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Abstract：
BACKGROUND: Patient-reported outcomes are relevant in clinical practice showing patient benefits, supporting clinicians\' decision-making, and contributing to the delivery of high standards of care. Digital monitoring of patient-reported outcomes is still rare. The Patient Benefit Index (PBI) measures benefits and goals from patients\' views and may be relevant for regular documentation and shared decision-making.
OBJECTIVE: This study aimed to develop electronic versions of the PBI to examine their feasibility and acceptability in clinical practice for patients with psoriasis.
METHODS: We developed an app and a web version of the existing, valid PBI using focus groups and cognitive debriefings with patients before conducting a quantitative survey on its feasibility and acceptability. Conduction took part in an outpatient dermatology care unit in Germany. Descriptive and subgroup analyses were conducted.
RESULTS: A total of 139 patients completed the electronic PBIs (ePBIs) and took part in the survey. The ePBI was understandable (n=129-137, 92.8%-98.6%) and feasible, for example, easy to read (n=135, 97.1%) and simple to handle (n=137, 98.5%). Acceptability was also high, for example, patients can imagine using and discussing the ePBI data in practice (n=91, 65.5%) and documenting it regularly (n=88, 63.3%). They believe it could support treatment decisions (n=118, 84.9%) and improve communication with their physician (n=112, 81.3%). They can imagine filling in electronic questionnaires regularly (n=118, 84.9%), even preferring electronic over paper versions (n=113, 81.2%). Older and less educated people show less feasibility, but the latter expected the relationship with their physician to improve and would be more willing to invest time or effort.
CONCLUSIONS: The app and web version of the PBI are usable and acceptable for patients offering comprehensive documentation and patient participation in practice. An implementation strategy should consider patients\' needs, barriers, and facilitators but also physicians\' attitudes and requirements from the health care system.
OBJECTIVE: This study aimed to develop electronic versions of the PBI to examine their feasibility and acceptability in clinical practice for patients with psoriasis.
METHODS: We developed an app and a web version of the existing, valid PBI using focus groups and cognitive debriefings with patients before conducting a quantitative survey on its feasibility and acceptability. Conduction took part in an outpatient dermatology care unit in Germany. Descriptive and subgroup analyses were conducted.
RESULTS: A total of 139 patients completed the electronic PBIs (ePBIs) and took part in the survey. The ePBI was understandable (n=129-137, 92.8%-98.6%) and feasible, for example, easy to read (n=135, 97.1%) and simple to handle (n=137, 98.5%). Acceptability was also high, for example, patients can imagine using and discussing the ePBI data in practice (n=91, 65.5%) and documenting it regularly (n=88, 63.3%). They believe it could support treatment decisions (n=118, 84.9%) and improve communication with their physician (n=112, 81.3%). They can imagine filling in electronic questionnaires regularly (n=118, 84.9%), even preferring electronic over paper versions (n=113, 81.2%). Older and less educated people show less feasibility, but the latter expected the relationship with their physician to improve and would be more willing to invest time or effort.
CONCLUSIONS: The app and web version of the PBI are usable and acceptable for patients offering comprehensive documentation and patient participation in practice. An implementation strategy should consider patients\' needs, barriers, and facilitators but also physicians\' attitudes and requirements from the health care system.
摘要：
背景：患者报告的结果与临床实践相关，显示患者的益处，支持临床医生的决策，并有助于提供高标准的护理。对患者报告的结果进行数字监测仍然很少见。患者获益指数(PBI)衡量患者观点的获益和目标，可能与定期记录和共同决策相关。
目的：本研究旨在开发PBI的电子版，以检查其在银屑病患者临床实践中的可行性和可接受性。
方法：我们开发了一个应用程序，在对其可行性和可接受性进行定量调查之前，使用焦点小组和对患者的认知汇报进行有效的PBI。Conduction参加了德国的门诊皮肤科护理室。进行描述性和亚组分析。
结果：共有139名患者完成了电子PBIs（ePBIs）并参与了调查。ePBI是可以理解的(n=129-137，92.8%-98.6%)和可行的，例如,易于阅读（n=135，97.1％）和简单处理（n=137，98.5％）。可接受性也很高，例如,患者可以想象在实践中使用和讨论ePBI数据(n=91,65.5%)并定期记录(n=88,63.3%).他们认为它可以支持治疗决策（n=118，84.9％）并改善与医生的沟通（n=112，81.3％）。他们可以想象定期填写电子问卷(n=118，84.9%)，甚至更喜欢电子版本而不是纸质版本(n=113，81.2%)。年龄较大和受教育程度较低的人表现出更小的可行性，但是后者希望与医生的关系得到改善，并且更愿意投入时间或精力。
结论：PBI的应用程序和网络版本对于提供全面文档和患者参与实践的患者是可用和可接受的。实施策略应考虑患者的需求，障碍,和促进者，还有医生的态度和医疗保健系统的要求。
目的：本研究旨在开发PBI的电子版，以检查其在银屑病患者临床实践中的可行性和可接受性。
方法：我们开发了一个应用程序，在对其可行性和可接受性进行定量调查之前，使用焦点小组和对患者的认知汇报进行有效的PBI。Conduction参加了德国的门诊皮肤科护理室。进行描述性和亚组分析。
结果：共有139名患者完成了电子PBIs（ePBIs）并参与了调查。ePBI是可以理解的(n=129-137，92.8%-98.6%)和可行的，例如,易于阅读（n=135，97.1％）和简单处理（n=137，98.5％）。可接受性也很高，例如,患者可以想象在实践中使用和讨论ePBI数据(n=91,65.5%)并定期记录(n=88,63.3%).他们认为它可以支持治疗决策（n=118，84.9％）并改善与医生的沟通（n=112，81.3％）。他们可以想象定期填写电子问卷(n=118，84.9%)，甚至更喜欢电子版本而不是纸质版本(n=113，81.2%)。年龄较大和受教育程度较低的人表现出更小的可行性，但是后者希望与医生的关系得到改善，并且更愿意投入时间或精力。
结论：PBI的应用程序和网络版本对于提供全面文档和患者参与实践的患者是可用和可接受的。实施策略应考虑患者的需求，障碍,和促进者，还有医生的态度和医疗保健系统的要求。
