关键词: dementia information communication technology pandemic post-diagnostic support remote service delivery support services

来  源:   DOI:10.1177/14713012241272906

Abstract:
BACKGROUND: The remote delivery of dementia-related support services by information communication technology, defined as any hardware or software, including the telephone and videoconferencing software, increased during the coronavirus pandemic. To guide the future use of information communication technology, this study explored the experiences of delivering and accessing social care and support services during the pandemic in the UK.
METHODS: Remote semi-structured interviews with social care and support providers, people with dementia and family carers were conducted between May-December 2022. Topic guides were co-developed with two public advisors (one former family carer, one person with dementia) and garnered information on delivering and accessing services during the pandemic. Audio recordings were transcribed verbatim. Employing a mixture of inductive and deductive analytic approaches, a thematic analysis was conducted.
RESULTS: Twenty-one interviews (n = 14 social care and support providers; n = 6 family carers; n = 2 people with dementia) were conducted. Three themes were generated: adapting to changing circumstances; responding to unmet needs by information communication technology and information communication technology should be a tool, not the default. Social care and support providers\' creativity and motivation facilitated the adoption of information communication technology, however, available resources and guidance varied. While some people with dementia and family carers benefitted from accessing services by information communication technology to address some needs, the format was not suitable for everyone.
CONCLUSIONS: Beyond the coronavirus pandemic, the use of information communication technology within service delivery needs to be carefully considered, to avoid disenfranchising some people with dementia and family carers, while empowering people with the option of how to access services. Digital training and guidelines advising the use of information communication technology within service delivery may facilitate its improved use during the current landscape, and amidst future pandemics.
摘要:
背景:通过信息通信技术远程提供与痴呆症相关的支持服务,定义为任何硬件或软件,包括电话和视频会议软件,在冠状病毒大流行期间增加。为指导今后信息通信技术的运用,这项研究探讨了在英国大流行期间提供和获得社会护理和支持服务的经验.
方法:与社会护理和支持提供者的远程半结构化访谈,我们在2022年5月至12月期间对痴呆症患者和家庭照顾者进行了研究.与两名公共顾问(一名前家庭照顾者,一名痴呆症患者),并获得了在大流行期间提供和获得服务的信息。录音被逐字转录。采用归纳和演绎分析方法的混合,进行了专题分析。
结果:进行了21次访谈(n=14个社会关怀和支持提供者;n=6个家庭照顾者;n=2个痴呆症患者)。产生了三个主题:适应不断变化的环境;通过信息通信技术应对未满足的需求,信息通信技术应该是一种工具,不是默认值。社会护理和支持提供者的创造力和动机促进了信息通信技术的采用,然而,可用的资源和指导各不相同。虽然一些痴呆症患者和家庭照顾者受益于通过信息通信技术获得服务以满足某些需求,格式并不适合所有人。
结论:除了冠状病毒大流行,需要仔细考虑在服务交付中使用信息通信技术,为了避免剥夺一些痴呆症患者和家庭照顾者的权利,同时赋予人们如何访问服务的选择。在服务交付中建议使用信息通信技术的数字培训和准则可能有助于在当前形势下改善其使用情况,在未来的大流行中。
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