disparate health outcomes, (c) identify gaps in knowledge about communal misinformation spread (d) review promising interventions to halt the adverse impact of misinformation.
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  • 文章类型: Journal Article
    背景:COVID-19大流行对不同国家产生了重大影响,因此实施了各种健康和安全措施,数字媒体起着举足轻重的作用。然而,数字媒体也带来了重大担忧,如错误信息和缺乏方向。
    目的:我们旨在通过数字,社会,和电子媒体对巴基斯坦护理人员和卫生保健提供者的疫苗相关态度。
    方法:本研究采用定性探索性研究设计,并采用目的性抽样策略,它是在信德省的3个初级卫生保健机构进行的,巴基斯坦。通过虚拟平台(ConnectOnCall和Zoom)使用半结构化访谈,与医疗保健提供者进行了7次焦点小组讨论,并与护理人员进行了60次深入访谈。通过主题分析对成绩单进行分析。
    结果:我们的研究揭示了电子媒体的关键作用,移动健康(mHealth),和社交媒体在COVID-19大流行期间。确定了四个主要主题:(1)关于COVID-19及其疫苗接种的信息来源,(2)电子媒体的价值和误导性传播,(3)COVID-19期间的mHealth杠杆作用和局限性,以及(4)COVID-19期间的社交媒体影响和障碍。卫生保健提供者和护理人员报告说,常见的信息来源是电子媒体和mHealth,其次是社交媒体。一些参与者还使用全球媒体获取与COVID-19相关的更可靠信息。mHealth解决方案,如公众意识信息,视频,呼叫铃声,求助热线推广了COVID-19预防技术和疫苗注册。然而,大量涌入的新闻和社会行为叙事,包括通过WhatsApp等社交媒体提供的错误信息/虚假信息,Facebook,还有Twitter,被发现是疫苗相关疾病的主要推动者。电子媒体和mHealth被更广泛地利用,以促进有关COVID-19大流行和疫苗接种的信息和交流。然而,社交媒体和电子媒体驱动的信息流行病被确定为与COVID-19和疫苗犹豫相关的错误信息的主要因素。Further,我们发现了城乡人口之间的数字鸿沟,在农村环境中使用电子媒体,在城市环境中使用社交媒体。
    结论:在像巴基斯坦这样的资源受限的环境中,mHealth的使用,社交媒体,与COVID-19及其疫苗接种相关的信息传播(事实和错误/虚假信息)和电子媒体对COVID-19疫苗接种的态度有显著影响。根据定性发现,我们建立了数字通信和信息传播模型,以增加对COVID-19及其预防措施的了解,包括疫苗接种,这可以在其他疾病负担和相关传染病的类似环境中复制。Further,为了减轻传染病,需要更大规模的数字和非数字干预。
    BACKGROUND: The COVID-19 pandemic has had a significant impact on different countries because of which various health and safety measures were implemented, with digital media playing a pivotal role. However, digital media also pose significant concerns such as misinformation and lack of direction.
    OBJECTIVE: We aimed to explore the effects of COVID-19-related infodemics through digital, social, and electronic media on the vaccine-related attitudes of caregivers and health care providers in Pakistan.
    METHODS: This study employs a qualitative exploratory study design with purposive sampling strategies, and it was conducted at 3 primary health care facilities in the province of Sindh, Pakistan. Seven focus group discussions with health care providers and 60 in-depth interviews with caregivers were conducted using semistructured interviews through virtual platforms (ConnectOnCall and Zoom). Transcripts were analyzed through thematic analysis.
    RESULTS: Our study reveals the pivotal role of electronic media, mobile health (mHealth), and social media during the COVID-19 pandemic. Four major themes were identified: (1) sources of information on COVID-19 and its vaccination, (2) electronic media value and misleading communication, (3) mHealth leveraging and limitations during COVID-19, and (4) social media influence and barriers during COVID-19. Health care providers and caregivers reported that the common sources of information were electronic media and mHealth, followed by social media. Some participants also used global media for more reliable information related to COVID-19. mHealth solutions such as public awareness messages, videos, call ringtones, and helplines promoted COVID-19 prevention techniques and vaccine registration. However, the overwhelming influx of news and sociobehavioral narratives, including misinformation/disinformation through social media such as WhatsApp, Facebook, and Twitter, were found to be the primary enablers of vaccine-related infodemics. Electronic media and mHealth were utilized more widely to promote information and communication on the COVID-19 pandemic and vaccination. However, social media and electronic media-driven infodemics were identified as the major factors for misinformation related to COVID-19 and vaccine hesitancy. Further, we found a digital divide between the urban and rural populations, with the use of electronic media in rural settings and social media in urban settings.
    CONCLUSIONS: In a resource-constrained setting like Pakistan, the usage of mHealth, social media, and electronic media for information spread (both factual and mis/disinformation) related to COVID-19 and its vaccination had a significant impact on attitudes toward COVID-19 vaccination. Based on the qualitative findings, we generated a model of digital communications and information dissemination to increase knowledge about COVID-19 and its prevention measures, including vaccination, which can be replicated in similar settings for other disease burdens and related infodemics. Further, to mitigate the infodemics, both digital and nondigital interventions are needed at a larger scale.
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  • 文章类型: Journal Article
    背景:新药剂师,2020年和2021年的药学专业毕业生面临着在动荡和分裂的COVID-19大流行期间进入劳动力市场的独特挑战。他们必须在适应不断变化的角色的同时,驾驭患者驱动的错误信息,包括COVID-19疫苗的分销和管理。在此期间了解新药剂师的经验对于专业发展和患者护理至关重要。
    目的:该研究旨在描述新药师处理患者提供的COVID-19疫苗错误信息的经验。
    方法:对从圣约翰大学药学与健康科学学院(SJUCPHS)和密西西比大学药学院(UMSOP)招募的PharmD2020和2021毕业生进行了半结构化缩放访谈。达到饱和。面试问题基于HURIER模型和WHO算法的构造,该算法涉及如何应对声音疫苗否认者。通过演绎主题内容分析进行数据分析,并使用《定性研究报告综合标准》报告研究结果。
    结果:共进行了13次访谈,61.5%的参与者来自SJU,38.5%来自UM。他们在各种药房工作,包括独立(30.8%),链(23.0%),长期护理(15.4%),和门诊护理/医院药房(30.8%)。新药剂师在大流行期间听到的COVID-19错误信息的类型与WHO算法概述的反疫苗论点的技术和主题一致。新药剂师利用评估技能来识别可靠的来源和信息,解释患者的语言和来源,并评估患者接受纠正的意愿。无论技术或主题如何,所有新药剂师都对错误信息做出了回应;但是,反应机制可能根据是否提出了技术或主题而有所不同。
    结论:这种对新药剂师管理健康错误信息实践的基线理解可以为制定健康错误信息管理建议提供信息,并帮助药学学校确定对学生药剂师进行进一步培训的领域。
    BACKGROUND: New pharmacists, PharmD graduates of 2020 and 2021, faced the unique challenge of entering the workforce during the volatile and divisive COVID-19 pandemic. They had to navigate patient-driven misinformation while adapting to evolving roles, including the distribution and administration of COVID-19 vaccines. Understanding the experiences of new pharmacists during this period is crucial for professional development and patient care.
    OBJECTIVE: The study aimed to describe new pharmacists\' experiences of handling COVID-19 vaccine misinformation presented by patients.
    METHODS: Semi-structured Zoom interviews were conducted with PharmD 2020 and 2021 graduates recruited from St. John\'s University College of Pharmacy and Health Sciences (SJUCPHS) and the University of Mississippi School of Pharmacy (UMSOP) until saturation was achieved. Interview questions were based on constructs of the HURIER model and WHO algorithm on how to respond to vocal vaccine deniers. Data analysis was performed through deductive thematic content analysis, and findings were reported using the Consolidated Criteria for Reporting Qualitative Research.
    RESULTS: A total of 13 interviews were conducted, with 61.5% of participants from SJU and 38.5% from UM. They worked in various pharmacy settings, including independent (30.8%), chain (23.0%), long-term care (15.4%), and ambulatory care/hospital pharmacies (30.8%). The types of COVID-19 misinformation new pharmacists heard during the pandemic align with the techniques and topics of anti-vaccine arguments outlined by the WHO\'s algorithm. New pharmacists utilized evaluation skills to identify credible sources and information, interpreted patients\' language and sources, and assessed patients\' willingness to be corrected. All new pharmacists responded to misinformation regardless of the technique or topic; however, the mechanism of response may have differed depending on whether a technique or topic was presented.
    CONCLUSIONS: This baseline understanding of new pharmacists\' practices in managing health misinformation can inform the development of recommendations for health misinformation management and assist pharmacy schools in identifying areas for further training for student pharmacists.
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  • 文章类型: Journal Article
    医疗错误信息,这导致疫苗犹豫,给卫生专业人员带来挑战。健康专业的学生,虽然能够解决和倡导疫苗接种,可能缺乏与受医疗错误信息影响的疫苗犹豫者接触的信心。
    为医学学生开发并建立了使用标准化患者的跨专业人员模拟活动(90分钟),护理,药房,和公共卫生计划。学生志愿者从班级招募,大约在他们各自的学位课程的一半(即,四年计划的第二年或第三年)。在线模拟被用作准备亲自模拟的方法。对学生的影响主要通过事后学生自我评估来评估。
    共有220名学生参加了该计划;206(94%)有配对数据可供分析。在计划参与之后,自我评估的能力从前到后都有所提高,从5个中的2.8个(好)到5个中的3.9个(非常好;p<.001)。百分之九十八的学生认为,在活动结束后,他们解决医疗错误信息的能力要好得多。和以前相比,他们解决疫苗犹豫的能力要好得多。整体方案评价很高,每个项目评估项目的平均分数>5个中的4个(非常好)。
    一个跨专业的学生队列证明了自我评估技能的提高,可以参与与犹豫不决的人的对话,以接受疫苗和/或错误信息的信念。学生认为该计划对他们的专业发展具有重要意义。
    UNASSIGNED: Medical misinformation, which contributes to vaccine hesitancy, poses challenges to health professionals. Health professions students, while capable of addressing and advocating for vaccination, may lack the confidence to engage with vaccine-hesitant individuals influenced by medical misinformation.
    UNASSIGNED: An interprofessional in-person simulation activity (90 minutes) using standardized patients was developed and instituted for students in medicine, nursing, pharmacy, and public health programs. Student volunteers were recruited from classes approximately halfway through their respective degree programs (i.e., second or third year of a 4-year program). Online simulation was used as a method to prepare for in-person simulation. Impact on students was assessed primarily through a postprogram student self-assessment.
    UNASSIGNED: A total of 220 students participated in the program; 206 (94%) had paired data available to analyze. Following program participation, self-assessed abilities increased from pre to post, from 2.8 out of 5 (good) to 3.9 out of 5 (very good; p < .001). Ninety-eight percent of students felt that their ability to address medical misinformation was somewhat/much better after the activity, compared to before, and that their ability to address vaccine hesitancy was somewhat/much better. The overall program was rated highly, with mean scores for each program evaluation item >4 out of 5 (very good).
    UNASSIGNED: An interprofessional cohort of students demonstrated improvement in self-assessed skills to participate in a conversation with an individual with hesitancy to receive vaccines and/or beliefs informed by misinformation. Students felt that this program was relevant and important to their professional development.
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  • 文章类型: Journal Article
    社交媒体(SoMe)现在是现代生活的核心部分,患者和泌尿科医师的使用也越来越多。这两个政党之间的SoMe相互作用是复杂的。从病人的角度来看,SoMe平台可以作为教育工具和通信门户,以支持网络和患者社区。然而,研究报告说,在线内容的教育价值往往很差,可能包含错误信息。对于泌尿科医生来说,SoMe可以导致研究合作,网络和教育内容,但关注的领域包括SoMe可能对心理健康产生的潜在负面影响,以及在未经适当同意的情况下分享患者图像。这篇综述旨在概述SoMe与泌尿外科实践之间的相互作用,并为导航提供实用指导。
    Social media (SoMe) is now a core part of modern-day life with increased use among both patients and urologists. The interplay of SoMe between these two parties is complex. From a patient perspective, SoMe platforms can serve as educational tools as well as communication portals to support networks and patient communities. However, studies report the educational value of content online is often poor and may contain misinformation. For urologists, SoMe can lead to research collaborations, networking and educational content but areas of concern include the potential negative impact SoMe can have on mental health and sharing of patient images without appropriate consent. This review serves to provide an overview of the interaction between SoMe and urology practice and provide practical guidance to navigating it.
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  • 文章类型: Journal Article
    世界卫生组织将“信息流行病”定义为疾病爆发期间,信息在数字和物理环境中不受控制地传播的现象,造成混乱和冒险行为,可能损害健康。这项范围界定审查的目的是审查国际证据,并确定应对健康相关假新闻的策略和瓶颈。
    我们在PubMed上对2018年1月1日至2023年1月26日的文献进行了范围审查,WebofScience,和Scopus电子数据库。我们还在机构网站上搜索了灰色文献。研究问题已经根据PCC(人口,概念,和上下文)在范围界定评论中构建研究问题的助记符。
    科学数据库中的总体研究总共产生了5,516条记录。删除重复项后,筛选标题,摘要,和全文,我们收录了21篇来自科学文献的文章。此外,从机构网站检索到5份文件。根据他们的内容,我们决定将建议和瓶颈分为五个不同且定义明确的干预领域,我们称之为战略:“通过科学与社交媒体公司和用户之间的合作促进适当的沟通,机构和监管干预措施,\"\"检查和揭穿,“\”提高健康素养,通过新的数字工具进行监视和监控。\"
    从文献和机构收集建议的标准化工具包的多学科创建可以提供有效的解决方案来限制信息,加强公民和卫生专业人员的健康教育,提供识别假新闻的知识,以及支持创建和验证旨在进行预破坏和揭穿的AI工具。
    UNASSIGNED: The World Health Organization defines \"infodemic\" as the phenomenon of an uncontrolled spread of information in digital and physical environments during a disease outbreak, causing confusion and risk-taking behaviors that can harm health. The aim of this scoping review is to examine international evidence and identify strategies and bottlenecks to tackle health-related fake news.
    UNASSIGNED: We performed a scoping review of the literature from 1 January 2018 to 26 January 2023 on PubMed, Web of Science, and Scopus electronic databases. We also performed a search of grey literature on institutional websites. The research question has been defined according to the PCC (population, concept, and context) mnemonic for constructing research questions in scoping reviews.
    UNASSIGNED: The overall research in the scientific databases yielded a total of 5,516 records. After removing duplicates, and screening the titles, abstracts, and full texts, we included 21 articles from scientific literature. Moreover, 5 documents were retrieved from institutional websites. Based on their content, we decided to group recommendations and bottlenecks into five different and well-defined areas of intervention, which we called strategies: \"foster proper communication through the collaboration between science and social media companies and users,\" \"institutional and regulatory interventions,\" \"check and debunking,\" \"increase health literacy,\" and \"surveillance and monitoring through new digital tools.\"
    UNASSIGNED: The multidisciplinary creation of standardized toolkits that collect recommendations from the literature and institutions can provide a valid solution to limit the infodemic, increasing the health education of both citizens and health professionals, providing the knowledge to recognize fake news, as well as supporting the creation and validation of AI tools aimed at prebunking and debunking.
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  • 文章类型: Journal Article
    背景:在突发卫生事件期间,有效的信息技术管理已成为一项首要挑战。一个以快速变化的信息生态系统为标志的新时代,加上错误信息和虚假信息的广泛传播,放大了问题的复杂性。为使传染病管理措施有效,可接受,值得信赖,需要一个健全的道德考虑框架。
    目的:本系统范围审查旨在确定和分析与信息管理相关的伦理考虑和程序原则,最终提高这些做法的有效性,并增加利益相关者的信任,这些利益相关者执行信息流行病管理做法,以保障公众健康为目标。
    方法:该综述涉及对2002年至2022年与疾病管理中的伦理考虑相关的文献进行了全面审查,这些文献来自PubMed的出版物,Scopus,和WebofScience。政策文件和相关材料被纳入搜索战略。论文根据纳入和排除标准进行筛选,根据PRISMA(系统审查和荟萃分析的首选报告项目)指南,对核心主题领域进行了系统识别和分类。我们分析了文献,以确定实质性的道德原则,这些原则对于指导信息管理和社会倾听领域的行动至关重要。以及相关的程序伦理原则。在这次审查中,我们考虑文献中广泛讨论的道德原则,比如股权,正义,或尊重自主权。然而,我们承认程序实践的存在和相关性,我们也认为这是道德原则或实践,当实施时,在确保尊重实质性道德原则的同时,提高信息管理的效力。
    结果:从103种出版物中提取,审查产生了几个与道德原则有关的关键发现,方法,和传染病管理背景下的实践指南。社区参与,通过教育赋权,包容性作为程序原则和实践出现,提高了沟通和社会倾听努力的质量和有效性,培养信任,一个关键的新兴主题和重要的道德原则。审查还强调了透明度的重要性,隐私,和数据收集中的网络安全。
    结论:这篇综述强调了伦理学在增强疾病控制效果方面的关键作用。从分析的文学主体来看,很明显,道德考虑是培养信任和信誉的重要工具,同时也促进了信息管理方法的中期和长期可行性。
    BACKGROUND: During health emergencies, effective infodemic management has become a paramount challenge. A new era marked by a rapidly changing information ecosystem, combined with the widespread dissemination of misinformation and disinformation, has magnified the complexity of the issue. For infodemic management measures to be effective, acceptable, and trustworthy, a robust framework of ethical considerations is needed.
    OBJECTIVE: This systematic scoping review aims to identify and analyze ethical considerations and procedural principles relevant to infodemic management, ultimately enhancing the effectiveness of these practices and increasing trust in stakeholders performing infodemic management practices with the goal of safeguarding public health.
    METHODS: The review involved a comprehensive examination of the literature related to ethical considerations in infodemic management from 2002 to 2022, drawing from publications in PubMed, Scopus, and Web of Science. Policy documents and relevant material were included in the search strategy. Papers were screened against inclusion and exclusion criteria, and core thematic areas were systematically identified and categorized following PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) guidelines. We analyzed the literature to identify substantive ethical principles that were crucial for guiding actions in the realms of infodemic management and social listening, as well as related procedural ethical principles. In this review, we consider ethical principles that are extensively deliberated upon in the literature, such as equity, justice, or respect for autonomy. However, we acknowledge the existence and relevance of procedural practices, which we also consider as ethical principles or practices that, when implemented, enhance the efficacy of infodemic management while ensuring the respect of substantive ethical principles.
    RESULTS: Drawing from 103 publications, the review yielded several key findings related to ethical principles, approaches, and guidelines for practice in the context of infodemic management. Community engagement, empowerment through education, and inclusivity emerged as procedural principles and practices that enhance the quality and effectiveness of communication and social listening efforts, fostering trust, a key emerging theme and crucial ethical principle. The review also emphasized the significance of transparency, privacy, and cybersecurity in data collection.
    CONCLUSIONS: This review underscores the pivotal role of ethics in bolstering the efficacy of infodemic management. From the analyzed body of literature, it becomes evident that ethical considerations serve as essential instruments for cultivating trust and credibility while also facilitating the medium-term and long-term viability of infodemic management approaches.
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  • 文章类型: Journal Article
    背景:像TikTok这样的社交媒体平台是非常受欢迎的信息来源,尤其是皮肤疾病。局部类固醇戒断(TSW)是一种尚未完全定义和理解的疾病。这并没有阻止#topicalsteroidescaption在TikTok上积累超过6亿的点击量。评估TSW上TikTok视频的质量和内容以防止错误信息的传播至关重要。
    目的:本研究旨在评估TikTok上针对TSW主题的前100个视频的质量和内容。
    方法:这项观察性研究评估了TikTok上有关TSW的前100个视频的内容和质量。共有3个独立的评分系统:DISCERN,美国医学协会杂志,和全球质量量表用于评估视频质量。视频的内容由2名审阅者编码,并针对重复的主题和主题进行了分析。
    结果:这项研究发现,只有10.0%(n=10)的视频清楚地定义了TSW是什么。视频主要由怀特发布,中年,女性创作者视频中没有描述疾病的原因和机制。症状表明瘙痒,剥皮,和干燥类似特应性皮炎的症状。视频没有提到有关使用类固醇的重要信息,例如最初规定的原因,药物的名称,浓度,使用机制,和停药的方法。管理技术各不相同,从批准用于治疗特应性皮炎的水合方法到没有科学证据的治疗方案。总的来说,这些视频获得了超过2亿次观看,4500万个喜欢,90000条评论,和10万股。视频质量较差,平均DISCERN评分为1.63(SD0.56)/5。视频长度,总视图计数,和视图/日都与质量的提高有关,表明患者与更高质量的视频互动更多。然而,视频完全由个人帐户创建,强调皮肤科医生在平台上没有讨论这个话题。
    结论:在TikTok上发布的视频质量低,缺乏相关信息。内容各不相同,不一致。卫生保健专业人员,包括皮肤科医生和现场居民,需要在这个话题上更加积极,传播适当的信息并防止类固醇恐惧症的增加。鼓励医疗保健专业人员乘风破浪,制作高质量的视频,讨论有关TSW的知识,以避免错误信息的传播。
    BACKGROUND: Social media platforms like TikTok are a very popular source of information, especially for skin diseases. Topical steroid withdrawal (TSW) is a condition that is yet to be fully defined and understood. This did not stop the hashtag #topicalsteroidwithdrawal from amassing more than 600 million views on TikTok. It is of utmost importance to assess the quality and content of TikTok videos on TSW to prevent the spread of misinformation.
    OBJECTIVE: This study aims to assess the quality and content of the top 100 videos dedicated to the topic of TSW on TikTok.
    METHODS: This observational study assesses the content and quality of the top 100 videos about TSW on TikTok. A total of 3 independent scoring systems: DISCERN, Journal of the American Medical Association, and Global Quality Scale were used to assess the video quality. The content of the videos was coded by 2 reviewers and analyzed for recurrent themes and topics.
    RESULTS: This study found that only 10.0% (n=10) of the videos clearly defined what TSW is. Videos were predominantly posted by White, middle-aged, and female creators. Neither cause nor mechanism of the disease were described in the videos. The symptoms suggested itching, peeling, and dryness which resembled the symptoms of atopic dermatitis. The videos fail to mention important information regarding the use of steroids such as the reason it was initially prescribed, the name of the drug, concentration, mechanism of usage, and method of discontinuation. Management techniques varied from hydration methods approved for treatment of atopic dermatitis to treatment options without scientific evidence. Overall, the videos had immense reach with over 200 million views, 45 million likes, 90,000 comments, and 100,000 shares. Video quality was poor with an average DISCERN score of 1.63 (SD 0.56)/5. Video length, total view count, and views/day were all associated with increased quality, indicating that patients were interacting more with higher quality videos. However, videos were created exclusively by personal accounts, highlighting the absence of dermatologists on the platform to discuss this topic.
    CONCLUSIONS: The videos posted on TikTok are of low quality and lack pertinent information. The content is varied and not consistent. Health care professionals, including dermatologists and residents in the field, need to be more active on the topic, to spread proper information and prevent an increase in steroid phobia. Health care professionals are encouraged to ride the wave and produce high-quality videos discussing what is known about TSW to avoid the spread of misinformation.
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