Treatment Refusal

治疗拒绝
  • 文章类型: Journal Article
    在医疗建议下出院的患者占住院人数的1%-2%。违反医疗建议(DAMA)的定义是住院患者在治疗医疗团队建议出院之前选择离开医院。DAMA的行为对两个病人都有影响,工作人员和他们的持续照顾。具体来说,这意味着患者的医疗问题可能没有得到充分的评估或治疗。决定参加DAMA的患者往往是年轻男性,来自较低的社会经济背景,并有精神健康或物质滥用障碍的历史。DAMA具有相关的发病率和死亡率增加的风险。在这篇关于西方医疗机构研究的综述中,特别是成人内科住院患者,我们将审查证据并寻求解决原因,在这种常见情况下的后果和可能的纠正措施。
    Patients who discharge themselves against medical advice comprise 1%-2% of hospital admissions. Discharge against medical advice (DAMA) is defined as when a hospitalised patient chooses to leave the hospital before the treating medical team recommends discharge. The act of DAMA impacts on both the patient, the staff and their ongoing care. Specifically, this means that the patient\'s medical problems maybe inadequately assessed or treated. Patients who decide to DAMA tend to be young males, from a lower socioeconomic background and with a history of mental health or substance misuse disorder. DAMA has an associated increased risk of morbidity and mortality. In this review of studies across Western healthcare settings, specifically adult medical inpatients, we will review the evidence and seek to address the causes, consequences and possible corrective measures in this common scenario.
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  • 文章类型: Journal Article
    目标:在癌症患者中,合并症的精神障碍与较高的死亡率相关。这可能部分归因于获得肿瘤护理的机会减少,有时是由于拒绝治疗。法国和法语国家心理肿瘤学会于2018年发布了有关肿瘤治疗拒绝的管理的建议。这项研究旨在检查肿瘤科住院医师在这种情况下对精神病学评估的看法。
    方法:2021年2月,我们进行了描述性的,观察,涉及肿瘤学的法国居民的横断面试点研究,涉及他们对癌症治疗拒绝的管理以及他们对精神病学评估的重要性,使用包含12个多项选择题的在线问卷。
    结果:在87名受访者中,只有35.6%的人在面对癌症治疗拒绝时系统地探索精神障碍的病史。即使在已知有精神障碍史的情况下,只有42.5%的人系统地将病人转诊给精神科医生。其中96.5%的人不知道2018年的建议。
    结论:在肿瘤治疗拒绝的情况下,给予精神病评估的重要性仍然不足。需要进行定性研究以了解这种拒绝的根本原因。在肿瘤中心发展精神病咨询联络干预措施对于改善这些病例的管理并提供适当的培训是必要的。
    OBJECTIVE: Among patients with cancer, a comorbid mental disorder is associated with higher mortality. This could be partially attributed to reduced access to oncological care, sometimes due to treatment refusal. Recommendations were issued in 2018 by the French and Francophone Society of Psycho-Oncology concerning the management of oncological treatment refusal. This study aimed to examine oncology residents\' view on psychiatric assessment in this context.
    METHODS: In February 2021, we conducted a descriptive, observational, cross-sectional pilot study among French residents involved in oncology regarding their management of cancer treatment refusal and the importance they assign to psychiatric assessment, using an online questionnaire with 12 multiple-choice questions.
    RESULTS: Among 87 respondents, only 35.6% systematically explore the history of mental disorders when facing cancer treatment refusal. Even in cases with a known history of mental disorders, only 42.5% systematically refer the patient to a psychiatrist. 96.5% of them were unaware of the 2018 recommendations.
    CONCLUSIONS: The importance given to psychiatric assessment in cases of oncological treatment refusal remains insufficient. Qualitative studies are needed to understand the underlying reasons for this refusal. The development of psychiatric consultation-liaison interventions in oncology centers is necessary to improve the management of these cases and provide appropriate training.
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  • 文章类型: Journal Article
    “一位千万富翁在与儿子发生争执后被送往精神病医院”的案件在中国大陆引发了激烈的争论。2023年是《中华人民共和国精神卫生法》实施10周年,这一事件意义尤为重大。正在进行的辩论的焦点,正如上述案件所揭露的那样,是以拒绝治疗精神障碍患者的权利为中心的。
    本文是对文献和案例进行系统分析的事后研究。为了确定精神障碍患者拒绝治疗的权利与《精神卫生法》之间的关系,作者从官方政府网站和可靠的非政府信息中确定了关键信息和数据。
    文献和实践都证明,《精神卫生法》下的强制住院规则是对强制住院患者拒绝治疗的权利的否认。在法律没有修改的情况下,强制住院必然导致中国大陆的强制治疗。
    根据中华人民共和国宪法确立的人的尊严和自决权,强制住院的患者有权拒绝治疗。在法律没有改变的情况下,鉴于尚未为此类患者及其在内地的治疗建立中立的审查机制,建立内部审查机制是保护精神障碍患者拒绝治疗权的更可行方法。
    UNASSIGNED: The case of \"a multimillionaire who was sent to a psychiatric hospital after an argument with his son\" has sparked heated debate in the Chinese mainland. This incident is particularly significant as 2023 marks the 10th anniversary of the implementation of the Mental Health Law of the People\'s Republic of China. The focus of the ongoing debate, as brought to light by the aforementioned case, is centered on the right to refuse treatment for patients with mental disorders.
    UNASSIGNED: This paper is a post-hoc study with a systematic analysis of literature and cases. To ascertain the relationship between the right to refuse treatment for patients with mental disorders and the Mental Health Law, the authors identified key information and data from both official government websites and reliable non-governmental information.
    UNASSIGNED: Both literature and practice have proven that the compulsory hospitalization rule under the Mental Health Law is a denial of the right to refuse treatment for patients who are compulsorily hospitalized. In the absence of changes to the law, compulsory hospitalization will inevitably lead to compulsory treatment in the Chinese mainland.
    UNASSIGNED: According to the human dignity and self-determination right established in the Constitution of the People\'s Republic of China, patients who are compulsorily hospitalized have the right to refuse treatment. In the absence of a change in the law, given that no neutral review mechanism has been established for such patients and their treatment in the mainland, setting up an internal review mechanism is a more feasible way of protecting the right to refuse treatment for patients with mental disorders.
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  • 文章类型: Journal Article
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  • 文章类型: Systematic Review
    在大流行期间,医疗保健提供者努力平衡对自我的义务,家庭,和病人。虽然艾滋病毒/艾滋病似乎解决了这个问题,2019年冠状病毒病(COVID-19)重新点燃了关于拒绝治疗的辩论。我们搜索了MEDLINE,Embase,CINAHL完成,和WebofScience使用包括义务在内的术语,拒绝,艾滋病毒/艾滋病,新冠肺炎和流行病。重复删除和双重删除后,独立筛查,我们分析了156篇文章的质量,道德立场,原因,和概念。我们样本中的疾病包括艾滋病毒/艾滋病(72.2%),严重急性呼吸系统综合症(SARS)(10.2%),COVID-19(10.2%),埃博拉(7.0%),和流感(7.0%)。大多数文章(81.9%,n=128)表示有义务治疗。COVID-19的论文数量最多,表明拒绝的道德可接受性(60%,P<.001),而艾滋病毒感染最少(13.3%,P=.026)。在COVID-19期间,几个原因领域显着不同,包括对自我/家庭的不合理风险(26.7%,P<.001)和劳工权利/工人保护(40%,P<.001)。COVID-19期间伦理文献的激增主张允许拒绝治疗。平衡医疗保健供应与劳动力保护对于有效应对全球大流行至关重要。
    During pandemics, healthcare providers struggle with balancing obligations to self, family, and patients. While HIV/AIDS seemed to settle this issue, coronavirus disease 2019 (COVID-19) rekindled debates regarding treatment refusal. We searched MEDLINE, Embase, CINAHL Complete, and Web of Science using terms including obligation, refusal, HIV/AIDS, COVID-19, and pandemics. After duplicate removal and dual, independent screening, we analyzed 156 articles for quality, ethical position, reasons, and concepts. Diseases in our sample included HIV/AIDS (72.2%), severe acute respiratory syndrome (SARS) (10.2%), COVID-19 (10.2%), Ebola (7.0%), and influenza (7.0%). Most articles (81.9%, n = 128) indicated an obligation to treat. COVID-19 had the highest number of papers indicating ethical acceptability of refusal (60%, P < .001), while HIV had the least (13.3%, P = .026). Several reason domains were significantly different during COVID-19, including unreasonable risks to self/family (26.7%, P < .001) and labor rights/workers\' protection (40%, P < .001). A surge in ethics literature during COVID-19 has advocated for permissibility of treatment refusal. Balancing healthcare provision with workforce protection is crucial in effectively responding to a global pandemic.
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  • 文章类型: Journal Article
    一名29岁的东非女性难民,没有正式的精神病史和对艾滋病毒有重要意义的病史,因未能茁壮成长和担心丈夫遗弃和与孩子分离的奇怪行为而被承认。精神病评估后,确定她没有独立照顾自己的能力;然后寻求成人保护服务并获得监护权。虽然承认,病人一再拒绝治疗,放置了一根用于强制营养和药物治疗的喂食管(尽管她曾一度自己取出了这根管子),并接受了两次电惊厥治疗(ECT)。此后不久,病人的法庭指定的监护人会见了初级医疗,精神病学,和道德团队讨论在复杂的社会和文化需求背景下的护理目标。集体确定患者选择拒绝护理(包括营养,实验室工作,药物,和ECT)和一些重复的行为(例如,否认离婚,否认艾滋病毒,在导致住院的急性应激源的背景下,可以认为拒绝治疗)在文化上是适当的。所有团队都得出结论,因此,患者有能力拒绝这些干预措施,并且进一步的强制干预比改善结局更有可能加剧已经很重要的创伤史.最终,病人能够出院,由她的监护人照顾,她将帮助她获得社区成员的支持,这些成员分享她的语言和文化。
    AbstractA 29-year-old female East African refugee with no formal psychiatric history and a medical history significant for HIV was admitted for failure to thrive and concern for bizarre behavior in the context of abandonment by her husband and separation from her child. After psychiatric evaluation, it was determined that she did not have the capacity to care for herself independently; adult protective services then pursued and was awarded guardianship. While admitted, the patient repeatedly refused medical treatment, had a feeding tube placed for forced nutrition and medications (though she did at one point remove this tube herself), and received two electroconvulsive therapy (ECT) treatments. Soon thereafter, the patient\'s court-appointed guardian met with the primary medical, psychiatric, and ethics teams to discuss goals of care in the setting of complex social and cultural needs. It was collectively determined that the patient\'s choices to refuse care (including nutrition, lab work, medications, and ECT) and some repeated behaviors (e.g., denial of divorce, denial of HIV, denial of need for care) could be considered culturally appropriate in the context of the acute stressors leading up to hospitalizations. All teams concluded, therefore, that the patient had the capacity to refuse these interventions and that further forced intervention would pose a greater chance of exacerbating her already-significant trauma history than improving her outcomes. Ultimately, the patient was able to be discharged into the care of her guardian, who would assist her in receiving support from members of her community who share her language and culture.
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  • 文章类型: Journal Article
    反对医疗咨询(AMA)的出院对医疗保健系统构成重大挑战,紧张的患者与临床医生的关系,同时有助于可避免的发病率和死亡率。此外,尽管这些出院最终导致患者离开医院,它们的效果在很久之后回荡,由存储在患者医疗记录中的临床医生记录传播。这些笔记记录了患者和提供者之间异常紧张的互动,描述了围绕临床关系崩溃的情况。此外,它们只代表复杂的一面,有争议的社会互动,在描述AMA放电时,临床医生的笔记本相当字面上有最后一句话。由于这些原因,记录AMA放电的笔记提供了对临床医生概念化的方式的洞察,表征,并在当代医疗保健系统中传播功率差异。这里,我们对185份记录美国大型城市医疗中心AMA出院的笔记进行了定性主题分析,通过三个权力分析的社会学模型来解释笔记动力学:(I)马克斯·韦伯颁布的权力分配模型,(ii)以塔尔科特·帕森斯和汉娜·阿伦特为特征的集体主义权力模型,和(iii)米歇尔·福柯提出的权力的结构解释。我们认为,在记录AMA出院时,临床医生似乎几乎完全以分布的方式设想他们与患者的关系,这反过来又导致了一种对抗性动态,即患者和临床医生最终都会被剥夺权力。我们还认为,通过促进临床医生对权力的集体主义和结构维度的认识,我们可以帮助将患者-临床医生关系的破裂转化为合作的机会.
    Against Medical Advice (AMA) discharges pose significant challenges to the healthcare system, straining patient-clinician relationships while contributing to avoidable morbidity and mortality. Furthermore, though these discharges culminate in patients\' departure from hospitals, their effects reverberate long after, propagated by clinician notes stored in patients\' medical records. These notes capture exceptionally fraught interactions between patients and providers, describing the circumstances surrounding breakdowns in clinical relationships. Additionally, they represent just one side of complex, contentious social interactions, for in describing AMA discharges, clinician notewriters quite literally have the last word. For these reasons, notes documenting AMA discharges provide insight into the ways in which clinicians conceptualize, characterize, and propagate power differentials in the contemporary healthcare system. Here, we present a qualitative thematic analysis of 185 notes documenting AMA discharges from a large urban US medical center, interpreting note dynamics through three sociological models of power analysis: (i) the distributive model of power promulgated by Max Weber, (ii) the collectivist power model characterized by Talcott Parsons and Hannah Arendt, and (iii) structural interpretations of power developed by Michel Foucault. We argue that in documenting AMA discharges, clinicians appear to conceive of their relationship with patients in almost exclusively distributive terms, which in turn contributes to an adversarial dynamic whereby both patients and clinicians ultimately suffer disempowerment. We furthermore argue that by facilitating clinicians\' recognition of power\'s collectivist and structural dimensions, we may help transform breakdowns in patient-clinician relationships into opportunities for collaboration.
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  • 文章类型: Case Reports
    维生素K是合成维生素K依赖性促凝血蛋白活性形式所需的必需饮食辅因子。维生素K缺乏,特别是发生在1周至6个月之间的晚发性缺乏症,会导致危及生命的出血性疾病.纯母乳喂养,全学期,6周大的婴儿男性在出生后出现严重的出血性休克和多系统器官衰竭,这与照顾者拒绝肌内维生素K有关。在肌内维生素K给药8小时内凝血研究恢复正常。越来越多的护理人员拒绝肌内注射维生素K,这导致维生素K缺乏症出血的发生率上升。世界各地的卫生政策组织强调肌内注射维生素K的益处和拒绝的风险,特别是在纯母乳喂养的婴儿中,由于母乳中维生素K水平低,因此风险较高。这个案例突出了这种危及生命但可预防的疾病的多系统严重程度。
    Vitamin K is an essential dietary cofactor required for the synthesis of active forms of vitamin K-dependent procoagulant proteins. Vitamin K deficiency, particularly late-onset deficiency occurring between 1 week and 6 months of age, can cause a life-threatening bleeding disorder. An exclusively breastfed, full-term, 6-week-old infant male presented with severe haemorrhagic shock and multi-system organ failure related to caregiver refusal of intramuscular vitamin K after birth. Coagulation studies were normalised within 8 hours of intramuscular vitamin K administration. An increasing number of caregivers are refusing intramuscular vitamin K which has led to a rise in the incidence of vitamin K deficiency bleeding. Health policy organisations around the world emphasise the benefits of intramuscular vitamin K and risks of refusal, particularly in exclusively breastfed infants who are at higher risk due to low vitamin K levels in breast milk. This case highlights the multi-system severity of this life-threatening yet preventable disorder.
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  • 文章类型: Journal Article
    背景:这项研究的目的是探索,在一家偏远的医院,急诊科医疗服务提供者的经验和对围绕患者决定出院的因素的看法。次要目标是深入了解当前管理DAMA病例方案的工作人员经验,并探讨其降低DAMA发病率的建议。
    方法:这是一项横断面研究,涉及一项调查和半结构化访谈,探索医疗保健提供者(n=19)对被认为影响DAMA的因素的看法,管理DAMA的当前实践和实践改进建议。卫生专业人员(医生,护士,原住民卫生工作者)都在偏远社区医院的急诊科工作,昆士兰,澳大利亚。与DAMA影响因素有关的反应以三点评分量表提供,从“无影响/影响很小”到“影响非常强”。DAMA管理协议的响应是从“很少/从不”到“总是”的三点评分量表。调查后进行了半结构化访谈,并更详细地探讨了参与者的看法和当前的DAMA管理协议。
    结果:来自各行业共19名参与者的反馈提出了四个突出但相互关联的主题:患者,文化,卫生服务和卫生提供者,以及健康素养和教育相关因素。被认为对DAMA事件有很大影响的因素包括酒精和药物滥用(100%),缺乏文化敏感的医疗服务(94.7%),和家庭承诺或义务(89.5%)。医疗保健提供者关于预防DAMA的建议提出了正确沟通的主题,文化安全护理(正确的地方,合适的时间)和合适的员工来支持DAMA预防。医疗保健提供者描述了土著联络官(ILO)发挥的关键作用以及填补这一职位的重要性。
    结论:DAMA是一个多方面的问题,受个人和医院系统相关因素的影响。与会者一致认为,国际劳工组织和/或土著卫生工作者在急诊室的存在可能会减少澳大利亚土著居民的DAMA发生率,这些土著居民在DAMA比率中所占比例过高,特别是在澳大利亚的农村和偏远地区。
    BACKGROUND: The aim of the study was to explore, in one remote hospital, emergency department healthcare providers\' experience and perceptions of the factors surrounding a patient\'s decision to discharge against medical advice (DAMA). The secondary objective was to gain insight into staff experiences of the current protocols for managing DAMA cases and explore their recommendations for reducing DAMA incidence.
    METHODS: This was a cross-sectional study involving a survey and semi-structured interviews exploring healthcare providers\' (n=19) perceptions of factors perceived to be influencing DAMA, current practice for managing DAMA and recommendations for practice improvements. Health professionals (doctors, nurses, Aboriginal Health Workers) all worked in the emergency department of a remote community hospital, Queensland, Australia. Responses relating to influencing factors for DAMA were provided on a three-point rating scale from \'no influence/little influence\' to \'very strong influence\'. DAMA management protocol responses were a three-point rating scale from \'rarely/never\' to \'always\'. Semi-structured interviews were conducted after the survey and explored participants\' perceptions in greater detail and current DAMA management protocol.
    RESULTS: Feedback from the total of 19 participants across the professions presented four prominent yet interconnected themes: patient, culture, health service and health provider, and health literacy and education-related factors. Factors that were perceived to have a strong influence on DAMA events included alcohol and drug abuse (100%), a lack of culturally sensitive healthcare services (94.7%), and family commitments or obligations (89.5%). Healthcare provider recommendations for preventing DAMA presented themes of right communication, culturally safe care (right place, right time) and the right staff to support DAMA prevention. The healthcare providers described the pivotal role the Indigenous Liaison Officer (ILO) plays and the importance of this position being filled.
    CONCLUSIONS: DAMA is a multifaceted issue, influenced by both personal and hospital system-related factors. Participants agreed that the presence of ILO and/or Aboriginal Health Workers in the emergency department may reduce DAMA occurrences for Indigenous Australians who are disproportionately represented in DAMA rates, particularly in rural and remote regions of Australia.
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  • 文章类型: Journal Article
    背景:在这项病例对照研究中,作者研究了儿童未经治疗的龋齿与父母拒绝氟化物治疗之间的关系.作者假设,有未经治疗的龋齿病史的儿童的父母比没有未经治疗的龋齿病史的儿童的父母更不可能拒绝为他们的孩子提供局部氟化物。
    方法:该研究包括2016年1月至2020年6月在大学牙科诊所就诊的儿童(≤18岁)。父母拒绝氟化物治疗的儿童与父母不拒绝氟化物治疗的儿童的年龄相匹配(n=356)。结果变量是父母对子女的局部氟化物拒绝(否,yes).预测变量是未经治疗的龋齿史(无,yes).使用混杂变量调整的改良Poisson回归模型,通过儿童未治疗的龋齿状况来估计父母拒绝氟的患病率。
    结果:大约46.3%的儿童有未经治疗的龋齿病史。有未经治疗的龋齿病史的儿童的父母拒绝氟的患病率显着低于没有未经治疗的龋齿病史的儿童(调整后的患病率,0.79;95%CI,0.63至0.98;P=0.03)。
    结论:有龋齿病史的儿童的父母不太可能拒绝局部氟化物治疗,这表明未经治疗的龋齿可能会促使父母接受氟化物等预防性牙科治疗。
    结论:牙科护理专业人员应评估龋齿风险,并在提出关于局部氟化物治疗的建议之前传达儿童的龋齿风险。
    BACKGROUND: In this case-control study, the authors examined the relationship between untreated caries in children and parent fluoride treatment refusal. The authors hypothesized that parents of children with a history of untreated caries would be less likely to refuse topical fluoride for their children than parents of children with no history of untreated caries.
    METHODS: The study included children (≤ 18 years old) who were patients at a university dental clinic from January 2016 through June 2020. Children whose parents refused fluoride treatment were age-matched with children whose parents did not refuse fluoride treatment (n = 356). The outcome variable was parent topical fluoride refusal for their children (no, yes). The predictor variable was a history of untreated caries (no, yes). Confounding variable-adjusted modified Poisson regression models were used to estimate the prevalence ratio of parent fluoride refusal by means of children\'s untreated caries status.
    RESULTS: Approximately 46.3% of children had a history of untreated caries. The prevalence of parent fluoride refusal for children with a history of untreated caries was significantly lower than that for children with no history of untreated caries (adjusted prevalence ratio, 0.79; 95% CI, 0.64 to 0.98; P = .03).
    CONCLUSIONS: Parents of children with a history of caries are less likely to refuse topical fluoride treatment, which suggests that untreated caries may motivate parents to accept preventive dental treatments like fluoride.
    CONCLUSIONS: Dental care professionals should assess caries risk and communicate a child\'s caries risk before making a recommendation regarding topical fluoride treatment.
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