PDF(Pubmed)
Abstract：
BACKGROUND: Heart failure (HF) is a significant global clinical and public health challenge, impacting 64.3 million individuals worldwide. To address the scarcity of donor organs, left ventricular assist device (LVAD) implantation has become a crucial intervention for managing end-stage HF, serving as a bridge to heart transplantation or as a destination therapy. Web-based health forums, such as MyLVAD.com, play a vital role as trusted sources of information for individuals with HF symptoms and their caregivers.
OBJECTIVE: We aim to uncover the latent topics within the posts shared by users on the MyLVAD.com website.
METHODS: Using the latent Dirichlet allocation algorithm and a visualization tool, our objective was to uncover latent topics within the posts shared on the MyLVAD.com website. Through the application of topic modeling techniques, we analyzed 459 posts authored by recipients of LVAD and their family members from 2015 to 2023.
RESULTS: This study unveiled 5 prominent themes of concern among patients with LVAD and their family members. These themes included family support (39.5% weight value), encompassing subthemes such as family caregiving roles and emotional or practical support; clothing (23.9% weight value), with subthemes related to comfort, normalcy, and functionality; infection (18.2% weight value), covering driveline infections, prevention, and care; power (12% weight value), involving challenges associated with power dependency; and self-care maintenance, monitoring, and management (6.3% weight value), which included subthemes such as blood tests, monitoring, alarms, and device management.
CONCLUSIONS: These findings contribute to a better understanding of the experiences and needs of patients implanted with LVAD, providing valuable insights for health care professionals to offer tailored support and care. By using latent Dirichlet allocation to analyze posts from the MyLVAD.com forum, this study sheds light on key topics discussed by users, facilitating improved patient care and enhanced patient-provider communication.
OBJECTIVE: We aim to uncover the latent topics within the posts shared by users on the MyLVAD.com website.
METHODS: Using the latent Dirichlet allocation algorithm and a visualization tool, our objective was to uncover latent topics within the posts shared on the MyLVAD.com website. Through the application of topic modeling techniques, we analyzed 459 posts authored by recipients of LVAD and their family members from 2015 to 2023.
RESULTS: This study unveiled 5 prominent themes of concern among patients with LVAD and their family members. These themes included family support (39.5% weight value), encompassing subthemes such as family caregiving roles and emotional or practical support; clothing (23.9% weight value), with subthemes related to comfort, normalcy, and functionality; infection (18.2% weight value), covering driveline infections, prevention, and care; power (12% weight value), involving challenges associated with power dependency; and self-care maintenance, monitoring, and management (6.3% weight value), which included subthemes such as blood tests, monitoring, alarms, and device management.
CONCLUSIONS: These findings contribute to a better understanding of the experiences and needs of patients implanted with LVAD, providing valuable insights for health care professionals to offer tailored support and care. By using latent Dirichlet allocation to analyze posts from the MyLVAD.com forum, this study sheds light on key topics discussed by users, facilitating improved patient care and enhanced patient-provider communication.
摘要：
背景：心力衰竭（HF）是一项重大的全球临床和公共卫生挑战，影响全球6430万人。为了解决捐赠器官的稀缺问题，左心室辅助装置（LVAD）植入已成为治疗终末期HF的关键干预措施，作为心脏移植的桥梁或作为目的地治疗。基于网络的健康论坛，如MyLVAD.com，作为HF症状患者及其护理人员的可靠信息来源，起着至关重要的作用。
目的：我们的目标是发现用户在MyLVAD.com网站上分享的帖子中潜在的主题。
方法：使用潜在的Dirichlet分配算法和可视化工具，我们的目标是在MyLVAD.com网站上分享的帖子中发现潜在的主题。通过应用主题建模技术,我们分析了2015年至2023年LVAD接受者及其家庭成员撰写的459篇帖子.
结果：这项研究揭示了LVAD患者及其家人关注的5个突出主题。这些主题包括家庭支持（39.5%的体重值），涵盖子主题，如家庭护理角色和情感或实际支持；服装(23.9%重量值)，与舒适相关的子主题，正常状态,和功能；感染(18.2%体重值)，涵盖传动系统感染，预防,和护理；功率(12%重量值)，涉及与权力依赖相关的挑战；和自我护理维护，监测,和管理（6.3%重量值），其中包括血液测试等子主题，监测,警报,和设备管理。
结论：这些发现有助于更好地了解植入LVAD患者的经历和需求，为医疗保健专业人员提供有价值的见解，以提供量身定制的支持和护理。通过使用潜在的Dirichlet分配来分析来自MyLVAD.com论坛的帖子，这项研究揭示了用户讨论的关键主题，促进改善患者护理和加强患者与提供者的沟通。
目的：我们的目标是发现用户在MyLVAD.com网站上分享的帖子中潜在的主题。
方法：使用潜在的Dirichlet分配算法和可视化工具，我们的目标是在MyLVAD.com网站上分享的帖子中发现潜在的主题。通过应用主题建模技术,我们分析了2015年至2023年LVAD接受者及其家庭成员撰写的459篇帖子.
结果：这项研究揭示了LVAD患者及其家人关注的5个突出主题。这些主题包括家庭支持（39.5%的体重值），涵盖子主题，如家庭护理角色和情感或实际支持；服装(23.9%重量值)，与舒适相关的子主题，正常状态,和功能；感染(18.2%体重值)，涵盖传动系统感染，预防,和护理；功率(12%重量值)，涉及与权力依赖相关的挑战；和自我护理维护，监测,和管理（6.3%重量值），其中包括血液测试等子主题，监测,警报,和设备管理。
结论：这些发现有助于更好地了解植入LVAD患者的经历和需求，为医疗保健专业人员提供有价值的见解，以提供量身定制的支持和护理。通过使用潜在的Dirichlet分配来分析来自MyLVAD.com论坛的帖子，这项研究揭示了用户讨论的关键主题，促进改善患者护理和加强患者与提供者的沟通。
