Abstract：
UNASSIGNED: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child\'s disability. There is a significant lack of research on parents\' lived experiences of chronic sorrow, which limits our ability to understand parents\' needs and provide proper support.
UNASSIGNED: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with six parents of severely disabled children.
UNASSIGNED: In the literature on chronic sorrow, an important aspect has been consistently overlooked: the particular position of being a parent, experiencing an awareness of being ultimately responsible for their children. The analysis revealed how this awareness, experienced as a deeply felt ethical commitment, unconditional, largely in isolation, and without a limit in time, shaped the experience of chronic sorrow. Because of this awareness, the parents experienced themselves facing a Herculean task of navigating their intricate emotions while struggling to maintain their ability to function.
UNASSIGNED: By revealing the importance of considering the unique parental position, the study enriches the concept of chronic sorrow, simultaneously offering insights into what it means to be a parent of a disabled child. These insights can improve care professionals\' responsiveness to parental needs.
UNASSIGNED: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with six parents of severely disabled children.
UNASSIGNED: In the literature on chronic sorrow, an important aspect has been consistently overlooked: the particular position of being a parent, experiencing an awareness of being ultimately responsible for their children. The analysis revealed how this awareness, experienced as a deeply felt ethical commitment, unconditional, largely in isolation, and without a limit in time, shaped the experience of chronic sorrow. Because of this awareness, the parents experienced themselves facing a Herculean task of navigating their intricate emotions while struggling to maintain their ability to function.
UNASSIGNED: By revealing the importance of considering the unique parental position, the study enriches the concept of chronic sorrow, simultaneously offering insights into what it means to be a parent of a disabled child. These insights can improve care professionals\' responsiveness to parental needs.
摘要：
■大多数有残疾孩子的父母经历慢性悲伤，其特点是反复感到悲伤和失去与孩子的残疾有关。对父母长期悲伤的生活经历的研究明显缺乏，这限制了我们理解父母需求和提供适当支持的能力。
■解释性现象学分析（IPA）是根据对六名严重残疾儿童父母的深入访谈进行的。
■在关于慢性悲伤的文献中，一个重要的方面一直被忽视:作为父母的特殊地位，体验到对孩子最终负责的意识。分析揭示了这种意识，经历了深刻的道德承诺，无条件,在很大程度上是孤立的，没有时间限制，塑造了慢性悲伤的经历。因为这种意识，父母们经历了自己面临着一项艰巨的任务，即在努力保持自己的功能能力的同时，调整自己复杂的情绪。
■通过揭示考虑独特父母地位的重要性，这项研究丰富了慢性悲伤的概念，同时提供对作为残疾儿童的父母意味着什么的见解。这些见解可以提高护理专业人员对父母需求的反应能力。
■解释性现象学分析（IPA）是根据对六名严重残疾儿童父母的深入访谈进行的。
■在关于慢性悲伤的文献中，一个重要的方面一直被忽视:作为父母的特殊地位，体验到对孩子最终负责的意识。分析揭示了这种意识，经历了深刻的道德承诺，无条件,在很大程度上是孤立的，没有时间限制，塑造了慢性悲伤的经历。因为这种意识，父母们经历了自己面临着一项艰巨的任务，即在努力保持自己的功能能力的同时，调整自己复杂的情绪。
■通过揭示考虑独特父母地位的重要性，这项研究丰富了慢性悲伤的概念，同时提供对作为残疾儿童的父母意味着什么的见解。这些见解可以提高护理专业人员对父母需求的反应能力。
