{Reference Type}: Journal Article
{Title}: Oral health education for systemic sclerosis patients: A booklet report.
{Author}: Almeida TG;Ferreira ARH;da Silva FS;Chaves CC;Assunção BN;Martins PS;das Dores AS;de Moura RMF;Andrade JA;Santos FPST;Ferreira GA;Calderaro DC;
{Journal}: PEC Innov
{Volume}: 2
{Issue}: 0
{Year}: 2023 Dec
暂无{DOI}: 10.1016/j.pecinn.2023.100154
{Abstract}: <B>UNASSIGNED: </B>Systemic sclerosis (SSc) is a rare chronic autoimmune disease characterized by vascular abnormalities and connective tissue disorders. In 2021, the multidisciplinary team of the university hospital recognized a demand for oral health information among SSc patients. This study aims to describe the development of an SSc oral health booklet and its validation by people with SSc.<BR><B>UNASSIGNED: </B>For the development of the booklet, the project creators employed the action research methodology involving ten stages. SSc patients evaluated the material by filling out a digital form.<BR><B>UNASSIGNED: </B>One hundred and thirty-one people with SSc evaluated the booklet. It received an average score of 9.73 (SD: 0.80) in relevance, 9.82 (SD: 0.47) in explicitness, and 9.49 (SD: 0.93) in aesthetics. The final version was emailed to the participants and posted on social media.<BR><B>UNASSIGNED: </B>This is the first booklet that deeply addresses these issues in Portuguese and constitutes a soft technology to instruct and assist patients with SSc.<BR><B>UNASSIGNED: </B>The production of high-quality educational materials on oral health for patients with SSc is necessary. The online distribution increased its reach and had great importance in the context of the COVID-19 pandemic.