%0 Journal Article
%T Sounding out solutions: using SONAR to connect participants with relevant healthcare resources.
%A McGruder C
%A Tangney K
%A Erwin D
%A Plewa J
%A Onyeneho K
%A Moore R
%A Wise A
%A Topper S
%A Zhou AY
%J J Am Med Inform Assoc
%V 0
%N 0
%D 2024 Aug 2
%M 39093943
%F 7.942
%R 10.1093/jamia/ocae200
%X <B>OBJECTIVE: </B>This article outlines a scalable system developed by the All of Us Research Program's Genetic Counseling Resource to vet a large database of healthcare resources for supporting participants with health-related DNA results.<BR><B>METHODS: </B>After a literature review of established evaluation frameworks for health resources, we created SONAR, a 10-item framework and grading scale for health-related participant-facing resources. SONAR was used to review clinical resources that could be shared with participants during genetic counseling.<BR><B>RESULTS: </B>Application of SONAR shortened resource approval time from 7 days to 1 day. About 256 resources were approved and 8 rejected through SONAR review. Most approved resources were relevant to participants nationwide (60.0%). The most common resource types were related to support groups (20%), cancer care (30.6%), and general educational resources (12.4%). All of Us genetic counselors provided 1161 approved resources during 3005 (38.6%) consults, mainly to local genetic counselors (29.9%), support groups (21.9%), and educational resources (21.0%).<BR><B>CONCLUSIONS: </B>SONAR's systematic method simplifies resource vetting for healthcare providers, easing the burden of identifying and evaluating credible resources. Compiling these resources into a user-friendly database allows providers to share these resources efficiently, better equipping participants to complete follow up actions from health-related DNA results.<BR><B>CONCLUSIONS: </B>The All of Us Genetic Counseling Resource connects participants receiving health-related DNA results with relevant follow-up resources on a high-volume, national level. This has been made possible by the creation of a novel resource database and validation system.