PDF(Pubmed)
Abstract：
UNASSIGNED: Caring for terminally ill patients with minor children can be very stressful. The perceived quality of life is significantly influenced by the Meaning in Life (MiL). No studies were found that focus on the prioritized special needs of this patient group.
UNASSIGNED: The aim is to compare and contrast terminally ill parents with minor children and palliative care patients in Germany, in order to provide appropriate support beyond medical, nursing or therapeutic interventions.
UNASSIGNED: Terminally ill parents diagnosed were surveyed using a validated instrument \'Schedule for Meaning in Life Evaluation (SMiLE)\'. The study listed various areas that contribute to the MiL, followed by an evaluation of their importance and satisfaction levels. The researchers then compared these findings with data collected from palliative care patients.
UNASSIGNED: In Germany, 54 patients, mostly female and with a mean age of 43, were included in this study between February 2017 and September 2020. The median age of the 96 children during the survey phase was 7 years. The comparison group consists of 100 palliative care patients in Germany; mostly aged 50 years and older. For terminally ill patients most important areas were in decreasing order family (100%), social relations (80%), leisure time (61%), nature/animals (39%) and home/garden (30%). Although the overall indices are close between both groups, there are significant and highly correlated differences between them. Parents felt limited by their illness in being a mother or father, as they wanted to be.
UNASSIGNED: The involvement with SMiLE led patients to consider their coping resources. The areas relevant to terminally ill parents differed from those relevant to palliative care patients. All participants identified family as the most important factor for MiL. The results suggest that evaluating MiL can serve as a coping strategy and help terminally ill parents with minor children.
A comparison of answers to the meaning in life from seriously ill parents with young children with the answers of other seriously ill patients Background: Caring for seriously ill patients with young children can be very stressful. The quality of life depends on meaning in life. No studies were found that focus on the needs of this patients.
OBJECTIVE: The aim was to explore similarities and differences between seriously ill parents with young children and palliative care patients in Germany to find the best way to support them.
METHODS: The Meaning in Life questions were used to find this out. Two researchers asked seriously ill parents about different things that make their lives meaningful. The researchers then compared the results with data from other seriously ill patients in need of palliative care. In Germany, 54 seriously ill parents with young children were interviewed between February 2017 and September 2020. The children were usually seven years old. The compared group consisted of 100 palliative care patients and was mostly older than 49 years. For seriously ill patients most important were family, social relations, leisure time, nature/animals, and home/garden. The values seemed similar, but there are clear differences between the groups. Parents felt their illness limited them in being a mother or a father.
CONCLUSIONS: The questions helped patients helped to remember meaning in life and set goals. The things that mattered to seriously ill parents were different from those that mattered to palliative care patients. All participants said that family was the most important thing for meaning in life. The results show that thinking about meaning in life can help.
UNASSIGNED: The aim is to compare and contrast terminally ill parents with minor children and palliative care patients in Germany, in order to provide appropriate support beyond medical, nursing or therapeutic interventions.
UNASSIGNED: Terminally ill parents diagnosed were surveyed using a validated instrument \'Schedule for Meaning in Life Evaluation (SMiLE)\'. The study listed various areas that contribute to the MiL, followed by an evaluation of their importance and satisfaction levels. The researchers then compared these findings with data collected from palliative care patients.
UNASSIGNED: In Germany, 54 patients, mostly female and with a mean age of 43, were included in this study between February 2017 and September 2020. The median age of the 96 children during the survey phase was 7 years. The comparison group consists of 100 palliative care patients in Germany; mostly aged 50 years and older. For terminally ill patients most important areas were in decreasing order family (100%), social relations (80%), leisure time (61%), nature/animals (39%) and home/garden (30%). Although the overall indices are close between both groups, there are significant and highly correlated differences between them. Parents felt limited by their illness in being a mother or father, as they wanted to be.
UNASSIGNED: The involvement with SMiLE led patients to consider their coping resources. The areas relevant to terminally ill parents differed from those relevant to palliative care patients. All participants identified family as the most important factor for MiL. The results suggest that evaluating MiL can serve as a coping strategy and help terminally ill parents with minor children.
A comparison of answers to the meaning in life from seriously ill parents with young children with the answers of other seriously ill patients Background: Caring for seriously ill patients with young children can be very stressful. The quality of life depends on meaning in life. No studies were found that focus on the needs of this patients.
OBJECTIVE: The aim was to explore similarities and differences between seriously ill parents with young children and palliative care patients in Germany to find the best way to support them.
METHODS: The Meaning in Life questions were used to find this out. Two researchers asked seriously ill parents about different things that make their lives meaningful. The researchers then compared the results with data from other seriously ill patients in need of palliative care. In Germany, 54 seriously ill parents with young children were interviewed between February 2017 and September 2020. The children were usually seven years old. The compared group consisted of 100 palliative care patients and was mostly older than 49 years. For seriously ill patients most important were family, social relations, leisure time, nature/animals, and home/garden. The values seemed similar, but there are clear differences between the groups. Parents felt their illness limited them in being a mother or a father.
CONCLUSIONS: The questions helped patients helped to remember meaning in life and set goals. The things that mattered to seriously ill parents were different from those that mattered to palliative care patients. All participants said that family was the most important thing for meaning in life. The results show that thinking about meaning in life can help.
摘要：
■照顾有未成年子女的绝症患者可能会非常紧张。感知的生活质量受到生活意义（MiL）的显着影响。没有发现专注于该患者群体的优先特殊需求的研究。
■目的是将德国的绝症父母与未成年子女和姑息治疗患者进行比较和对比，为了提供医疗以外的适当支持，护理或治疗干预。
■使用经过验证的工具“生命意义评估时间表（SMiLE）”对被诊断为绝症的父母进行了调查。该研究列出了有助于MiL的各个领域，然后评估他们的重要性和满意度。然后，研究人员将这些发现与从姑息治疗患者收集的数据进行了比较。
■在德国，54名患者,本研究于2017年2月至2020年9月期间纳入,其中大部分为女性,平均年龄为43岁.调查阶段96名儿童的中位年龄为7岁。对照组由德国的100名姑息治疗患者组成；大多数年龄在50岁以上。对于绝症患者，最重要的领域是递减顺序的家庭（100％），社会关系（80%）休闲时间（61%），自然/动物(39%)和家庭/花园(30%)。尽管两组之间的总体指数接近，它们之间存在显著且高度相关的差异。父母在成为母亲或父亲时感到疾病的限制，就像他们想要的那样.
■SMiLE的参与导致患者考虑他们的应对资源。与绝症父母相关的领域与与姑息治疗患者相关的领域不同。所有参与者都认为家庭是MiL的最重要因素。结果表明，评估MiL可以作为一种应对策略，并帮助有未成年子女的绝症父母。
将患有严重疾病的幼儿父母对生活意义的答案与其他严重疾病患者的答案进行比较背景：照顾患有严重疾病的幼儿患者可能会非常紧张。生活的质量取决于生活的意义。没有发现关注该患者需求的研究。
目的：目的是探索德国有幼儿的重病父母与姑息治疗患者之间的异同，以找到支持他们的最佳方法。
方法：使用生活中的意义问题来找出这一点。两名研究人员向重病的父母询问了使他们的生活有意义的不同事情。然后，研究人员将结果与其他需要姑息治疗的重病患者的数据进行了比较。在德国,在2017年2月至2020年9月期间，采访了54名患有严重疾病的幼儿父母。孩子们通常是7岁。对照组由100名姑息治疗患者组成，大多数年龄超过49岁。对于重病患者来说，最重要的是家人，社会关系,休闲时间,自然/动物,和家/花园。价值观似乎相似，但是两组之间有明显的差异。父母认为他们的疾病限制了他们成为母亲或父亲。
结论：这些问题帮助患者记住生活的意义并设定目标。对重病父母重要的事情与对姑息治疗患者重要的事情不同。所有参与者都说，家庭是生命中最重要的意义。结果表明，思考生活中的意义可以有所帮助。
■目的是将德国的绝症父母与未成年子女和姑息治疗患者进行比较和对比，为了提供医疗以外的适当支持，护理或治疗干预。
■使用经过验证的工具“生命意义评估时间表（SMiLE）”对被诊断为绝症的父母进行了调查。该研究列出了有助于MiL的各个领域，然后评估他们的重要性和满意度。然后，研究人员将这些发现与从姑息治疗患者收集的数据进行了比较。
■在德国，54名患者,本研究于2017年2月至2020年9月期间纳入,其中大部分为女性,平均年龄为43岁.调查阶段96名儿童的中位年龄为7岁。对照组由德国的100名姑息治疗患者组成；大多数年龄在50岁以上。对于绝症患者，最重要的领域是递减顺序的家庭（100％），社会关系（80%）休闲时间（61%），自然/动物(39%)和家庭/花园(30%)。尽管两组之间的总体指数接近，它们之间存在显著且高度相关的差异。父母在成为母亲或父亲时感到疾病的限制，就像他们想要的那样.
■SMiLE的参与导致患者考虑他们的应对资源。与绝症父母相关的领域与与姑息治疗患者相关的领域不同。所有参与者都认为家庭是MiL的最重要因素。结果表明，评估MiL可以作为一种应对策略，并帮助有未成年子女的绝症父母。
将患有严重疾病的幼儿父母对生活意义的答案与其他严重疾病患者的答案进行比较背景：照顾患有严重疾病的幼儿患者可能会非常紧张。生活的质量取决于生活的意义。没有发现关注该患者需求的研究。
目的：目的是探索德国有幼儿的重病父母与姑息治疗患者之间的异同，以找到支持他们的最佳方法。
方法：使用生活中的意义问题来找出这一点。两名研究人员向重病的父母询问了使他们的生活有意义的不同事情。然后，研究人员将结果与其他需要姑息治疗的重病患者的数据进行了比较。在德国,在2017年2月至2020年9月期间，采访了54名患有严重疾病的幼儿父母。孩子们通常是7岁。对照组由100名姑息治疗患者组成，大多数年龄超过49岁。对于重病患者来说，最重要的是家人，社会关系,休闲时间,自然/动物,和家/花园。价值观似乎相似，但是两组之间有明显的差异。父母认为他们的疾病限制了他们成为母亲或父亲。
结论：这些问题帮助患者记住生活的意义并设定目标。对重病父母重要的事情与对姑息治疗患者重要的事情不同。所有参与者都说，家庭是生命中最重要的意义。结果表明，思考生活中的意义可以有所帮助。
