关键词: informed consent multimedia tools patient-centered approach pediatrics shared decision making surgery surgical discussion

来  源:   DOI:10.3389/fped.2024.1357462   PDF(Pubmed)

Abstract:
Pediatric spine surgery is a high complexity procedure that can carry risks ranging from pain to neurological damage, and even death. This comprehensive mini review explores current best practice obtaining valid and meaningful informed consent (IC) prior to pediatric spinal surgery, including modalities that support effective comprehension and understanding. An evaluation of the literature was performed to explore understanding of surgical IC by patients or their guardians and the role of multimedia tools as a possible facilitator. The evidence discussed throughout this review, based on legal and ethical perspectives, reveals challenges faced by patients and guardians in achieving comprehension and understanding, especially when facing stressful medical situations. In this context, the introduction of multimedia tools emerges as a patient-centered strategy to help improve comprehension and decrease pre-operative uncertainty. This review highlights the need for a tailored approach in obtaining IC for pediatric patients and suggests a potential role of shared decision-making (SDM) in the surgical discussion process.
摘要:
小儿脊柱手术是一种高度复杂的手术,可能会带来从疼痛到神经损伤的风险,甚至死亡。这项全面的小型审查探讨了在小儿脊柱手术之前获得有效且有意义的知情同意书(IC)的当前最佳实践。包括支持有效理解和理解的方式。对文献进行了评估,以探索患者或其监护人对外科IC的理解以及多媒体工具作为可能的促进者的作用。在整个审查中讨论的证据,基于法律和伦理的观点,揭示了患者和监护人在实现理解和理解方面面临的挑战,尤其是面对紧张的医疗情况时。在这种情况下,多媒体工具的引入成为一种以患者为中心的策略,有助于提高理解力和减少术前不确定性.这篇综述强调了为儿科患者获得IC的量身定制方法的必要性,并提出了共享决策(SDM)在手术讨论过程中的潜在作用。
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