关键词: cleft lip and palate mobile applications nasoalveolar molding

来  源:   DOI:10.1177/10556656241271721

Abstract:
OBJECTIVE: Development and evaluation of a mobile application for remote monitoring and guidance of pediatric patients diagnosed with cleft lip and/or palate (CL ± P) and their caregivers.
METHODS: This is a pilot cross-sectional, applied, and quantitative study.
METHODS: The study was conducted in two tertiary care treatment centers in Brazil.
METHODS: The participants included 20 caregivers and infants undergoing treatment with nasoalveolar molding (NAM) for CL ± P.
METHODS: The intervention involved using the TeleCleft mobile application for remote monitoring and guidance of caregivers and infants during NAM treatment.
METHODS: The main outcome measures included usability and satisfaction of users with the TeleCleft application.
RESULTS: The results showed high usability and satisfaction ratings among users of the TeleCleft application. Most participants found remote monitoring to be effective and expressed positive opinions about its convenience and usefulness.
CONCLUSIONS: TeleCleft could be a viable tool for remote monitoring and guidance, reducing the need for patients and caregivers to travel to treatment centers, which could potentially alleviate the burden of care faced by families during the journey of CL ± P treatment.
摘要:
目的:开发和评估用于远程监测和指导诊断为唇裂和/或腭裂(CL±P)的儿科患者及其护理人员的移动应用程序。
方法:这是一个试点的横截面,应用,和定量研究。
方法:该研究在巴西的两个三级护理中心进行。
方法:参与者包括20名护理人员和接受鼻肺泡成型(NAM)治疗CL±P的婴儿。
方法:干预涉及使用TeleCleft移动应用程序在NAM治疗期间对护理人员和婴儿进行远程监测和指导。
方法:主要结果指标包括用户对TeleCleft应用程序的可用性和满意度。
结果:结果显示了TeleCleft应用程序用户的高可用性和满意度评分。大多数与会者认为远程监测是有效的,并对其便利性和实用性表示了积极的意见。
结论:TeleCleft可能是远程监控和指导的可行工具,减少患者和护理人员前往治疗中心的需要,这可能会减轻家庭在CL±P治疗过程中面临的护理负担。
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