PDF(Pubmed)
Abstract：
OBJECTIVE: This study aims to explore the experiences of individuals with chronic kidney disease (CKD) undergoing haemodialysis and their caregivers, focusing on the disease\'s impact and the treatment process.
BACKGROUND: In Sri Lanka, CKD is a growing health concern, particularly affecting farming communities and contributing to the strain on the biomedical healthcare system. Despite increasing awareness of CKD\'s physical implications, its psychosocial impact remains underexplored. This study seeks to fill this gap, aiming to inform culturally sensitive interventions and improve the healthcare system\'s responsiveness to the unique needs of Sinhala Buddhist individuals with CKD and their caregivers.
METHODS: An exploratory qualitative study.
METHODS: Semistructured interviews were conducted with 10 individuals undergoing haemodialysis and 5 caregivers at a dialysis unit. The interviews were audio-recorded, transcribed and analysed using conventional qualitative content analysis.
RESULTS: The analysis revealed three interrelated main themes: (1) impact on standard of living (quality of life), (2) coping strategies and (3) medical experience, with a notable influence of traditional beliefs and practices.
CONCLUSIONS: The findings highlight the need for a holistic approach to CKD management that integrates physical, emotional, psychological and social aspects, considering the significant role of traditional influences. Further research is essential to develop effective interventions that can enhance the quality of life for CKD.
UNASSIGNED: The lived experiences of Sinhala Buddhist individuals with CKD and their caregivers served as a cornerstone, providing profound insights into the impact of the condition on their lives. Throughout the study, these participants played an instrumental role in refining the research\'s cultural sensitivity and relevance. Their engagement extended beyond the data collection phase to encompass feedback sessions, where they actively shared their perspectives. This ongoing collaboration ensured the study\'s depth and applicability to real-world experiences. By actively involving those directly affected by CKD, this collaborative approach safeguards that the study remains rooted in their voices and addresses their unique needs.
UNASSIGNED: This study adhered to relevant EQUATOR guidelines (the COREQ checklist).
BACKGROUND: This study is not a clinical trial, and thus, registration is not applicable.
BACKGROUND: In Sri Lanka, CKD is a growing health concern, particularly affecting farming communities and contributing to the strain on the biomedical healthcare system. Despite increasing awareness of CKD\'s physical implications, its psychosocial impact remains underexplored. This study seeks to fill this gap, aiming to inform culturally sensitive interventions and improve the healthcare system\'s responsiveness to the unique needs of Sinhala Buddhist individuals with CKD and their caregivers.
METHODS: An exploratory qualitative study.
METHODS: Semistructured interviews were conducted with 10 individuals undergoing haemodialysis and 5 caregivers at a dialysis unit. The interviews were audio-recorded, transcribed and analysed using conventional qualitative content analysis.
RESULTS: The analysis revealed three interrelated main themes: (1) impact on standard of living (quality of life), (2) coping strategies and (3) medical experience, with a notable influence of traditional beliefs and practices.
CONCLUSIONS: The findings highlight the need for a holistic approach to CKD management that integrates physical, emotional, psychological and social aspects, considering the significant role of traditional influences. Further research is essential to develop effective interventions that can enhance the quality of life for CKD.
UNASSIGNED: The lived experiences of Sinhala Buddhist individuals with CKD and their caregivers served as a cornerstone, providing profound insights into the impact of the condition on their lives. Throughout the study, these participants played an instrumental role in refining the research\'s cultural sensitivity and relevance. Their engagement extended beyond the data collection phase to encompass feedback sessions, where they actively shared their perspectives. This ongoing collaboration ensured the study\'s depth and applicability to real-world experiences. By actively involving those directly affected by CKD, this collaborative approach safeguards that the study remains rooted in their voices and addresses their unique needs.
UNASSIGNED: This study adhered to relevant EQUATOR guidelines (the COREQ checklist).
BACKGROUND: This study is not a clinical trial, and thus, registration is not applicable.
摘要：
目的：本研究旨在探讨接受血液透析的慢性肾脏病（CKD）患者及其护理人员的经验，关注疾病的影响和治疗过程。
背景：在斯里兰卡，CKD是一个日益增长的健康问题，特别是影响农业社区，并导致生物医学医疗保健系统的压力。尽管人们越来越意识到CKD的物理影响，其社会心理影响仍未得到充分探索。这项研究旨在填补这一空白，旨在为文化敏感的干预措施提供信息，并提高医疗系统对僧伽罗佛教徒CKD患者及其护理人员的独特需求的反应能力。
方法：探索性定性研究。
方法：对10名接受血液透析的个体和5名透析单位的护理人员进行了半结构化访谈。采访是录音的，使用常规定性内容分析进行转录和分析。
结果：分析揭示了三个相互关联的主要主题：（1）对生活水平（生活质量）的影响，（2）应对策略和（3）医疗经验，传统信仰和实践的显著影响。
结论：研究结果强调了对CKD管理的整体方法的需要，情感,心理和社会方面，考虑到传统影响的重要作用。进一步的研究对于开发可以提高CKD生活质量的有效干预措施至关重要。
■僧伽罗佛教徒与CKD及其照顾者的生活经历是基石，为这种状况对他们生活的影响提供深刻的见解。在整个研究过程中,这些参与者在提炼研究的文化敏感性和相关性方面发挥了重要作用。他们的参与范围超出了数据收集阶段，包括反馈会议，他们积极分享他们的观点。这种持续的合作确保了研究的深度和对现实世界经验的适用性。通过积极参与那些直接受CKD影响的人，这种合作方法保证了这项研究仍然植根于他们的声音并满足他们的独特需求。
■本研究遵循相关EQUATOR指南（COREQ清单）。
背景：这项研究不是临床试验，因此，注册不适用。
背景：在斯里兰卡，CKD是一个日益增长的健康问题，特别是影响农业社区，并导致生物医学医疗保健系统的压力。尽管人们越来越意识到CKD的物理影响，其社会心理影响仍未得到充分探索。这项研究旨在填补这一空白，旨在为文化敏感的干预措施提供信息，并提高医疗系统对僧伽罗佛教徒CKD患者及其护理人员的独特需求的反应能力。
方法：探索性定性研究。
方法：对10名接受血液透析的个体和5名透析单位的护理人员进行了半结构化访谈。采访是录音的，使用常规定性内容分析进行转录和分析。
结果：分析揭示了三个相互关联的主要主题：（1）对生活水平（生活质量）的影响，（2）应对策略和（3）医疗经验，传统信仰和实践的显著影响。
结论：研究结果强调了对CKD管理的整体方法的需要，情感,心理和社会方面，考虑到传统影响的重要作用。进一步的研究对于开发可以提高CKD生活质量的有效干预措施至关重要。
■僧伽罗佛教徒与CKD及其照顾者的生活经历是基石，为这种状况对他们生活的影响提供深刻的见解。在整个研究过程中,这些参与者在提炼研究的文化敏感性和相关性方面发挥了重要作用。他们的参与范围超出了数据收集阶段，包括反馈会议，他们积极分享他们的观点。这种持续的合作确保了研究的深度和对现实世界经验的适用性。通过积极参与那些直接受CKD影响的人，这种合作方法保证了这项研究仍然植根于他们的声音并满足他们的独特需求。
■本研究遵循相关EQUATOR指南（COREQ清单）。
背景：这项研究不是临床试验，因此，注册不适用。
