关键词: biographical disruption chronic illness cultural disruption end stage kidney disease haemodialysis religion

来  源:   DOI:10.1111/1467-9566.13816

Abstract:
The relationship between religion and health tends to be framed positively. Religion has been found to act as a coping mechanism and source of support in times of ill health. In this paper, we focus on the disruptive effect of chronic illness on religious practice and cultural engagement. Drawing on interviews with ethnic minority adults with end-stage kidney disease, who also identify as religious, we introduce the concept \'cultural disruption\'. While religious practice and belief was found to provide strength and comfort we also found that chronic illness had a disruptive impact on religious and cultural practice that participants attempted to manage. To highlight the potential disruptive effect of chronic illness on religious faith and cultural engagement we identify three elements of cultural disruption-disruption to religious practice, disruption to sense of self and identity and disruption to wellbeing. We conclude by suggesting that understanding and accounting for the potential of cultural disruption when diagnosing, treating and supporting people with chronic illness offers an alternative entry point to the life-worlds of patients who identify as religious and the things that are important to them.
摘要:
宗教与健康之间的关系往往是积极的。在健康状况不佳的时候,宗教被认为是一种应对机制和支持来源。在本文中,我们关注慢性病对宗教实践和文化参与的破坏性影响。根据对患有终末期肾脏疾病的少数民族成年人的采访,他们也认同宗教,我们引入了“文化破坏”的概念。虽然发现宗教实践和信仰提供力量和舒适感,但我们还发现慢性病对参与者试图管理的宗教和文化实践具有破坏性影响。为了强调慢性病对宗教信仰和文化参与的潜在破坏性影响,我们确定了文化中断的三个要素-对宗教实践的破坏,对自我意识和认同感的破坏和对幸福的破坏。最后,我们建议在诊断时理解和解释文化破坏的潜力,治疗和支持患有慢性病的人提供了一个替代的切入点,以生活世界的病人谁认定为宗教和对他们来说是重要的事情。
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