{Reference Type}: Journal Article
{Title}: Supporting self-determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study.
{Author}: Kúld PB;Frielink N;Schuengel C;Embregts PJCM;
{Journal}: J Appl Res Intellect Disabil
{Volume}: 37
{Issue}: 4
{Year}: 2024 Jul
{Factor}: 2.162
{DOI}: 10.1111/jar.13267
{Abstract}: <B>BACKGROUND: </B>This study aimed to identify perspectives of relatives and healthcare professionals regarding self-determination support for people with severe or profound intellectual and multiple disabilities, highlighting agreements and differences in their viewpoints.<BR><B>METHODS: </B>Following a concept mapping study, online focus group meetings yielded statements on self-determination support from relatives (residential facilities: n = 6, family homes: n = 7) and healthcare professionals (residential facilities: n = 9, family home: n = 5). Participants clustered and rated statements, resulting in four concept maps interpreted by experts (N = 6).<BR><B>RESULTS: </B>The 285 statements were categorised into 5-7 clusters per map, revealing key strategies for self-determination support: communication and choice making (facilitated by aids), sensitivity, familiarity, and collaboration among involved parties.<BR><B>CONCLUSIONS: </B>Each group placed different emphasis on these strategies, highlighting importance of continuous support in their implementation. Future research should prioritise practical implementations of these strategies to enhance self-determination.