关键词: India adult spina bifida care coordination child to adult care pediatric neurosurgery transition

Mesh : Humans Spinal Dysraphism / therapy India Transition to Adult Care / trends Adult Telemedicine / trends Child

来  源:   DOI:10.3171/2024.6.FOCUS24266

Abstract:
In India, adult neurosurgeons are required to care for children regularly because the concept of dedicated pediatric specialty care is not yet entirely established in the subcontinent. Likewise, pediatric neurosurgeons do not exclusively offer their services to the young, but they also provide care to adult patients with neurosurgical disorders. This creates a medical system where the transition between specialties is not often a formal and recognized aspect of neurosurgical care because most neurosurgeons provide care for patients of all ages. Additionally, there are very few teams geared toward caring for conditions in children that merit lifelong medical support, with spina bifida (SB) being one of them. Since there are no focused or structured pediatric programs on a large scale, developing a multidisciplinary clinic for adults becomes challenging. A pragmatic approach using technology-based education, supported by an organized system or a coordinator, may be a new strategy. A new system utilizing telemedicine and smartphones for established patients maybe an alternative option for SB children in India. During virtual video conferences, an established patient may benefit from multispecialty care and education toward a smooth transition that avoids significant issues with time, transportation, or financial constraints. Achieving a seamless transition among allied specialists from the pediatric to adult systems is a utopia. The current system in the subcontinent may be improved, with an opportunity to develop smooth transition care between coordinated specialists (who simultaneously treat children and adults). Learning from various global SB management styles, the Indian transition situation may offer another model in the near future.
摘要:
在印度,成人神经外科医生被要求定期照顾儿童,因为专门儿科专科护理的概念在次大陆尚未完全确立.同样,儿科神经外科医生并不专门为年轻人提供服务,但他们也为神经外科疾病的成年患者提供护理。这创造了一个医疗系统,其中专业之间的过渡通常不是神经外科护理的正式和公认的方面,因为大多数神经外科医生为所有年龄段的患者提供护理。此外,很少有团队致力于照顾儿童的疾病,值得终身医疗支持,脊柱裂(SB)就是其中之一。由于没有大规模的集中或结构化的儿科项目,为成人开发多学科诊所变得具有挑战性。使用基于技术的教育的务实方法,由有组织的系统或协调员支持,可能是一个新的策略。为已建立的患者使用远程医疗和智能手机的新系统可能是印度SB儿童的替代选择。在虚拟视频会议期间,一个成熟的病人可以从多专业护理和教育中受益,朝着平稳过渡,避免随着时间的推移出现重大问题,交通运输,或财务限制。在从儿科到成人系统的专职专家之间实现无缝过渡是乌托邦。次大陆目前的制度可能会得到改善,有机会在协调的专家(同时治疗儿童和成人)之间发展平稳过渡的护理。从各种全球SB管理风格中学习,印度的转型形势可能会在不久的将来提供另一种模式。
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