{Reference Type}: Journal Article {Title}: Ethical guidelines for birth defect prevention recommended by experts. {Author}: ; ; {Journal}: Zhong Nan Da Xue Xue Bao Yi Xue Ban {Volume}: 47 {Issue}: 11 {Year}: Nov 2022 28 暂无{DOI}: 10.11817/j.issn.1672-7347.2022.220240 {Abstract}: China's maternal and child health work is still facing many challenges, such as unbalanced development and inadequate services. Since the adjustment of the family planning policy, the proportion of older and more productive sub-parturient women have increased, the risk for birth defects has increased, the demand for newborn safety has further increased, and the work of maternal and child health is facing new challenges. The experts from the medicine, medical ethics, sociology, and other fields put forward the principle of ethical guidance for birth defect prevention after full discussion and continuous revision based on expert proposals, which include the principle of life dignity, love, scientific principle, fair principle, respect for autonomy principle, the principle of beneficence and the principle of good privacy protection. The guideline can serve the birth defect prevention clinical practice, be better to respect and safeguard the legitimate rights and interests of people at childbearing age, eliminate ethics cognition pitfalls of birth defect prevention, and regulate the behavior of birth defect prevention-related ethics.
当前中国妇幼健康工作面临发展不平衡、服务不充分等诸多问题,特别是调整生育政策以来,高龄、多产次产妇比例增加,出生缺陷发生风险增大,新生儿健康需求进一步增加,妇幼健康工作面临新的挑战。然而,目前出生缺陷预防领域缺乏具体的伦理指导原则。来自医学、医学伦理学、社会学等领域的专家结合出生缺陷预防相关的临床经验,在充分讨论和反复修订基础上形成专家建议,提出此出生缺陷预防的伦理指导原则,包括生命尊严原则、关爱原则、科学原则、公平可及原则、尊重自主原则、有利原则、隐私保护原则等,以期服务于出生缺陷预防的临床实践,更好地尊重和维护育龄人员的合法权益,消除出生缺陷预防的伦理认知误区,规范出生缺陷预防相关医疗行为。.