PDF(Pubmed)
Abstract：
UNASSIGNED: Children\'s Health Ireland (CHI), who govern and operate acute paediatric services for the greater Dublin area, are also the client for the new children\'s hospital project which will be Ireland\'s first fully digital hospital. Design, development and implementation of digital solutions has been prioritised by the National Strategy for Children\'s Nursing to transform and accelerate nurse-led services.
UNASSIGNED: The aim of this phase of a larger study was to explore the perspectives and opinions of key stakeholders on the requirements, benefits, and challenges for a bespoke patient portal, with a specific focus on the ANP-led Neurosurgical Service and children and young people with hydrocephalus.
UNASSIGNED: Interviews and focus groups were held online, and data were recorded and transcribed verbatim. Twenty-three participants across eight sites were interviewed including parents, healthcare professionals, experts and management/administrators. Data were analysed using Braun and Clarke\'s (2006) framework.
UNASSIGNED: Four key findings and considerations were identified in relation to patient portals in general and their interoperability with Electronic Health Records, as well as a bespoke patient portal for children and young people with hydrocephalus.
UNASSIGNED: The availability of a patient portal for children and young people with hydrocephalus would be hugely advantageous to their parents, the ANP led nursing service, and healthcare professionals in both the neurosurgical service at CHI and at regional healthcare organisations as well as for administration, research, and reports. More timely access to health data as well as a consistent log of information and communications between patients and healthcare professionals, would be more efficient and effective than current practices.The augmented ANP-led Neurosurgical Nursing Service at CHI will act as a pilot project from which other nurse-led digital patient services can learn from.
UNASSIGNED: This study was conducted between September 2022 and June 2023. It was registered in Trinity College Dublin, Ireland.
UNASSIGNED: A study exploring requirements, benefits, & challenges for an interoperable patient portal in an ANP led Service for children with hydrocephalus.
UNASSIGNED: The aim of this phase of a larger study was to explore the perspectives and opinions of key stakeholders on the requirements, benefits, and challenges for a bespoke patient portal, with a specific focus on the ANP-led Neurosurgical Service and children and young people with hydrocephalus.
UNASSIGNED: Interviews and focus groups were held online, and data were recorded and transcribed verbatim. Twenty-three participants across eight sites were interviewed including parents, healthcare professionals, experts and management/administrators. Data were analysed using Braun and Clarke\'s (2006) framework.
UNASSIGNED: Four key findings and considerations were identified in relation to patient portals in general and their interoperability with Electronic Health Records, as well as a bespoke patient portal for children and young people with hydrocephalus.
UNASSIGNED: The availability of a patient portal for children and young people with hydrocephalus would be hugely advantageous to their parents, the ANP led nursing service, and healthcare professionals in both the neurosurgical service at CHI and at regional healthcare organisations as well as for administration, research, and reports. More timely access to health data as well as a consistent log of information and communications between patients and healthcare professionals, would be more efficient and effective than current practices.The augmented ANP-led Neurosurgical Nursing Service at CHI will act as a pilot project from which other nurse-led digital patient services can learn from.
UNASSIGNED: This study was conducted between September 2022 and June 2023. It was registered in Trinity College Dublin, Ireland.
UNASSIGNED: A study exploring requirements, benefits, & challenges for an interoperable patient portal in an ANP led Service for children with hydrocephalus.
摘要：
■爱尔兰儿童健康（CHI），为大都柏林地区管理和经营急性儿科服务的人，也是新儿童医院项目的客户，该项目将是爱尔兰第一家全数字化医院。设计,国家儿童护理战略优先考虑数字解决方案的开发和实施，以转变和加速护士主导的服务。
■这一阶段的大型研究的目的是探索关键利益相关者对需求的观点和意见，好处,以及定制患者门户的挑战，特别关注由ANP领导的神经外科服务以及患有脑积水的儿童和年轻人。
■访谈和焦点小组在线举行，并逐字记录和转录数据。八个地点的23名参与者接受了采访，其中包括父母，医疗保健专业人员,专家和管理/管理员。使用Braun和Clarke\(2006)的框架对数据进行了分析。
确定了与患者门户总体及其与电子健康记录的互操作性相关的四个关键发现和考虑因素，以及为患有脑积水的儿童和年轻人定制的患者门户。
为患有脑积水的儿童和年轻人提供患者入口对他们的父母来说是非常有利的，ANP领导的护理服务，以及CHI神经外科服务和区域医疗保健组织以及行政管理部门的医疗保健专业人员，研究,和报告。更及时地访问健康数据以及患者和医疗保健专业人员之间一致的信息和通信日志，将比目前的做法更有效。CHI的增强ANP主导的神经外科护理服务将作为一个试点项目，其他护士主导的数字患者服务可以从中学习。
■这项研究是在2022年9月至2023年6月之间进行的。它在都柏林三一学院注册，爱尔兰。
■一项探索需求的研究，好处,ANP领导的脑积水儿童服务中可互操作的患者门户面临的挑战。
■这一阶段的大型研究的目的是探索关键利益相关者对需求的观点和意见，好处,以及定制患者门户的挑战，特别关注由ANP领导的神经外科服务以及患有脑积水的儿童和年轻人。
■访谈和焦点小组在线举行，并逐字记录和转录数据。八个地点的23名参与者接受了采访，其中包括父母，医疗保健专业人员,专家和管理/管理员。使用Braun和Clarke\(2006)的框架对数据进行了分析。
确定了与患者门户总体及其与电子健康记录的互操作性相关的四个关键发现和考虑因素，以及为患有脑积水的儿童和年轻人定制的患者门户。
为患有脑积水的儿童和年轻人提供患者入口对他们的父母来说是非常有利的，ANP领导的护理服务，以及CHI神经外科服务和区域医疗保健组织以及行政管理部门的医疗保健专业人员，研究,和报告。更及时地访问健康数据以及患者和医疗保健专业人员之间一致的信息和通信日志，将比目前的做法更有效。CHI的增强ANP主导的神经外科护理服务将作为一个试点项目，其他护士主导的数字患者服务可以从中学习。
■这项研究是在2022年9月至2023年6月之间进行的。它在都柏林三一学院注册，爱尔兰。
■一项探索需求的研究，好处,ANP领导的脑积水儿童服务中可互操作的患者门户面临的挑战。
