PDF(Pubmed)
Abstract：
UNASSIGNED: Self-care technologies may support patients with multiple sclerosis (MS) in their everyday disease management by enabling self-monitoring of various health indicators, such as symptom levels and physical activity levels. The aim of this study was to assess the usefulness of tracking self-selected MS- and health-related measures via a digital self-tracking tool for people with MS (PwMS) over a period of six weeks.
UNASSIGNED: An initial development phase was followed by a six-week testing phase with 58 test participants. The evaluation phase followed a sequential, exploratory mixed-methods design, consisting of 14 interviews with test participants during the testing phase, followed by a survey of all participants after the testing phase to confirm and elaborate on the interview findings. The interview data were analyzed through a five-step thematic analysis, and the survey data were analyzed descriptively.
UNASSIGNED: The results of the mixed-methods study can be summarized in the following findings: (1) Use of the self-tracking tool assisted users in clarifying patterns regarding their symptoms, physical activity, sleep quality and emotional well-being. (2) Tracking physical activity and, to some extent, sleep had a motivational effect on participants in relation to increasing activity and/or changing habits. (3) Data quality/accuracy constitutes an important criterion for considering the self-tracking tool relevant. (4) The self-tracking tool may support dialogue between patients and healthcare professionals, and/or it may potentially play a role in peer-to-peer support.
UNASSIGNED: The results of the present study indicate that the self-tracking of symptoms, sleep, physical activity and other measures may contribute positively to everyday self-management among PwMS. Professional support in interpreting and acting upon the data should be considered.
UNASSIGNED: An initial development phase was followed by a six-week testing phase with 58 test participants. The evaluation phase followed a sequential, exploratory mixed-methods design, consisting of 14 interviews with test participants during the testing phase, followed by a survey of all participants after the testing phase to confirm and elaborate on the interview findings. The interview data were analyzed through a five-step thematic analysis, and the survey data were analyzed descriptively.
UNASSIGNED: The results of the mixed-methods study can be summarized in the following findings: (1) Use of the self-tracking tool assisted users in clarifying patterns regarding their symptoms, physical activity, sleep quality and emotional well-being. (2) Tracking physical activity and, to some extent, sleep had a motivational effect on participants in relation to increasing activity and/or changing habits. (3) Data quality/accuracy constitutes an important criterion for considering the self-tracking tool relevant. (4) The self-tracking tool may support dialogue between patients and healthcare professionals, and/or it may potentially play a role in peer-to-peer support.
UNASSIGNED: The results of the present study indicate that the self-tracking of symptoms, sleep, physical activity and other measures may contribute positively to everyday self-management among PwMS. Professional support in interpreting and acting upon the data should be considered.
摘要：
自我护理技术可以通过对各种健康指标进行自我监测来支持多发性硬化症（MS）患者的日常疾病管理，如症状水平和身体活动水平。这项研究的目的是评估通过数字自我跟踪工具在六周内对MS患者（PwMS）进行自我选择的MS和健康相关措施的有用性。
■最初的开发阶段是为期六周的测试阶段，有58名测试参与者。评估阶段遵循一个顺序，探索性混合方法设计，包括在测试阶段与测试参与者的14次访谈，随后在测试阶段后对所有参与者进行调查，以确认并详细说明访谈结果。访谈数据通过五步主题分析进行分析，并对调查数据进行描述性分析。
■混合方法研究的结果可以总结为以下发现：（1）使用自我跟踪工具帮助用户澄清有关其症状的模式，身体活动,睡眠质量和情绪健康。（2）跟踪身体活动和，在某种程度上,睡眠对参与者的活动增加和/或习惯改变有激励作用.（3）数据质量/准确性构成了考虑自跟踪工具相关的重要标准。（4）自我跟踪工具可以支持患者和医疗保健专业人员之间的对话，和/或它可能潜在地在对等支持中发挥作用。
■本研究的结果表明，症状的自我追踪，睡眠,体力活动和其他措施可能对PwMS的日常自我管理有积极作用。应考虑在解释数据和对数据采取行动方面提供专业支持。
■最初的开发阶段是为期六周的测试阶段，有58名测试参与者。评估阶段遵循一个顺序，探索性混合方法设计，包括在测试阶段与测试参与者的14次访谈，随后在测试阶段后对所有参与者进行调查，以确认并详细说明访谈结果。访谈数据通过五步主题分析进行分析，并对调查数据进行描述性分析。
■混合方法研究的结果可以总结为以下发现：（1）使用自我跟踪工具帮助用户澄清有关其症状的模式，身体活动,睡眠质量和情绪健康。（2）跟踪身体活动和，在某种程度上,睡眠对参与者的活动增加和/或习惯改变有激励作用.（3）数据质量/准确性构成了考虑自跟踪工具相关的重要标准。（4）自我跟踪工具可以支持患者和医疗保健专业人员之间的对话，和/或它可能潜在地在对等支持中发挥作用。
■本研究的结果表明，症状的自我追踪，睡眠,体力活动和其他措施可能对PwMS的日常自我管理有积极作用。应考虑在解释数据和对数据采取行动方面提供专业支持。
