Abstract：
OBJECTIVE: Middle-aged women (i.e., aged 40-65 years) who live with, through and beyond breast cancer (survivors) are an under-researched population, particularly within an Australian context. The unmet needs reported within this population include fatigue, psychological distress, body image concerns, early-onset menopause, and a lack of information on these issues. This study explores how the experiences of breast cancer survivorship impact the lives of Australian middle-aged women.
METHODS: Qualitative analysis of written comments in an open text field of a survey completed by 644 women reporting breast cancer in the middle-aged cohort of the Australian Longitudinal Study of Women\'s Health gathered between 1996 and 2013. Data was collected from any participants who reported breast cancer in any survey. Researchers conducted a thematic analysis using consensus coding on data and identified key themes.
METHODS: Any data where participants described their experiences of breast cancer survivorship.
RESULTS: This cohort reported a unique experience of breast cancer survivorship due to their age group. Analysis developed the following themes: the middle-aged context of breast cancer; care and support, body changes, overcoming fears and maintaining balance; and finding a \'new normal\'.
CONCLUSIONS: Breast cancer survivorship is a diverse experience. For many it involves chronic limitations and challenges. Investigation and application of survivorship care plans in Australia could benefit breast cancer survivors by including multidisciplinary health professionals in their care. Unmet needs and psychological distress were described by participants rather than biomedical concerns. Further recommendations include development of online support groups providing access to rehabilitation professionals, especially for otherwise isolated rural women.
METHODS: Qualitative analysis of written comments in an open text field of a survey completed by 644 women reporting breast cancer in the middle-aged cohort of the Australian Longitudinal Study of Women\'s Health gathered between 1996 and 2013. Data was collected from any participants who reported breast cancer in any survey. Researchers conducted a thematic analysis using consensus coding on data and identified key themes.
METHODS: Any data where participants described their experiences of breast cancer survivorship.
RESULTS: This cohort reported a unique experience of breast cancer survivorship due to their age group. Analysis developed the following themes: the middle-aged context of breast cancer; care and support, body changes, overcoming fears and maintaining balance; and finding a \'new normal\'.
CONCLUSIONS: Breast cancer survivorship is a diverse experience. For many it involves chronic limitations and challenges. Investigation and application of survivorship care plans in Australia could benefit breast cancer survivors by including multidisciplinary health professionals in their care. Unmet needs and psychological distress were described by participants rather than biomedical concerns. Further recommendations include development of online support groups providing access to rehabilitation professionals, especially for otherwise isolated rural women.
摘要：
目标：中年妇女(即，40-65岁)与人住在一起，乳腺癌（幸存者）是一个研究不足的人群，特别是在澳大利亚的背景下。该人群中报告的未满足需求包括疲劳，心理困扰,身体形象问题，早发更年期,缺乏关于这些问题的信息。这项研究探讨了乳腺癌生存的经历如何影响澳大利亚中年女性的生活。
方法：在1996年至2013年收集的澳大利亚妇女健康纵向研究的中年队列中，由644名报告乳腺癌的妇女完成的调查的公开文本字段中的书面评论的定性分析。数据是从任何调查中报告乳腺癌的参与者那里收集的。研究人员对数据使用共识编码进行了主题分析，并确定了关键主题。
方法：参与者描述其乳腺癌生存经历的任何数据。
结果：该队列报告了由于其年龄组的乳腺癌生存的独特经历。分析提出了以下主题：乳腺癌的中年背景；护理和支持，身体变化,克服恐惧，保持平衡；找到“新常态”。
结论：乳腺癌生存是一种多样化的经历。对于许多人来说，它涉及长期的限制和挑战。澳大利亚生存护理计划的调查和应用可以通过将多学科的卫生专业人员纳入其护理中来使乳腺癌幸存者受益。参与者描述了未满足的需求和心理困扰，而不是生物医学问题。进一步的建议包括发展在线支持小组，为康复专业人员提供服务，特别是对于其他孤立的农村妇女。
方法：在1996年至2013年收集的澳大利亚妇女健康纵向研究的中年队列中，由644名报告乳腺癌的妇女完成的调查的公开文本字段中的书面评论的定性分析。数据是从任何调查中报告乳腺癌的参与者那里收集的。研究人员对数据使用共识编码进行了主题分析，并确定了关键主题。
方法：参与者描述其乳腺癌生存经历的任何数据。
结果：该队列报告了由于其年龄组的乳腺癌生存的独特经历。分析提出了以下主题：乳腺癌的中年背景；护理和支持，身体变化,克服恐惧，保持平衡；找到“新常态”。
结论：乳腺癌生存是一种多样化的经历。对于许多人来说，它涉及长期的限制和挑战。澳大利亚生存护理计划的调查和应用可以通过将多学科的卫生专业人员纳入其护理中来使乳腺癌幸存者受益。参与者描述了未满足的需求和心理困扰，而不是生物医学问题。进一步的建议包括发展在线支持小组，为康复专业人员提供服务，特别是对于其他孤立的农村妇女。
