%0 Journal Article
%T Mind the gap: Comparing parents' information needs about impending preterm birth to current clinical practices using a mixed methods approach.
%A van Zijl ACM
%A Obermann-Borst SA
%A Hogeveen M
%A Verweij EJTJ
%A de Vries WB
%A Geurtzen R
%A Labrie NHM
%J PEC Innov
%V 4
%N 0
%D 2024 Dec
%M 38962499
暂无%R 10.1016/j.pecinn.2024.100297
%X <B>UNASSIGNED: </B>To identify parents' information needs about impending very preterm birth and compare these needs to current information practices in the Netherlands.<BR><B>UNASSIGNED: </B>Step 1: We surveyed N = 203 parents of preterm infants to assess their information needs. Data were analyzed using inductive thematic analysis. Step 2a: We collected information resources from hospitals (N = 9 NICUs) and via an online search. These materials were analyzed using deductive thematic analysis. Step 2b: We compared findings from Steps 1-2a.<BR><B>UNASSIGNED: </B>We identified four themes pertaining to parents' information needs: (1) participation in care, (2) emotional wellbeing, (3) experience/success stories, and (4) practical information about prematurity. Clinicians' communicative skills and time were considered prerequisites for optimal information-provision. Notably, hospital resources provided mainly medical information about prematurity with some emphasis on participation in care, while parent associations mainly focused on emotional wellbeing and experience/success stories.<BR><B>UNASSIGNED: </B>While parents demonstrate clear information needs about impending very preterm birth, current information resources satisfy these partially.<BR><B>UNASSIGNED: </B>Our multidisciplinary research team included both scholars and veteran NICU parents. As such, we identified parents' information needs bottom-up. These parent-driven insights will be used to design an innovative, tailored information platform for parents about impending very preterm birth.