{Reference Type}: Journal Article
{Title}: Mind the gap: Comparing parents' information needs about impending preterm birth to current clinical practices using a mixed methods approach.
{Author}: van Zijl ACM;Obermann-Borst SA;Hogeveen M;Verweij EJTJ;de Vries WB;Geurtzen R;Labrie NHM;
{Journal}: PEC Innov
{Volume}: 4
{Issue}: 0
{Year}: 2024 Dec
暂无{DOI}: 10.1016/j.pecinn.2024.100297
{Abstract}: <B>UNASSIGNED: </B>To identify parents' information needs about impending very preterm birth and compare these needs to current information practices in the Netherlands.<BR><B>UNASSIGNED: </B>Step 1: We surveyed N = 203 parents of preterm infants to assess their information needs. Data were analyzed using inductive thematic analysis. Step 2a: We collected information resources from hospitals (N = 9 NICUs) and via an online search. These materials were analyzed using deductive thematic analysis. Step 2b: We compared findings from Steps 1-2a.<BR><B>UNASSIGNED: </B>We identified four themes pertaining to parents' information needs: (1) participation in care, (2) emotional wellbeing, (3) experience/success stories, and (4) practical information about prematurity. Clinicians' communicative skills and time were considered prerequisites for optimal information-provision. Notably, hospital resources provided mainly medical information about prematurity with some emphasis on participation in care, while parent associations mainly focused on emotional wellbeing and experience/success stories.<BR><B>UNASSIGNED: </B>While parents demonstrate clear information needs about impending very preterm birth, current information resources satisfy these partially.<BR><B>UNASSIGNED: </B>Our multidisciplinary research team included both scholars and veteran NICU parents. As such, we identified parents' information needs bottom-up. These parent-driven insights will be used to design an innovative, tailored information platform for parents about impending very preterm birth.