关键词: clinical characteristics genital vitiligo quality of life sexual health

来  源:   DOI:10.1177/12034754241269200

Abstract:
UNASSIGNED: The understanding of genital vitiligo among Thai individuals is limited.
UNASSIGNED: This study evaluated the clinical presentation, quality of life, and sexual health consequences of genital vitiligo.
UNASSIGNED: This cross-sectional, questionnaire-based study involving vitiligo patients aged 18 years or older with past or present genital involvement was conducted at Siriraj Hospital. It also measured aspects of sexual health and quality of life.
UNASSIGNED: The mean age of the 41 participants was 48.2 years, and 24 (58.5%) were males. All participants presented with genital vitiligo. In males, the penile shaft (45.8%), scrotum (45.8%), and glans (33.3%) were predominantly affected. In females, the mons pubis (64.7%), labia majora (23.5%), and labia minora (23.5%) were frequently involved. Both sexes reported afflictions in the pubic area (41.5%), inguinal region (36.6%), buttocks (34.1%), and oral mucosa (34.1%). Itching was the principal symptom in 26.8% of the patients. The median Dermatology Life Quality Index scores were significantly different (females 6, males 3.5). Compared with their male counterparts, females exhibited lower self-esteem (41.2% vs 29.2%), greater apprehension about marriage (11.8% vs 8.3%), and embarrassment about sexual activities (23.5% vs 16.7%). Remarkably, 65.9% of patients had not discussed their genital vitiligo with their doctors, and 51.2% of physicians had not inquired about or examined for genital involvement.
UNASSIGNED: Genital vitiligo adversely impacts quality of life and self-esteem, particularly among female patients. The lack of discourse between patients and physicians highlights a need for increased awareness and proactive clinical investigations to enhance patient care and satisfaction.
摘要:
泰国人对生殖器白癜风的了解有限。
这项研究评估了临床表现,生活质量,生殖器白癜风的性健康后果。
这个横截面,在Siriraj医院进行了一项以问卷调查为基础的研究,该研究涉及18岁或18岁以上有过去或现在生殖器受累的白癜风患者.它还测量了性健康和生活质量的各个方面。
41名参与者的平均年龄为48.2岁,男性24人(58.5%)。所有参与者都出现生殖器白癜风。在男性中,阴茎轴(45.8%),阴囊(45.8%),和龟头(33.3%)主要受影响。在女性中,蒙斯(64.7%),大阴唇(23.5%),小阴唇(23.5%)经常受累。男女都报告了耻骨区的痛苦(41.5%),腹股沟区(36.6%),臀部(34.1%),和口腔粘膜(34.1%)。26.8%的患者以瘙痒为主要症状。皮肤病学生活质量指数评分中位数有显著差异(女性6,男性3.5)。与男性相比,女性的自尊心较低(41.2%vs29.2%),对婚姻的担忧增加(11.8%对8.3%),以及对性活动的尴尬(23.5%对16.7%)。值得注意的是,65.9%的患者没有与医生讨论过生殖器白癜风,51.2%的医生没有询问或检查生殖器受累情况。
生殖器白癜风对生活质量和自尊产生不利影响,尤其是女性患者。患者和医生之间缺乏交流,这凸显了提高意识和积极临床调查以增强患者护理和满意度的必要性。
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