PDF(Pubmed)
Abstract：
BACKGROUND: It is difficult for families to navigate and access services for their children with autism. Barriers to service access are compounded among families from low-resourced backgrounds.
OBJECTIVE: The purpose of our study was to explore the development of an app to facilitate access to services among families of children with autism from low-resourced backgrounds. Our specific aims were to explore feedback from an advisory board about the app and to explore feedback from navigators about the app.
METHODS: Via a multistage codevelopment process, we elicited feedback from 5 key parties: the research team, a community organization, the app development team, the advisory board, and family navigators. Collectively, 36 individuals provided feedback about the development of the app via individual interviews, focus groups, observations, and surveys. The key features of the app included a dashboard showing the service needs of the family and related resources, a messaging feature between the family, the navigator, and the supervisor, and a fidelity checklist and evaluation feature.
RESULTS: The advisory board provided feedback about the app to increase its user-friendliness, include the ability to develop an action plan, improve the identification of needed services, and add information about service providers. Navigators suggested that the app should connect navigators to one another, have a clearer purpose for the notes section, and reflect an easier log-in process. Navigators also wanted training to role-play using the app. After participating in a role play using the app, navigators reported significantly more satisfaction with the app and greater usefulness (P<.001).
CONCLUSIONS: Our work sheds light on the importance of eliciting feedback from end users, especially users who are often overlooked by the research community and app developers. Further, it is important to elicit feedback in multiple ways to improve the app.
OBJECTIVE: The purpose of our study was to explore the development of an app to facilitate access to services among families of children with autism from low-resourced backgrounds. Our specific aims were to explore feedback from an advisory board about the app and to explore feedback from navigators about the app.
METHODS: Via a multistage codevelopment process, we elicited feedback from 5 key parties: the research team, a community organization, the app development team, the advisory board, and family navigators. Collectively, 36 individuals provided feedback about the development of the app via individual interviews, focus groups, observations, and surveys. The key features of the app included a dashboard showing the service needs of the family and related resources, a messaging feature between the family, the navigator, and the supervisor, and a fidelity checklist and evaluation feature.
RESULTS: The advisory board provided feedback about the app to increase its user-friendliness, include the ability to develop an action plan, improve the identification of needed services, and add information about service providers. Navigators suggested that the app should connect navigators to one another, have a clearer purpose for the notes section, and reflect an easier log-in process. Navigators also wanted training to role-play using the app. After participating in a role play using the app, navigators reported significantly more satisfaction with the app and greater usefulness (P<.001).
CONCLUSIONS: Our work sheds light on the importance of eliciting feedback from end users, especially users who are often overlooked by the research community and app developers. Further, it is important to elicit feedback in multiple ways to improve the app.
摘要：
背景：家庭很难为自闭症儿童导航和获得服务。在资源匮乏的家庭中，获得服务的障碍更加复杂。
目的：我们研究的目的是探索开发一款应用程序，以促进资源匮乏的自闭症儿童家庭获得服务。我们的具体目标是探索咨询委员会对该应用程序的反馈，并探索导航员对该应用程序的反馈。
方法：通过多阶段共同发展过程，我们从5个关键方得到了反馈：研究团队，一个社区组织,应用开发团队，咨询委员会,和家庭导航员。总的来说，36个人通过个人访谈提供了有关该应用程序开发的反馈，焦点小组,观察,和调查。该应用程序的主要功能包括显示家庭和相关资源的服务需求的仪表板，家庭之间的信息传递功能，航海家,和主管，以及保真度检查表和评估功能。
结果：顾问委员会提供了有关该应用程序的反馈，以提高其用户友好性，包括制定行动计划的能力，改进对所需服务的识别，并添加有关服务提供商的信息。导航器建议应用程序应该将导航器相互连接，对注释部分有更明确的目的，并反映一个更容易的登录过程。导航员还希望使用该应用程序进行角色扮演培训。使用该应用程序参与角色扮演后，navigators报告对app的满意度明显更高，实用性更高（P<.001）。
结论：我们的工作揭示了获取最终用户反馈的重要性，特别是那些经常被研究社区和应用程序开发人员忽视的用户。Further,重要的是以多种方式获得反馈来改进应用程序。
目的：我们研究的目的是探索开发一款应用程序，以促进资源匮乏的自闭症儿童家庭获得服务。我们的具体目标是探索咨询委员会对该应用程序的反馈，并探索导航员对该应用程序的反馈。
方法：通过多阶段共同发展过程，我们从5个关键方得到了反馈：研究团队，一个社区组织,应用开发团队，咨询委员会,和家庭导航员。总的来说，36个人通过个人访谈提供了有关该应用程序开发的反馈，焦点小组,观察,和调查。该应用程序的主要功能包括显示家庭和相关资源的服务需求的仪表板，家庭之间的信息传递功能，航海家,和主管，以及保真度检查表和评估功能。
结果：顾问委员会提供了有关该应用程序的反馈，以提高其用户友好性，包括制定行动计划的能力，改进对所需服务的识别，并添加有关服务提供商的信息。导航器建议应用程序应该将导航器相互连接，对注释部分有更明确的目的，并反映一个更容易的登录过程。导航员还希望使用该应用程序进行角色扮演培训。使用该应用程序参与角色扮演后，navigators报告对app的满意度明显更高，实用性更高（P<.001）。
结论：我们的工作揭示了获取最终用户反馈的重要性，特别是那些经常被研究社区和应用程序开发人员忽视的用户。Further,重要的是以多种方式获得反馈来改进应用程序。
