Abstract：
BACKGROUND: Previous studies have highlighted patients with chronic conditions seek for medical knowledge and therapeutics on their own. So far, no data exist on the health literacy of patients with gynecological conditions and especially those suffering from endometriosis, whose symptoms\' have a major impact on their daily lives.
METHODS: The objective was to evaluate the health literacy of patients consulting in a referral expert center for the management of endometriosis and gynecological cancers. The secondary objective was to compare the health literacy of patients with endometriosis to patients without. We conducted an observational, prospective, monocentric study in the gynecological department of Tenon Hospital (Paris, France) between July 6, 2022 to January 3, 2023. All patients fulfilled the validated French version of HLS-EU-Q16 questionnaire.
RESULTS: One hundred and ten patients were included. The two following questions were identified as the most difficult among patients with endometriosis: \"Find information about treatments for their disease\" and \"know when it would be helpful to have another doctor\'s opinion\". Compared to patients consulting for other conditions, it was more difficult for patients with endometriosis to respectively \"find information about treatments for diseases\" and \"use information given by the doctor to take decisions about the illness\" (p = 0.003). Compared to patients consulting for cancer, it was more difficult for patient with endometriosis to \"find information about treatments for diseases\" (p = 0.02).
CONCLUSIONS: Progresses in the capacity of the health care to better inform the patients would be highly beneficial, especially for those suffering from endometriosis.
METHODS: The objective was to evaluate the health literacy of patients consulting in a referral expert center for the management of endometriosis and gynecological cancers. The secondary objective was to compare the health literacy of patients with endometriosis to patients without. We conducted an observational, prospective, monocentric study in the gynecological department of Tenon Hospital (Paris, France) between July 6, 2022 to January 3, 2023. All patients fulfilled the validated French version of HLS-EU-Q16 questionnaire.
RESULTS: One hundred and ten patients were included. The two following questions were identified as the most difficult among patients with endometriosis: \"Find information about treatments for their disease\" and \"know when it would be helpful to have another doctor\'s opinion\". Compared to patients consulting for other conditions, it was more difficult for patients with endometriosis to respectively \"find information about treatments for diseases\" and \"use information given by the doctor to take decisions about the illness\" (p = 0.003). Compared to patients consulting for cancer, it was more difficult for patient with endometriosis to \"find information about treatments for diseases\" (p = 0.02).
CONCLUSIONS: Progresses in the capacity of the health care to better inform the patients would be highly beneficial, especially for those suffering from endometriosis.
摘要：
背景：先前的研究强调了慢性病患者自行寻求医学知识和治疗方法。到目前为止,没有关于妇科疾病患者，特别是子宫内膜异位症患者的健康素养的数据，他们的症状对他们的日常生活有重大影响。
方法：目的是评估在子宫内膜异位症和妇科癌症管理转诊专家中心咨询的患者的健康素养。次要目标是比较子宫内膜异位症患者与非子宫内膜异位症患者的健康素养。我们进行了一次观察,prospective,Tenon医院妇科的单中心研究(巴黎，法国）2022年7月6日至2023年1月3日。所有患者均符合HLS-EU-Q16问卷的验证法语版本。
结果：纳入110例患者。以下两个问题被认为是子宫内膜异位症患者中最困难的问题：“查找有关其疾病治疗的信息”和“知道何时获得另一位医生的意见”。与咨询其他情况的患者相比，子宫内膜异位症患者很难分别“找到有关疾病治疗的信息”和“使用医生提供的信息来做出有关疾病的决定”（p=0.003）。与癌症患者咨询相比，子宫内膜异位症患者很难"找到疾病治疗的信息"(p=0.02).
结论：提高医疗保健能力以更好地告知患者将是非常有益的，尤其是那些患有子宫内膜异位症的人。
方法：目的是评估在子宫内膜异位症和妇科癌症管理转诊专家中心咨询的患者的健康素养。次要目标是比较子宫内膜异位症患者与非子宫内膜异位症患者的健康素养。我们进行了一次观察,prospective,Tenon医院妇科的单中心研究(巴黎，法国）2022年7月6日至2023年1月3日。所有患者均符合HLS-EU-Q16问卷的验证法语版本。
结果：纳入110例患者。以下两个问题被认为是子宫内膜异位症患者中最困难的问题：“查找有关其疾病治疗的信息”和“知道何时获得另一位医生的意见”。与咨询其他情况的患者相比，子宫内膜异位症患者很难分别“找到有关疾病治疗的信息”和“使用医生提供的信息来做出有关疾病的决定”（p=0.003）。与癌症患者咨询相比，子宫内膜异位症患者很难"找到疾病治疗的信息"(p=0.02).
结论：提高医疗保健能力以更好地告知患者将是非常有益的，尤其是那些患有子宫内膜异位症的人。
